ADHD As A Difference In Cognition, Not A Disorder: Stephen Tonti at TEDxCMU
Summary
TLDRStephen Tonti, diagnosed with ADHD at a young age, shares his diverse experiences and talents, emphasizing the misconceptions about ADHD as merely an inability to focus. He discusses the benefits of hyperfocus when interest is piqued and the challenges of mundane tasks. Tonti advocates for a healthier understanding of ADHD, highlighting the importance of support from family and schools, as well as the exploration of alternative treatments. He concludes with a call for societal acceptance of cognitive diversity, drawing inspiration from Shakespeare and Robin Williams.
Takeaways
- 😀 Stephen Tonti introduces himself as a multi-talented individual with ADHD, sharing his diverse passions and skills.
- 🧠 ADHD is often misunderstood as an inability to focus, but it's more about difficulty selecting what to focus on rather than a lack of focus.
- 🎯 Tonti explains the concept of hyperfocus, where ADHD individuals can become deeply engrossed in tasks that excite them, despite struggling with mundane ones.
- 🎭 His exploration of numerous activities, from music to acting and directing, helped him discover his passion for storytelling and film.
- 📚 Tonti highlights how ADHD led him to explore a wide range of hobbies, giving him diverse perspectives and a broader worldview.
- 🏫 He contrasts his own supportive school environment with that of his roommate, illustrating how different approaches to ADHD can affect a student's experience.
- 💊 Tonti discusses the issues surrounding ADHD medication, advocating for a more thoughtful approach and highlighting the negative effects some medications can have.
- 👩🏫 Schools and teachers play a crucial role in supporting students with ADHD by understanding their needs and adjusting teaching methods accordingly.
- 🌍 He advocates for embracing cognitive diversity, citing examples like the Danish organization Specialisterne, which employs people with ADHD and autism in specialized roles.
- 🔥 Tonti concludes with a call for society to embrace people with ADHD for who they are, quoting Shakespeare and Robin Williams to inspire individuality and creativity.
Q & A
Who is Stephen Tonti and what is his connection to ADHD?
-Stephen Tonti is a director, writer, actor, drummer, scuba diver, soccer player, and many other things. He was diagnosed with ADHD at a young age by a second-grade teacher during an interview for a new school.
How did Stephen Tonti's second-grade teacher diagnose him with ADHD?
-The teacher diagnosed Stephen with ADHD during an interview when he fell out of his chair while being asked a series of questions designed to evaluate signs of ADHD, as he was distracted by a view of children playing outside.
What was Stephen Tonti's experience with extracurricular activities in school?
-Stephen tried a wide range of extracurricular activities including computing, robotics, carpentry, canoeing, rock climbing, poetry club, logic club, poker club, comedy club, camping, various sports, and playing multiple musical instruments.
How did Stephen Tonti's ADHD affect his academic and extracurricular pursuits?
-Stephen's ADHD made it difficult for him to focus on activities that did not peak his curiosity, but when something did interest him, he could hyperfocus and become deeply involved in it.
What is the difference between Stephen Tonti's view of ADHD and the common misconception?
-Stephen views ADHD not as an inability to focus, but as a difficulty in selecting what to focus on. He explains that he can hyperfocus on things that peak his curiosity, which is both a strength and a challenge.
How does Stephen Tonti's experience with ADHD influence his work as a director?
-Stephen's ADHD allows him to see the big picture and manage multiple tasks and perspectives, which is beneficial in directing where he needs to oversee various roles from designers to actors.
What is Stephen Tonti's opinion on the treatment of ADHD?
-Stephen believes that ADHD should be seen as a difference in cognition rather than a disorder that needs fixing. He advocates for a healthier understanding and treatment approach, including support from educators and family.
How did Stephen Tonti's family support his ADHD?
-Stephen's family was supportive of his various obsessions and interests, providing him with the resources and freedom to explore them, which contributed to his ability to maintain his sanity and explore his passions.
What is Stephen Tonti's stance on medication for ADHD?
-Stephen believes that ADHD medication should only be prescribed to those who can physically handle its effects and withdrawal. He suggests that there are many alternatives to medication that should be considered.
What does Stephen Tonti suggest as an alternative to medication for managing ADHD?
-Stephen suggests that alternatives to medication include weighted pads for comfort, allowing for tics like chewing pencils, and teaching kids to self-regulate and manage their own learning.
How does Stephen Tonti view the role of society in understanding and embracing ADHD?
-Stephen believes society should embrace cognitive diversity and not treat ADHD as something that needs to be fixed. He cites organizations like Specialisterne that value the unique skills of individuals with ADHD.
Outlines
🎭 Stephen Tonti: Multi-Talented and Diagnosed with ADHD
Stephen Tonti introduces himself as a director, writer, actor, and a person with numerous hobbies, including drumming, scuba diving, and physics. He humorously recounts how he was first diagnosed with ADHD by a second-grade teacher during an interview at a school in Texas. His inability to sit still, especially when distracted by kids playing outside, led to him being rejected from the school. Tonti describes his experience of trying various extracurricular activities, including rock climbing, sports, and playing seven different musical instruments, before finding his passion in theater. He highlights how ADHD, often seen as an inability to focus, is actually an issue of selecting focus. Once something grabs his attention, he can hyperfocus for long periods. He contrasts this by explaining how tasks that don’t interest him, like reading textbooks, are more challenging. ADHD is portrayed as both a blessing and a curse in his life.
💡 ADHD: Hyperfocus and Exploration of Interests
Tonti reflects on how ADHD compelled him to try a wide variety of hobbies and activities, allowing him to explore different career paths. He criticizes societal expectations that force young adults to focus on only one or two fields, limiting their potential. His wide-ranging interests, from drumming to graphic design, help him relate to others and enrich his storytelling as a director. Tonti emphasizes that ADHD should not be viewed purely as a disorder but as a difference in cognition. While the world tries to 'fix' it, he argues that ADHD is part of who he is, and treatment should focus on managing it rather than eliminating it. He shares a personal story about his roommate Adam, also with ADHD, who faced more rigid treatment from his high school, including being praised for being quiet rather than active in class. This highlights the need for a more compassionate and individualized approach to ADHD.
🏫 ADHD in Schools: A Call for Understanding and Support
Tonti calls for schools to adopt a more progressive and supportive approach to students with ADHD. He praises his own experience, where teachers allowed him extra time and freedom to express himself. In contrast, many other kids, like his roommate Adam, do not receive the same support and are medicated in ways that suppress their personality rather than nurture their talents. Tonti discusses how ADHD medications like Ritalin and Adderall can have severe side effects and advocates for these drugs to be prescribed only to those who are old enough to handle them. He also suggests alternative solutions such as weighted pads or rubber-coated pencils, which help some people focus. Ultimately, Tonti argues that teachers need to mentor students rather than discipline them, fostering a healthy relationship with learning.
🌍 Embracing Cognitive Diversity and the Future of ADHD
In the final part of his speech, Tonti encourages society to embrace cognitive diversity, citing examples like the Danish organization Specialisterne, which trains people with ADHD and autism to work in technical fields. He challenges the notion that his disorder separates him from 'normal' people, humorously noting that no one at Carnegie Mellon qualifies as 'normal.' Tonti concludes by quoting Shakespeare's Sonnet 121, which condemns hypocrisy and calls for people to live authentically, not according to others' judgments. He echoes this sentiment by urging society to conform to him, rather than forcing him to conform to it. Tonti leaves the audience with a quote from Robin Williams, who famously said, 'We are all only given a little spark of madness. You mustn’t lose it.'
Mindmap
Keywords
💡ADHD
💡Hyperfocus
💡Cognitive diversity
💡Medication
💡Exploration
💡Misunderstanding
💡Educational system
💡Creativity
💡Support system
💡Conformity
Highlights
Stephen Tonti introduces himself with a long list of roles and skills, emphasizing his multifaceted identity.
Tonti discloses his ADHD diagnosis, highlighting the early and unconventional way it was identified.
He humorously recounts the incident with the inflatable beach ball that led to his ADHD discovery.
Tonti's narrative includes the challenges faced in finding an academic environment due to his ADHD.
He shares his extensive engagement in extracurricular activities as a means to explore his interests.
Tonti's passion for the arts, particularly theater, emerges as a pivotal point in his journey.
The speaker discusses the misconception of ADHD as a lack of focus, clarifying it as difficulty in selecting what to focus on.
He explains the concept of hyperfocus and its impact on his ability to engage with tasks that interest him.
Tonti contrasts his experiences with those of his roommate, Adam, to illustrate the varying impacts of ADHD and treatment.
The importance of support from family and educators in navigating ADHD is emphasized.
Tonti advocates for a healthier understanding of ADHD, moving away from the notion of it as something to be 'fixed'.
He discusses the role of schools in fostering an environment that supports students with ADHD.
Tonti suggests alternatives to medication for managing ADHD, such as weighted pads and behavioral strategies.
The concept of cognitive diversity is introduced, with examples like Specialisterne, promoting the value of different cognitive styles.
Tonti concludes with a call to embrace individuality and not conform to societal pressures, quoting Shakespeare and Robin Williams.
Transcripts
Reviewer: Queenie Lee
Cool!
Hi, my name is Stephen Tonti,
and I'm a director, a writer, an actor,
a drummer, a scuba diver, a soccer player,
a camera operator, an airbrush artist, a physicist, a stargazer, a rock climber,
a snowboarder, a model maker, a stage manager, a camp counselor,
a PA, a DJ, a club president, a magician,
and for a brief stint in May 2012,
I was called upon to repair two stopwatches which had stopped working.
(Laughter)
Who am I, you ask?
My name is Stephen Tonti, and I have ADHD.
(Laughter)
ADHD stands for attention deficit hyperactive disorder,
and I was first diagnosed with ADHD
not by a diagnostician, or a private practice, or a pediatrician,
but by a second-grade teacher
who was interviewing me for a spot at the school she was working at.
My family had just moved
from New Orleans, Louisiana, to Dallas, Texas,
and I was in a search for a new academic home.
During this particular interview,
this particular teacher received a message ahead of time
from my first grade teacher back in New Orleans
to check me for any signs of ADHD.
Just as she reached the series of questions
devised to evaluate whether a child between the ages of five and 17 is ADHD:
Wham! I fell out of my chair.
(Laughter)
No, I didn't slip.
And no, the chair didn't crumble beneath me.
Behind the teacher's desk was this giant window,
and through that window was a giant field,
and on that field
were what appeared to me at the time to be hundreds of thousands of kids
my age.
They were all playing with a great, inflatable, rainbow beach ball,
and as they moved all around the field, all I could do was keep track of them.
So I leaned a little bit to the left, and I leaned a little bit to the right,
a little bit more to the left, a little bit more to the right
before the disaster.
I still maintain today that window was a trap, and I was setup.
(Laughter)
So I was rejected from Middle School
because I was an eight-year-old boy who couldn't sit still in his chair.
There was this complex marshmallow-related incident
between myself and some of the staff there, but anyway.
I ended up at the Episcopal School of Dallas.
Over the next 11 years, I tried everything.
When I say everything, I mean everything.
Extracurriculars: I tried computing, robotics, carpentry, canoeing,
rock climbing, poetry club, logic club, poker club, comedy club, and camping.
I went camping at least twice a year for four years.
And the band - oh my god.
I tried trumpet, saxophone, electric bass, piano, stand-up bass, guitar, acoustic -
Did I mention I played sports?
It was Texas. We played sports. I tried all of them.
And the drums.
I even took a short-lived stab at the heart.
I played seven different instruments - "played" being a very generous term.
(Laughter)
When all of a sudden my theater - my school built a theater -
and I thought, why not?
So I started the shop building sets, then the sound booth, the light booth.
Then my teacher asked me to act, so I played Conrad in "Ordinary People."
I said, "Can I direct?" and she said, "Go for it!"
So I directed "12 Angry Jurors" -
because this is high school, people, and you can't direct "12 Angry Men"
with a drama school that has three boys and four girls -
for the people doing math at home,
that's seven drama students for a show with 12 in it.
(Laughter)
Before I knew it,
I was auditioning and interviewing in drama schools across the country,
and that's when Carnegie Mellon found me.
And I love it here. I really do.
But moving on. So what?!
I have ADHD, and ADHD is misunderstood as an inability to focus,
but it's much stranger than that.
It's not a lack of focus - period.
It's that I have a hard time
selecting something and giving it my full attention.
Something has to grab my attention,
peak my curiosity, and then I can hyperfocus.
This is a good thing and a bad thing.
It's a bad thing
because I have a hard time completing things that don't excite me.
We live in a world
where you have to read your textbooks and pay your taxes.
And yes, big textbooks with no pictures frighten me.
And no one likes handling taxes - actually, some of you might like that.
(Laughter)
But the upside is,
when something does peak my curiosity, I become obsessed and I hyperfocus.
I spend a lot of time with film.
I can spend upwards of 12 hours in a row
editing clips, sometimes until 6:30 in the morning.
In the theater, when I have to put a show up,
I'll pull 15 hour days for weeks on end, and I enjoy that; I love that.
I can read a 500-page novel that I love
much faster than a one-page article that I don't care for.
It's easier for me to see the big picture.
As a director, I have to track 20 people
with very different jobs from designers, to writers, to actors,
and I find handling that much easier than finishing that one-page article,
which I'm still working on.
(Laughter)
David Neeleman,
the founder and CEO of JetBlue, who is also ADHD by the way,
says, "I have a hard time doing the mundane things in life.
I have an easier time planning a 20-aircraft fleet
than I do paying my light bill."
Yeah.
So, another good thing about ADHD
is because I felt compelled to try everything,
I was able to explore all the possible career paths I might not have
and might not have discovered what I truly want to do.
So many teens and young adults
are expected to focus on one or two fields of study
and one or two hobbies,
and hope and pray they like the ones they've chosen
or that've been chosen for them.
My job is to tell other people stories,
and I find it's easier time doing that
when I can draw from all of these other perspectives.
It's easier for me to see the world through the eyes of a drummer
because I've tried that.
It's easier for me to see the world through the eyes of a graphic designer
because I've tried that too.
ADHD is a difference in cognition, not simply a disorder.
We're attention different, not attention deficit.
But because it's treated and misunderstood as a disorder,
it's treated at something that needs fixing.
So the idea seems to be that:
we need to get rid of my ADHD, but there's no getting rid of it.
There's just sedating it.
I was lucky.
My high school teachers were hip, young progressives
who were delighted to give me extra time, the additional attention,
and the overall freedom to express myself the way that I felt necessary.
So many other kids with ADHD aren't as lucky.
For example, my roommate.
Adam has been my roommate for four years.
He is an excellent actor in the school of drama and a brilliant thinker.
We both grew up in Dallas, Texas, and be both have ADHD.
Adam's high school was different.
Now even though he grew up only 15 minutes north of me,
Adam's high school had harsher penalties for falling out of a chair.
When you're a kid diagnosed with ADHD,
your doctor administers a series of amphetamines,
and everybody waits.
Because no one has a clue how you'll react.
You might get more calm.
You might become depressed.
You might lash out at the people around you.
The difference between Adam and me
is when a new medication may cause me to act out,
my teachers immediately advise my doctors that I change my medication.
However, when Adam tried a new medication,
his teachers wrote this in his report,
"Adam is less motivated, less animated, and less involved in class activities,
but at least, he's quiet now."
We need a healthier understanding of people with ADHD,
and it starts at home.
I had mother and father who supported every obsession.
I distinctly recall my father asking one day,
"Son, you're only 14.
what could you possibly want with an air compressor?"
(Laughter)
To which I responded,
"I want to airbrush t-shirts and shorts to sell to my classmates and friends."
(Exhale)
Alright then.
And we would go out and get it.
I would play with it and I'd obsess over it.
During the summers, when I went off my medication
and my body was wrecked with the effects of withdrawal,
my mother sat by my side, literally coaxing the migraines out of me.
With their support,
I was able to explore, and my obsessions grew and multiplied,
and I was able to maintain my sanity.
Schools need to develop a better attitude towards students with ADHD, as well.
There's plenty of examples out there.
For instance, the Eagle Hill School, in Hardwick, Massachusetts.
The Eagle Hill School believes that every student can learn.
That learning differently requires teaching differently.
And that we must educate our kids, our students,
to learn about learning
in order to form new beliefs in a search for intellectual autonomy.
Professors who act more as mentors, as opposed to disciplinarians, inspire me.
When teachers level with me, I feel like I'm more in control;
that there's a dialog regarding new ways of thinking
and approaching a problem, focusing, completing tasks.
We have to create and develop a healthier relationship with medication.
I think that Ritalin, Adderall, Concerta
should only be prescribed to someone
who can physically handle the effects of these drugs and their withdrawal.
12 is far too young. 16 is still too young.
There are so many alternatives to medication.
Studies have shown that for some
it's just an added weight or pressure to help them focus.
And these things exist.
There are weighted pads that help people feel more comfortable
so they can complete tasks on time.
For some people, it's tics, like chewing pencils,
so give them rubber coated pencils.
We have to teach kids to teach themselves;
it's the best thing we can do for our kids.
And lastly, our society has to embrace cognitive diversity.
For example, Specialisterne, or The Specialist,
is a Danish organization that trains people with autism and ADHD
as consultants in I.T. and other more technically oriented tasked jobs.
We have to turn this joke around
on those who believe that my disorder divides me from my more "normal peers."
Besides, who here at Carnegie Mellon really qualifies as normal, anyway?
(Laughter)
(Applause) (Cheers)
A great author, a masterful playwright and a sublime poet once writ ...
Any guesses to who I speak of?
(Audience) Shakespeare!
Thou art correct!
(Laughter)
Shakespeare sonnet 121.
'Tis better to be vile than vile esteemed
When not to be receives reproach of being,
And the just pleasure lost, which is so deemed
Not by our feeling but by others' seeing.
For why should others' false adulterate eyes
Give salutation to my sportive blood?
Or on my frailties why are frailer spies,
Which in their wills count bad what I think good?
Nae, I am that I am, and they that level
At my abuses reckon up their own:
I may be straight, though they themselves be bevel;
By their rank thoughts my deeds must not be shown;
Unless this general evil they all maintain,
All men are bad, and in their badness reign.
In sonnet 121 Shakespeare condemns hypocrisy.
He implores us not to let others' false adulterate eyes
condemn us for something that they believe us to be.
He begs you not to let the selfish, negative comments of others
hinder the just pleasures owed to you.
A hierarchy of frailer spies
have asked me to conform to society's means.
I purpose the opposite.
I purpose let society conform to me.
And I implore you to do the same.
I'll leave you with something
that Robin Williams, a poster child for us in the ADHD community,
(Laughter)
once said, "We are all only given a little spark of madness.
You mustn't lose it."
Thank you!
(Applause) (Cheers)
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