MY KIDNEY TRANSPLANT REJECTION PART ONE! TREATMENT & SYMPTOMS!
Summary
TLDRIn this heartfelt video, Cindy shares her kidney transplant journey, focusing on the challenging experience of rejection. She candidly discusses the consequences of missing medication and the importance of adhering to medical regimens. Cindy documents her hospital stay, treatments with Medrol and Prednisone, and the biopsy that assesses the severity of rejection. Despite setbacks, she maintains a positive outlook, hoping for recovery and emphasizing the need for self-care and timely medication.
Takeaways
- 😷 The video is about Cindy's personal experience with kidney transplant rejection and the importance of medication adherence.
- 💬 Cindy introduces herself and her channel, which shares her kidney transplant journey, travel vlogs, testimonies, and lifestyle videos.
- 🏥 Cindy experienced rejection due to not taking her medication consistently and dealing with insurance issues, which led to her hospitalization.
- 💊 She was administered 500 milligrams of Solu-Medrol (a form of Prednisone) intravenously as part of her treatment for rejection.
- 📈 Cindy's GFR (glomerular filtration rate) was at 20, indicating severely reduced kidney function, but there is hope for recovery and improvement.
- 🔍 A biopsy was conducted to assess the severity of the rejection and to determine the appropriate treatment plan.
- 🍽 Despite the medication's side effects, including loss of appetite, Cindy forced herself to eat to maintain her health during hospitalization.
- 🌱 Cindy believes that changes in her life post-discharge, including a potential shift to a vegan or raw vegan diet, could further improve her kidney function.
- 📉 After discharge, Cindy's GFR improved to 28, and her creatinine levels stabilized at 2, indicating some recovery but not a full reversal of the rejection.
- 💡 Cindy emphasizes the importance of taking medication on time and not neglecting one's health, as she did during her busy work period.
- 🙏 Cindy maintains a positive outlook, trusts in her recovery, and believes in the power of prayer and self-belief in overcoming health challenges.
Q & A
What is the main topic of Cindy's video?
-The main topic of Cindy's video is her experience with kidney transplant rejection.
Why did Cindy decide to share her experience with rejection?
-Cindy decided to share her experience to serve as an example and guide for others who might be dealing with rejection, and to show them what to expect.
What medication is Cindy taking for her rejection treatment?
-Cindy is taking 500 milligrams of Solu-Medrol (a form of prednisone) in sodium chloride for her rejection treatment.
What was the consequence of Cindy not taking her medication consistently?
-The consequence of not taking her medication consistently was that Cindy experienced kidney rejection.
How did Cindy's health issues begin?
-Cindy's health issues began when she had problems with her insurance and was unable to get her medication filled, leading to her not taking her medication on time.
What medical procedure is Cindy scheduled for?
-Cindy is scheduled for a biopsy to determine the severity of the rejection.
What was Cindy's GFR level when she noticed her health was deteriorating?
-Cindy's GFR level was at 20 when she noticed her health was deteriorating.
What side effects did Cindy experience from the medication?
-Cindy experienced stomach pain and an increase in blood sugar levels as side effects from the medication.
What changes did Cindy make in her life after being discharged from the hospital?
-After being discharged, Cindy started taking her medication on time, improved her diet, and began to regain some of the lost kidney function.
What are the current medications Cindy is taking?
-Cindy is currently taking 750 milligrams of mycophenolate mofetil, 10 milligrams of prednisone, monthly infusions of belatacept, and amlodipine for blood pressure.
What dietary changes is Cindy considering to improve her kidney function?
-Cindy is considering adopting a vegan or raw vegan diet to potentially improve her kidney function.
Outlines
😷 Facing Transplant Rejection
Cindy, the channel host, begins by sharing her personal struggle with transplant rejection, a topic of concern for transplant patients. She provides a brief introduction to her channel, which features her kidney transplant journey, travel vlogs, and lifestyle content. Cindy admits to neglecting her health due to work and other priorities, which led to her experiencing rejection. She discusses her current medical treatment, including the administration of 500 milligrams of Solu-Medrol in sodium chloride, and her upcoming biopsy to assess the severity of the rejection. Cindy emphasizes the importance of taking medication consistently and staying in touch with her followers for support and encouragement.
🏥 Hospital Stay and Treatment
In this paragraph, Cindy details her hospital stay, which includes her treatment with high doses of Prednisone through an IV and the anticipation of biopsy results. She mentions the side effects she's experiencing, such as stomach pain and increased blood sugar levels. Cindy also reflects on the impact of her health crisis on her life, expressing gratitude for the support she receives and her faith in a positive recovery. She provides updates on her kidney function, with her GFR at 20, indicating severe impairment, but maintains hope for improvement. Cindy's narrative includes her daily experiences in the hospital, her emotional state, and her determination to get better.
💪 Recovery and Reflection
Cindy concludes her video script by sharing her progress since being discharged from the hospital four months prior. She discusses the challenges of dealing with medication side effects and the gradual improvement in her health, including stabilizing her kidney function and blood work. Cindy has reduced her medication regimen to four main drugs and is focusing on hydration and diet to further enhance her recovery. She contemplates adopting a vegan lifestyle to potentially improve her kidney function and plans to share her experiences and answer audience questions in an upcoming Q&A video. Cindy's story is one of resilience, hope, and the importance of self-care and medication adherence in the life of a transplant patient.
Mindmap
Keywords
💡Rejection
💡Transplant Patient
💡Kidney Transplant
💡Medication
💡GFR (Glomerular Filtration Rate)
💡Prednisone
💡Biopsy
💡Treatment Plan
💡Plasma Treatment
💡Creatinine
💡Diet and Lifestyle Changes
Highlights
Introduction to the video and Cindy's channel, which focuses on her kidney transplant journey, travel vlogs, testimonies, lifestyle videos, and more.
Cindy discusses her personal experience with rejection after a kidney transplant, sharing her symptoms and the emotional impact.
The importance of medication adherence for transplant patients and the consequences of missing doses, as experienced by Cindy.
Cindy's decision to document her rejection process to serve as a guide and warning for others going through similar situations.
Details of the medical treatment Cindy is receiving, including the dosage and type of medication administered.
Cindy's admission to the hospital due to her deteriorating health and the urgency of her situation.
The process of undergoing a biopsy to determine the severity of the rejection and to plan the subsequent treatment.
Cindy's current health status, including her GFR levels and creatinine levels, and the expectations for recovery.
The side effects Cindy is experiencing from the medication, such as stomach pain and increased blood sugar levels.
Cindy's reflections on the importance of self-care and the balance between work and health, acknowledging her previous negligence.
Cindy's update on her recovery progress, including her current GFR and creatinine levels, and the ongoing treatment.
The changes in Cindy's medication regimen post-rejection, including the introduction of new drugs and dosages.
Cindy's commitment to improving her health through diet, including considering a vegan or raw vegan lifestyle.
Cindy's optimism about the potential for kidney function recovery and the importance of proper nutrition and care.
Cindy's plan to engage with her audience through a Q&A video to address their questions and concerns.
Cindy's closing thoughts, expressing gratitude for the support she receives and wishing her audience well.
Transcripts
okay
oh my goodness guys my face feels
swollen
hi everyone welcome to my Channel today
I'm going to be sharing with you guys
something that no transplant patient
wants to hear and it is about rejection
I went through this a couple months ago
um so throughout this video I will be
talking with you guys exactly what I was
going through what I was feeling I was
recording throughout the process so you
will be seeing clips of me at the
hospital so definitely keep on watching
and stay tuned until the end I will tell
you exactly where I am in my health now
with my transplant if I was able to
regain function
um so definitely stick around all the
way through the end so without further
Ado let's hop into this video but
quickly I want to introduce myself for
anybody that is new here my name is
Cindy and here on my channel I share my
kidney transplant Journey as well as
travel Vlogs testimonies lifestyle
videos and so much more so if you are
new definitely consider subscribing
[Music]
foreign
[Music]
I am making this video
um just to share with you guys well I'm
sure you guys can see me from the title
already
I'm experiencing rejection
and I thought about not recording this
process because I haven't uploaded in a
while but I said I should and I want to
record this
only because I will regret it after if I
don't because I know I'm gonna recover
from this God willingly and when I am
better I'm gonna be like
I wish I would have worn them or spoke
to them or been an example or even show
them kind of guide you what to expect
if you're dealing with rejection
because as you guys know like I'm here
to serve you guys and to inform you and
help you guys on your transplant Journey
as well as you guys like you guys always
uplift me encourage me and I'm so
thankful for even though I'm not
consistent I still get on like my app
and I read the comments and it uplifts
me when I need the words of
encouragement okay so here guys I have
my IV poll
and I'm gonna read to you exactly what
I'm taking and I'll go into it
oh this is high up give me a second
I am currently taking 500 milligrams of
solar Medrol solo medra uh in sodium
chloride
sounds very toxic but no this is
necessary
um so let me give you guys an update how
I even got to this place what brought me
to the hospital
so as you guys know as transplant
patients we are constantly doing our
monthly check-ins or every three months
or however it might be depending on your
situation you know your follow-up plan
so me personally I am going to the
doctors every three months however I was
having some issues with my insurance and
getting my medication filled and
I didn't take my medication
honestly I believe I was being naive I
was caught up in so many things that
were honestly second to my health but I
was being naive and didn't think that
you know my trans fat could start
rejecting only after like a couple of
days or a couple of weeks so
I didn't think it could happen to me
that quick that soon even though it had
been drilled so much in my head years
ago the importance of being on time with
your medication taking them consists
consistently
um
I don't know I guess I wasn't
to be honest 100 honest my health was
not my priority
um
wasn't eating the best either
um I've just had been so caught up on
work that
most of my focus was there and in
reality
it's not worth it it's not worth
like
being
you know so
caught up in in the material stuff and
building and building ability because it
gets tiring on top of that I neglected
my health because of the decision
of doing that versus taking care of
myself first
um anyways so I went in did my blood
work I viewed my exam the following day
on my chart and I noticed I created how
I got it up I noticed my GFR I noticed
my other blood blood work it did it did
not look good whatsoever
so I got to the doctors I was completely
honest with him what was going on I was
having problems with my insurance
um and
and yeah he ended
um
he ended up telling me I needed to come
to the emergency as soon as possible
because I was going into rejection and I
needed to start treatment so I got here
at nine 9 45 I want to say
didn't start treatment my first
treatment until roughly around three
o'clock
um I did my first dose of what the
Medrol whatever you heard me pronounced
previously and and now the previous day
um so what's the day it's September
23rd so it's the previous day and I'm
scheduled this morning for a biopsy so
they should be here any moment now to
pick me up to take me
um to that biopsy this will give them a
further explanation into how severe the
rejection is and they will know what
treatment plan exactly to give me if
they have to continue these IVs or if
they have to do plasma treatment which
is a little bit more aggressive it's
very similar to dialysis I personally
never done that but I've heard uh about
like people having to do that
post-transplant due to rejection
um so I will keep you guys updated
hopefully
me get this all figured out I am staying
positive and I am hoping for a recovery
and a bounce back my GFR is at 20
meaning my kidney function stands at 20
um but like I said if there's a
possibility of it a good possibility
that it will bounce back and everything
will be fine
good afternoon guys so it's day three of
me being in the hospital got here
Thursday Friday it's now Saturday
I'm just having my lunch to be honest
so I've already taken three doses of the
Cyber Monday
I can't even pronounce it
solo medal which is 500 milligrams of
Prednisone basically given to me through
this IV
um the only side effects that I have
felt as of now is just stomach pain and
then they have they mentioned that my
blood sugar will increase which I don't
feel anything but the lab results do
show that it has increased it's at 155
my creatinine has been stabilized at 2.8
they're happy that it's not increasing
it's still not going down but they say
it does take a little bit of time for it
to start to
um you know react to the medication that
I'm currently taking
[Music]
um
I had the biopsy yesterday I'm waiting
on the results
um I'm just trying to eat my lunch like
I said I don't really have an appetite
even though they said that this was
going to increase my appetite I don't
have one
um but I'm forcing myself to eat because
I know it's important
um
there's so many things like I was saying
before
that like I'm here
but there's gonna be so many changes in
my life when I get out of here
and I'm really excited for it because I
know it's gonna be more relaxed
so yeah
just a matter of waiting and seeing
and trusting in the Lord
for his perfect
timing with everything and I know I'm
gonna recover for the from this I am
declaring and believing that I will have
my kidney function back and it will be
reversed this rejection in the mighty
name of Jesus Will delivers
um this is a a lesson a well-learned
lesson for me
guys take your medication on time don't
do what I did
um
I just want to give you guys an update
let you guys know where I where I'm at
I don't know when I'm gonna be
discharged we're just waiting for
results
hopefully you'll have some results by
tomorrow
and have a game plan
so yes due to my own negligence
unfortunately I did have rejection now
it's been about I was there September so
September October November December
January let's say it's been a good four
months since I've been discharged
um when I was discharged I believe I was
at 28 GFR my current I was at 2.8
um I'm still getting blood work
regularly
um I was still dealing with a lot of the
side effects from the medication so a
lot of nausea headache
um body pain but it wasn't as severe I
slowly like started to progress I did
lose weight throughout the process I
still haven't gained it back completely
but I have been gaining weight
um and I still deal with some of the
nausea but not as bad I was dealing with
the everyday about three to four times a
day now it'll probably be like once a
day or every other day
um
so yeah
and if you're wondering about my
medications now
um I am currently taking 750 milligrams
of microfinily and then 10 milligrams of
Prednisone
um I take my monthly infusion of the
lattice fat also my blood pressure
medication which is the amlodipine so we
started with a whole bunch of
medications it was like resetting the
transplant starting at day one when I
was transplanted basically and we were
able to wean off the medication
um and now I'm just at those four yeah
four balasub microfenylate prednisone
and then amlodipine which is the blood
pressure so I'm currently just taking
four medications
um I'm trying to stay as hydrated as
possible I am getting monthly blood work
sometimes it's every two weeks all
depending on what they see up in labs
when I was discharged I was having
problems with getting my magnesium up I
also had anemia thankfully now with my
diet and everything that I'm doing
taking my medications on time I've been
able to improve my hemoglobin as well as
my magnesium has gone up I was taking
magnesium pills thankfully I'm not
anymore and I'm at a stable range which
is gone my current GFR is still the same
at 28 my current is at two I do believe
if I change the way I eat to maybe a
vegan diet or a raw vegan lifestyle I
will see even further changes it's just
I haven't built that self-discipline and
will that I want to
um so hopefully this year I'm gonna hop
on that journey and let you guys know
exactly how it goes and if I see any
changes in my blood work but overall now
I am feeling great I'm taking the same
medications we weren't able to reverse
it all the way to a hundred percent the
kidney function but we are at a stable
place and I hope with changing my diet
we are able to regain some of that
kidney function because the kidneys are
so miraculous they are so amazing in the
way that they function and the fact that
they can reverse itself and regain
function amazes me so hopefully with the
right nutrition and the right proper
care I'm able to regain even more
function of what I already have so if
you guys have any questions because I
didn't dive too deep deep because I
didn't want to make this video extremely
long
um let me know in the comments down
below like I mentioned in my previous
video I am going to be doing a q a video
where I'm going to be sharing and
answering all your questions so please
let me know down in the comment section
below thank you guys so much for
watching have a great and a wonderful
and a blessed beautiful day bye everyone
sorry for that little notification bye
everyone
[Music]
what if the world had more of your smile
what if the wind could spread your love
what if your sweetness could
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