Why High Masking Autistics Experience Burnout
Summary
TLDRThis video script delves into the experience of 'autistic burnout,' a lesser-known aspect of autism characterized by chronic exhaustion, loss of function, and reduced tolerance to stimuli. The speaker, Chris, shares personal struggles with this condition, explaining its symptoms, the challenges it presents in daily life, and the importance of understanding and managing it. The script offers insights into the sensory overload, emotional turmoil, and the need for self-advocacy and support from loved ones during such periods.
Takeaways
- π₯ Autistic burnout is characterized by pervasive, long-term exhaustion, typically lasting 3 months or longer, loss of function, and reduced tolerance to stimuli.
- π« Chronic exhaustion in autistic burnout feels like an overwhelming, constant depletion of energy, even after extended periods of sleep.
- π Loss of skills during burnout includes difficulties in thinking, remembering, creating, executing plans, and performing daily activities, leading to frustration and anxiety.
- π¨ Reduced tolerance to stimulus results in increased sensitivity to environmental stimuli, causing more frequent meltdowns and shutdowns.
- π During burnout, autistic individuals may seek isolation and avoid social engagements and environments that cause overstimulation.
- π€― Autistic burnout can lead to physical pain, including headaches and sensitivity to sounds, textures, and lights.
- π The experience of burnout can be dangerous, leading to feelings of being trapped within one's own body and mind, and potentially resulting in suicidal thoughts.
- π§ The pain and challenges of burnout can disrupt executive functioning, making it difficult for autistic individuals to self-advocate and care for themselves.
- πΏ Spending time in nature and embracing soothing activities can aid in recovery from burnout, as natural sounds and environments are often more tolerable.
- π Wearing comfortable clothes and maintaining basic routines, like getting dressed and brushing teeth, can provide structure and support during burnout.
- π€ Support from understanding friends, family, or loved ones is crucial, as they can provide silent support and practical help without adding to sensory overload.
Q & A
What is the main topic of the video script?
-The main topic of the video script is 'autistic burnout', discussing its symptoms, experiences, and ways to cope with it.
How does the speaker describe the feeling of having an autistic burnout?
-The speaker describes the feeling of autistic burnout as pervasive exhaustion, with the brain feeling like it's on fire, experiencing electric shocks, and overall pain. It's also characterized by heightened sensitivity to minor sounds and constant feelings of being overwhelmed.
What is the definition of autistic burnout according to Professor Dora Raymaker?
-According to Professor Dora Raymaker, autistic burnout is a syndrome resulting from chronic life stress and a mismatch of expectations and abilities without adequate supports, characterized by long-term exhaustion, loss of function, and reduced tolerance to stimuli.
What are some of the symptoms of chronic exhaustion as described in the script?
-Chronic exhaustion in the context of autistic burnout includes mental, physical, and emotional exhaustion, feeling depleted of energy, and struggling with overextension in daily life.
How does the speaker describe the impact of burnout on their ability to perform daily tasks?
-The speaker describes a significant loss of skills during burnout, making it difficult to perform activities of daily living, execute plans, use vocational skills, socialize, regulate emotions, and live independently.
What does the script suggest about the connection between autistic burnout and sensory sensitivity?
-The script suggests that during autistic burnout, individuals have a massively reduced tolerance to stimuli, leading to increased sensitivity to environmental stimuli, more frequent over-stimulation, and a higher likelihood of meltdowns and shutdowns.
What are some of the dangers associated with autistic burnout as mentioned in the script?
-The dangers of autistic burnout include isolation, potential suicidal thoughts, neglect of self-care, and the possibility of losing a job or having to frequently call in sick due to the inability to function properly.
How does the speaker differentiate autistic burnout from non-autistic depression or burnout?
-The speaker differentiates autistic burnout by emphasizing its unique symptoms such as the need to isolate, reduced sensory stimuli tolerance, and the physical pain associated with sensory over-stimulation, which are not typically addressed in traditional suggestions for dealing with non-autistic depression or burnout.
What advice does the speaker give for someone experiencing autistic burnout?
-The speaker advises to eat what one wants, find quiet and soothing places, wear comfortable clothes, embrace activities that feel soothing, and maintain basic routines like getting up, getting dressed, and brushing teeth even when they feel overwhelming.
What is the speaker's perspective on the importance of understanding autistic burnout?
-The speaker believes that understanding autistic burnout is crucial for both autistic individuals and those who are close to them, as it helps in providing the necessary support and accommodations to manage and recover from burnout.
How does the speaker address the issue of rumination during autistic burnout?
-The speaker addresses rumination as an intensified feature during burnout, where negative thoughts and past experiences replay in the mind, potentially leading to feelings of anger, fear, and pushing people away.
Outlines
π₯ Autistic Burnout: The Struggle and Experience
The speaker, Chris, introduces the topic of 'autistic burnout'βa state of chronic exhaustion and heightened sensitivity to stimuli that can last for months. It is characterized by pervasive exhaustion, loss of function, and reduced tolerance to stimuli. Chris shares personal experiences of feeling overwhelmed, constantly tired, and experiencing physical discomfort from minor sounds or changes in temperature. Autistic burnout is described as a result of chronic life stress and a mismatch of expectations and abilities without adequate support. The speaker emphasizes the importance of understanding this phenomenon, which is often misunderstood and understudied.
π€― The Impact of Autistic Burnout on Daily Life
This paragraph delves into the specific challenges faced during an episode of autistic burnout, including cognitive difficulties, frustration with reduced capabilities, and heightened sensitivity to environmental stimuli. Chris discusses the loss of skills in various areas, such as cognitive tasks, socializing, and self-care, which can lead to feelings of fear and anxiety about the future. The reduced tolerance to stimuli is particularly distressing, causing physical pain, headaches, and the need for constant self-soothing behaviors. The speaker also touches on the paradox of needing support while also desiring solitude due to sensory sensitivities.
π The Dark Side of Autistic Burnout: Dangers and Depression
Chris highlights the darker aspects of autistic burnout, such as the increased risk of isolation, depression, and even suicidal thoughts. The speaker explains how burnout can exacerbate existing conditions like ADHD and how it can lead to a disconnection from the joy found in special interests. Traditional advice for dealing with depression, such as socializing and exercising, is noted as potentially ineffective or even harmful during burnout. The paragraph also addresses the difficulty in self-advocacy during this time and the heightened sensitivity to human behavior, which can further contribute to feelings of alienation and rumination.
π± Coping Strategies and Support for Autistic Burnout
The final paragraph offers advice on how to cope with and support individuals experiencing autistic burnout. Chris suggests self-observation to identify triggers and early signs of burnout, emphasizing the importance of self-care, including eating preferred foods, seeking quiet and comfortable environments, and wearing soothing clothing. The speaker encourages patience and kindness towards oneself during this challenging time and acknowledges that recovery is possible. The paragraph concludes with a message of hope and community support, inviting viewers to share their experiences and offering thanks for the viewership and support.
Mindmap
Keywords
π‘Autistic Burnout
π‘Sensory Overload
π‘Mental and Physical Exhaustion
π‘Loss of Skills
π‘Stimming
π‘Masking
π‘Isolation
π‘Rumination
π‘Depression
π‘Self-Advocacy
π‘Recovery
Highlights
Autistic burnout is described as a syndrome resulting from chronic life stress and a mismatch of expectations and abilities without adequate supports.
It is characterized by pervasive long-term exhaustion typically 3 months or longer, loss of function, and reduced tolerance to stimulus.
The speaker shares personal experiences of chronic exhaustion, comparing it to slogging through a heavy fog underwater with a weight.
During burnout, even taking medication feels physically heavier, and everyday tasks like brushing teeth become a struggle.
Loss of skills during burnout includes difficulty with cognitive challenges, holding conversations, and performing daily activities.
The anxiety around the loss of skills can cause further frustration and exhaustion.
Reduced tolerance to stimulus during burnout leads to increased sensitivity to environmental stimuli, causing physical pain and discomfort.
The speaker emphasizes the difficulty of sensory input management during burnout, often leading to zoning out or stimming behaviors.
Burnout can result in a loss of independence and executive functioning, making even basic self-care challenging.
The inability to self-advocate during burnout due to the inability to think clearly and communicate needs effectively.
Autistic burnout can lead to feelings of isolation, disconnection from others, and a heightened sense of the world's challenges for autistic individuals.
The dangers of autistic burnout include increased risk of depression, anxiety, and potentially suicidal thoughts.
Traditional suggestions for combating depression may not be effective for autistic burnout due to the unique challenges it presents.
The speaker recommends becoming an expert observer of oneself to identify triggers and signs of impending burnout.
During burnout, the speaker suggests eating comforting foods, finding quiet spaces, and embracing soothing activities.
Maintaining basic routines, even when overwhelming, can provide structure and help during burnout.
The importance of patience and self-compassion during burnout is emphasized, acknowledging the struggle and the potential for recovery.
The speaker plans to create more content on the subject and invites viewers to share their experiences and what helped them during burnout.
A reminder that burnout is not permanent and a call for solidarity among those experiencing it, offering support and understanding.
Transcripts
today we're talking burnout
autistic
burnout do you ever feel like your brain
is on fire fire and electric shocks and
just all around pain if feels like you
need to dump a bucket of cold water on
it or stick your face in a freezer maybe
your body jolts for minor sounds the
scrape of a chair leg on the floor a car
horn in the distance perhaps you feel
nauseous from being slightly overheated
or someone asking a simple question that
might generally be fine do you feel
tired all the time like literally all of
the time and what about the constant
feeling of being overwhelmed every
single day drop a fork on the floor and
you just might lose it this is how I've
been experiencing the world every day
for the last 2 and 1/2 years but why
what the heck is going on with my brain
well I'm in the middle of autistic
burnout and this is one of the least
studied and most misunder Ood parts of
autism based on my own experiences and
research I've done on the topic so why
does autistic burnout happen how is it
different from other types of burnout
how can someone get through it today
I'll be answering all of these questions
I'm going to tell you all about autistic
burnout what it looks like my experience
with it on and off for more than 5 years
why everyone should work to understand
it and at the end what you can do to
help if you're on your own as an
autistic or if you're a friend family
member or loved one of someone autistic
who is experiencing burnout but first
for my returning friends thanks for
being here this is a tough video for me
to make so I really appreciate your
support and for anyone new to this
channel my name is Chris and I was
diagnosed as autistic in addition to
having ADHD at the age of 41 and after
years of burnout that I didn't
understand until only recently after I
got my autism diagnosis so let's
understand what autistic burnout is in a
study done in 2021 Professor Dora
raymaker defies autistic burnout as a
syndrome conceptualized as resulting
from chronic life stress and a mismatch
of expectations and abilities without
adequate supports it is characterized by
pervasive long-term exhaustion typically
3 months or longer loss of function and
reduced tolerance to stimulus o let's
break that definition of autistic
burnout down and I'll also share some
examples from my own experiences chronic
exhaustion according to Professor
raymaker for autistics and burnout
chronic exhaustion includes mental
physical and emotional exhaustion
feeling exhausted a complete depletion
of energy from overextending ourselves
in daily life for me this is the most
pervasive symptom and it's always there
during burnout but what's really crazy
it's not even the hardest of the
symptoms I'll get to that in a minute
but I'm just so freaking tired pure
exhaustion all the time it feels a lot
like slogging through a heavy fog while
being deep deep deep underwater with an
8 th000 ton Cannonball strapped to your
back and one to your neck this is
probably why a lot of doctors might get
confused with depression symptoms but it
is so much more than that I already have
difficulties with falling asleep and
staying asleep but even when I sleep
more than 12 14 16 hours a day I am
still so exhausted and it doesn't go
away or get better even with sleep but
if I don't sleep
well it's a billion times wor worse so
this exhaustion connects to other parts
of autistic burnout but it's the most
pervasive part of burnout compared to
Everyday over stimulation the exhaustion
makes it hard to get out of burnout too
because I can't think or do anything
because it all feels so hard even taking
medication is hard during burnout the
pills feel physically heavier and the
reminder that I need to keep taking
medicine somehow just exhaust my brain
more I struggle with brushing my teeth
that's really interesting because I I
used to be strong enough to bench press
my toothbrush 4,000 times with one hand
now I can barely lift the brush up to my
mouth even breathing feels hard to do
which is partly related to anxiety and
also the constant worry that my body and
brain are so messed up but breathing is
exhausting it's like my body and brain
are working against me in everything
that I'm doing loss of skills this loss
of skills includes thinking remembering
creating executing plans performing
activities of daily living and
instrumental activities of daily living
using vocational skills in school or
work socializing regulating emotions and
living independently I struggle with all
of these during burnout first I can't
really spend longer than 15 minutes on
anything cognitively challenging some
days I can't even do a minute this is so
freaking frustrating because I remember
when this wasn't the norm when I could
tackle so many projects and just keep
going and going and going and going but
now it's been so long since I was able
to do that it really bothers me quite
honestly it pisses the crap out of me
it's difficult to hold a conversation
the back and forth and needing to think
and respond and put together full
sentences hurts my brain especially when
I get frustrated at burnout I can't keep
going with the conversation this also
makes it hard to work through the period
of burnout I'm not able to to do work
like usual which means that my brain
doesn't have as much to focus on and the
pain in my body feels heightened it's
bothersome not to be able to answer
questions like I usually would or to
feel like I know the answer but I just
can't put it into words right now that's
the loss of skills but it's not only
frustrating it's also scary what if I
can't do these things again in the
future the anxiety around these issues
also causes me problems I forget things
all the time like where my glasses are
and and putting the cap back on the
toothpaste I forget where I put my phone
then I get really stressed out about
that and then I need to rest because I
feel so darn exhausted I forget to take
my medicine sometimes but I didn't used
to have this issue so Debbie doesn't
even know how to remind me sometimes and
I forget to ask for the reminder one way
to look at autistic burnout and the loss
of skills is like this you remember how
witty you used to be conversation wasn't
challenging
how you could plan trips or oversee a
company your brain remembers that and
knows that you should be able to do all
that but now you have a difficult time
putting on socks or pouring water into a
glass without spilling everywhere that's
how hard the loss of skills during
autistic burnout can hit reduced
tolerance to stimulus when autistic
people are in Burnout we are more
sensitive than usual to environmental
stimuli which means we are less able to
tune this stimuli out we get get over
stimulated more often we have an
increase in meltdowns and shutdowns and
we try to avoid stimulation including
social engagements environments and
activities even those we might have
otherwise enjoyed this massively reduced
tolerance to stimuli is the hardest part
of burnout for me it causes so much
physical pain piercing headaches lots
and lots of pain in my head the back of
my head hurts to even touch just just a
little bit sounds and various textures
and lights make it much worse the sounds
are really really hard because they
really bother me so much during burnout
any noise even normal talking hurts most
things over a gentle talk or a slight
whisper is painful honestly even the
sound of my own voice hurts I itch a lot
mostly in my face but sometimes my back
my arms everything is painful and then
of course I can't think like I normally
would so when I can't handle all of the
sensory input I zone out and think about
things that aren't real but of course
nobody can see what's happening in my
head I'm also enduring a lot of pain and
doing tons of stemming basically I'm
stimming all the time running my hands
through my hair tapping pacing rocking
I'm not always like this and I know it
but during burnout my body is an
overdrive it's frantically attempting to
soothe itself and the stemming is almost
always happening or else I'm just laying
in bed because I'm completely exhausted
the result of the pain from this
reduction to tolerance is that I just
want to be left alone so often but I
also can't be alone because of all the
other things that happened in Burnout
like my loss of skills it means I lose a
lot of Independence in Burnout executive
functioning is so messed up I would
forget to eat and drink if I didn't have
other people around but I also don't
want anyone around at least 80% of the
time because of the noise and thinking
involved people are always telling
autistics to self- Advocate which is
true but during burnout I can't self-
Advocate because I can't even think what
I need friends or loved ones might say
hey tell me what you need and I'll do it
but I can't even process things because
I can't think that pisses me off and
then all I can say is I can't I don't
know and sometimes that confuses people
burnout is when I understand why autism
is classified as a disability it feels
completely debilitating I can't do
anything or function like I know I
should or like I know I can't and some
people might say oh but you're just
trying to do too much or you're not
understanding your limits as an autistic
person and honestly that's one of the
hardest parts I know I'm autistic and I
have ADHD but I also know how much I'm
capable of when my brain and body are
cooperating I can do a lot of stuff
during burnout I can't do it and that
realization that I'm trapped in this
body that doesn't feel like me is why
burnout can be dangerous the dangers of
autistic burnout so so when I'm having
all of these hard dark days all of the
time autism feels completely
overwhelming as an autistic person my
Baseline is uncomfortable in general and
mildly irritable and then it's kind of a
progression to worse but when I'm in
Burnout I've already started further
down that Spectrum with no patience and
I'm so much closer to meltdown
constantly like when you don't get a
good night's sleep and you're irritable
and then the pain back top side of head
like someone smashed me with something
heavy and sharp and it just freaking
hurts all over it's like that every day
of burnout some days worse than others
anxiety and brain pain there's the dull
but persistent worry that this will
never go away deep and painful levels of
anxiety I feel trapped in my own body
and brain and my brain is just active
enough to know your brain is just not
right and it's not getting better fast
enough my brain hurts so much during
burnout like someone injected me with a
combination of millions of burning and
freezing little bbb's in my brain all
with spikes so I get the hot and cold
sensation behind my eyes weighted and
heavy like heavy burning ice Spikes all
at the same time inside my brain this
pain and pain throughout my body happens
all the time in Burnout no one can see
it but I can feel it masking during
burnout I lose the ability to mask it
all takes so so much effort so when I'm
in Burnout I don't want to go out
anywhere unless it's a place I feel very
safe and comfortable but mostly I want
to avoid people because I don't feel
comfortable anywhere except out in
nature anything that takes work or
masking like eye contact I just can't do
it and I can't do small talk in the
grocery store or gas station I just
can't do it and when I know it's likely
it's better for me to stay home or in a
safe controlled environment connections
to depression things you found joy in
doing sometimes don't bring you Joy
during burnout it's not as easy as doing
your special interest if you were to see
a doctor without them knowing that you
are autistic it's likely that they would
say you were depressed and maybe you are
but the problem with this is that while
it looks similar to non-autistic
depression or burnout research shows
that it is completely different
traditional suggestions for helping with
depression like exercise eating well
sleeping more doing things you enjoy or
the worst suggestion for an autistic
spending more time out with friends and
family socializing these suggestions
just won't work for you if you're
autistic I'm not saying it's simpler for
non-autistics but those don't take into
account the pain the need to isolate the
reduction of sensory stimuli and
everything else so while it might help
to spend time with a couple of special
people this might not be because you
need to connect with people it might be
because those people understand what's
happening and can help you get the food
you need and just silently support you
if that's what you want and need at that
particular moment less patient with
people burnout is a time when I suddenly
feel less connections with other people
not necessarily the important people in
my life but Humanity in general so to be
honest I think this might happen because
people are a large reason why autistics
fall into burnout all the negative
aspects of humans and human nature and
Humanity come to light for me during
burnout people look uglier their voices
bother me more than usual you think
about how mean people are and how
predictable they seem in their
narrow-mindedness whereas when I'm not
in Burnout I might notice the good
qualities of people or little things
that make you smile or laugh randomly
not in Burnout people seem like the
enemy of Peace for my brain on the flip
side though the people helping me in
Burnout I can feel good about them I
know how much they are doing because I
know how much I can't do right now even
if I want to I also know how much
patience they are showing me and how
much they care to be here for all of it
but other humans disrupt our lives so
much as autistics and during burnout
it's a time when I have a hard time with
the world in general and the way it
seems to be built in a way to make life
harder than necessary for me and other
autistic people rumination
rumination rumination where you keep
replaying thoughts or events or
conversations over and over and over in
your brain is always an autistic feature
but in
Burnout the intensity seems magnified I
keep replaying things that happen to to
me weeks months even years ago and
generally they are not positive
experiences autistic therapists are just
starting to dive into the research on
trauma for autistics but from my own
personal experiences there's been a
chunk during these periods of burnout
these memories that I thought I had
already dealt with they all just seem to
come up and just put me into an even
greater hole it makes me feel angry or
scared so I push people away who might
have been involved even if they didn't
realize it so for example there were
times I've mentioned before when I felt
like I needed to go to an event or
meeting with Debbie she didn't really
force me to go but I felt responsible
for joining and this was all long before
I got my autism diagnosis during burnout
I might Replay that event over and over
and think of how miserable I was which
will make me more irritable with Debbie
my logical brain knows that's not fair
but when I'm in Burnout it's harder for
me to separate myself from that event
and to stop ruminating over
it the dangers of burnout include great
isolation from friends family and the
world in general for the autistic person
which can cause future harm but also
lead to really really dark thoughts
during burnout left untreated this part
of burnout is unbearable and can lead to
Suicidal Thoughts I'm not sure how much
of it is connected to depression but
there's a feeling of just wanting to be
free of the feeling of being trapped
within your own body there's also a huge
likelihood that autistic people in
Burnout will not take care of themselves
especially with food water hygiene
exercise routines or things like that
that connect to Executive functioning
it's highly likely these issues will
impact professional work so an autistic
might lose their job or have to keep
calling in sick because they just can't
do it as someone who has both worked in
different jobs and also employed a
neurode Divergent team I understand both
sides it's not easy but the person who
it is the hardest for is the autistic
person who is teetering on the edge of
survival every horrible day of burnout
the really tricky part is that during
burnout there will be some stages where
you can still function you might venture
out and then it deteriorates quickly and
it sends you into this horrible Tail
Spin so how can you help how to help so
what can you do about this well before
burnout if you're autistic you have to
become an expert Observer of yourself
you need to know your triggers you need
to practice noticing before meltdowns
what you struggle with what sensory
stimuli is the hardest work on this
before burnout happen happens but also
notice when you suddenly seem to
struggle more with everything because
this could be the precursor to burnout
during burnout eat what you want eat
what you want to eat like for me nachos
stay away from people and stimulus
especially loud noises and difficult
interactions find quiet places I think
nature is the absolute best if you can
get there sounds of natures are soothing
like water flowing birds chirping wind
through the
trees and the more often you can spend a
nature the faster you will recover
another thing is wear comfortable
clothes wear clothes that won't bother
your brain or require much thought to
pick out it's like having your very own
pajama party all day every day Embrace
whatever feels soothing if it relaxes
you or makes you feel better do it it's
really important to be patient with
yourself understand that if you're
autistic it's highly likely you have or
will experience burnout but if you
already know that when it happens it
might be easier to be kind and patient
with yourself you can practice telling
yourself that you're just struggling in
your brain and then try the things I
already mentioned basically allow your
autistic brain to dictate what it needs
while also keeping routines wherever
possible things like getting up getting
dressed and brushing your teeth keep
these basic routines even when they feel
overwhelming because a bit of structure
and reminders to yourself can help you
get through this tough time because
that's the truth you can and will get
through
it so I hope this helped you better
understand autistic burnout what
questions do you still have drop them in
the comments I plan to make more content
about this subject in the future also if
you've experienced autistic burnout or
know someone who has share your thoughts
comments and observations below I'd
especially love to hear what helped you
most during those hard times for anyone
here is going through burnout right now
just know that you're not alone and you
can get through it the feelings aren't
permanent but when you are in Burnout it
really sucks I know but we'll get
through it together thanks for watching
want to give a quick shout out to user
nnn
NCCC for recommending kombucha and
sauerkraut I will drink the kombucha and
I will eat the sauerkraut but what I
will not do is drink sauerkraut flavored
kombucha
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