7 Signs of Undiagnosed Autism in Adults

Autism From The Inside
11 Apr 202415:24

Summary

TLDRThis video script discusses the often-overlooked signs of undiagnosed autism in adults, challenging common stereotypes and emphasizing the importance of recognizing diverse manifestations. The speaker, Paul Mikf, outlines seven key areas to observe, including social interaction difficulties, a need for structure, sensory sensitivities, spiky skill sets, emotional regulation challenges, unusual mental associations, and a general sense of being 'different'. The script aims to raise awareness and encourage understanding of autism's broad spectrum, highlighting the need for support and community among those who identify with these experiences.

Takeaways

  • 🧩 Undiagnosed autism in adults is more common than people realize, with increased diagnosis rates in children indicating a growing awareness.
  • 🔍 Overreliance on stereotypes can hinder the recognition of autism in adults, as autism manifests in various forms.
  • 🤝 Social interaction difficulties, such as understanding peers and navigating social cues, can be a sign of undiagnosed autism.
  • 🔄 A need for structure and routine might indicate executive function challenges, which are common in undiagnosed autism.
  • 👂 Sensory sensitivities and insensitivities, including unusual responses to light, sound, and pain, can point to autism.
  • 📊 A 'spiky' skill set, where individuals excel in some areas and struggle in others, is a characteristic of autism.
  • 😡 Emotional regulation issues, such as meltdowns, shutdowns, and withdrawal, are common signs of undiagnosed autism in adults.
  • 🔗 Unusual associations and mental jumps in conversation can indicate differences in cognitive processing associated with autism.
  • 🌟 Being perceived as 'different' or the 'odd one out' in various social contexts can be a sign of undiagnosed autism.
  • 🤔 The video emphasizes the importance of understanding and meeting autistic individuals to gain insight into the spectrum of autism.

Q & A

  • What is the main topic of the video?

    -The main topic of the video is the seven signs of undiagnosed autism in adults and how to recognize them.

  • Why is it important to recognize autism in adults?

    -Recognizing autism in adults is important because it helps individuals understand their unique challenges and behaviors, and it can lead to better support and accommodations.

  • What is one common misconception about autism mentioned in the video?

    -A common misconception mentioned is the overreliance on stereotypes, which can blind us to other signs of autism that might be obvious in hindsight.

  • What does the video suggest about the prevalence of autism in children today?

    -The video suggests that autism is more common than most people think, with statistically one or more autistic children in every classroom.

  • What is the first sign of undiagnosed autism discussed in the video?

    -The first sign discussed is difficulties in social interactions, such as finding it hard to understand peers and feeling drained by social processes.

  • Why might an adult with undiagnosed autism prefer to spend time alone?

    -An adult with undiagnosed autism might prefer to spend time alone because social interactions can be overly complex and exhausting to process.

  • What does the video mean by 'need for structure' in the context of autism?

    -The 'need for structure' refers to the preference for routines and predictability, which can help manage the challenges of executive function and reduce the stress of social unpredictability.

  • How does sensory sensitivity manifest in adults with undiagnosed autism?

    -Sensory sensitivity can manifest in various ways, including unusual reactions to light, sound, taste, texture, smell, pain tolerance, temperature regulation, and coordination.

  • What is a 'spiky skill set' as described in the video?

    -A 'spiky skill set' refers to the presence of significant strengths in certain areas while having notable difficulties in others, compared to the general population.

  • What is the significance of emotional regulation challenges like meltdowns, shutdowns, and withdrawals in the context of autism?

    -Emotional regulation challenges are significant as they are mechanisms used by autistic individuals to cope with overwhelming situations, and they can greatly affect relationships and daily functioning.

  • What does the video suggest as the simplest yet most powerful sign of undiagnosed autism?

    -The simplest yet most powerful sign is the overall sense that a person is 'a bit different', which can manifest in various ways and make them stand out as the odd one out.

  • How can being part of an autistic community help those who are undiagnosed or questioning their autism?

    -Being part of an autistic community can provide a sense of belonging and understanding, as well as the opportunity to see the signs discussed in the video reflected in real life, which can be validating and enlightening.

  • What is the potential overlap between signs of autism and ADHD as mentioned in the video?

    -The video mentions that signs related to structure and sensory sensitivity have a high overlap with ADHD, suggesting that individuals resonating strongly with these signs may want to consider the possibility of an ADHD diagnosis.

  • What advice does the video give for those who resonate with the signs of autism discussed?

    -The video advises such individuals to meet and interact with other autistic people, either through communities or in-person meetups, to gain a deeper understanding and potentially find resonance with their experiences.

Outlines

00:00

🧩 Signs of Undiagnosed Autism in Adults

The script discusses the prevalence of undiagnosed autism in adults and the importance of recognizing its signs. It emphasizes the commonality of autism and challenges stereotypes. The video aims to outline seven key areas to look for signs of autism in adults, including social interaction difficulties, need for structure, sensory sensitivities, spiky skill sets, meltdowns and shutdowns, unusual associations, and a general sense of being different. The speaker, Paul Mikf, introduces himself and his channel, 'Autism from the Inside,' which focuses on sharing the human side of autism.

05:02

🔄 Social Interaction and Structure in Autism

This paragraph delves into the first two signs of undiagnosed autism: social interaction difficulties and the need for structure and routine. Social interactions are described as draining for those with autism, often leading to avoidance or appearing awkward. The need for structure is portrayed as both a rigid adherence to routines and, paradoxically, as disorganization when routines are disrupted. These behaviors are framed as coping mechanisms for executive function challenges, highlighting the contrast between the two extremes as indicators of internal struggles.

10:08

🌡 Sensory Sensitivity and Spiky Skill Sets

The third and fourth signs of undiagnosed autism in adults are sensory sensitivity and insensitivity, and having a spiky skill set. Sensory issues extend beyond the typical light and sound to include pain tolerance and coordination, which can manifest as clumsiness. A spiky skill set refers to the presence of exceptional abilities in certain areas contrasted with significant struggles in others, compared to the general population. The paragraph provides personal anecdotes to illustrate these concepts, such as excelling at table tennis despite being a decent but not extraordinary tennis player.

😡 Emotional Regulation Challenges

The fifth sign discussed is emotional regulation, characterized by meltdowns, shutdowns, and withdrawals. These are described as mechanisms to cope with overwhelming situations. The paragraph explains how these behaviors can be binary, with individuals appearing engaged and functional one moment, then suddenly experiencing a breakdown or retreating from the world. It also touches on the impact of these emotional regulation challenges on relationships and the importance of recognizing them as part of the autistic experience.

🤔 Unusual Associations and Being Different

The sixth and seventh signs of undiagnosed autism are unusual associations and mental jumps, and simply being 'a bit different.' Unusual associations refer to the brain making connections that others might not, which can lead to miscommunication or confusion. Being different is described as a general sense of standing out, which can be positive, negative, or neutral. The paragraph suggests that if someone often feels like the 'odd one out,' it could be indicative of autism. It concludes with the speaker's personal experience of feeling at home within the autistic community, where everyone is different in their own ways.

Mindmap

Keywords

💡Autism

Autism is a developmental disorder characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. In the video, it is the central theme, with the speaker discussing signs of undiagnosed autism in adults, emphasizing its prevalence and the importance of recognizing its various manifestations.

💡Stereotypes

Stereotypes refer to widely held but fixed and oversimplified ideas about a group of people. In the context of the video, the speaker mentions the overreliance on stereotypes as a barrier to recognizing autism in adults, suggesting that autism is diverse and not confined to a single set of characteristics.

💡Social Interaction

Social interaction involves the process of communicating, cooperating, and participating in society. The video describes difficulties in social interaction as a sign of undiagnosed autism, where individuals may find it draining, awkward, or challenging to understand and conform to social cues.

💡Structure and Routine

Structure and routine refer to the organization and predictability in one's life. The script discusses the need for structure as a coping mechanism for individuals with autism, who may find comfort in routines and struggle with unexpected changes or disruptions.

💡Sensory Sensitivity

Sensory sensitivity is an increased responsiveness to sensory stimuli such as light, sound, and touch. The video explains how sensory sensitivity, including both heightened and diminished sensitivity, can be a sign of undiagnosed autism, affecting how individuals perceive and interact with their environment.

💡Spiky Skill Set

A spiky skill set implies a mix of exceptional abilities in some areas and significant struggles in others. The speaker uses this term to describe the uneven distribution of skills often seen in autism, where individuals may excel in certain tasks while finding others extremely challenging.

💡Emotional Regulation

Emotional regulation is the ability to manage and control one's emotions. The video outlines emotional regulation difficulties, such as meltdowns, shutdowns, and withdrawal, as indicators of autism, where individuals may have extreme reactions to stress or sensory overload.

💡Unusual Associations

Unusual associations refer to the tendency to make atypical or unexpected connections between ideas or concepts. The speaker discusses this as a sign of autism, where individuals may have unique thought patterns that can affect communication and understanding.

💡Difference

Difference, in the context of the video, denotes the unique or distinct qualities that set someone apart from others. The speaker concludes by emphasizing that a general sense of being 'a bit different' can be a powerful, albeit elusive, sign of undiagnosed autism.

💡Masking and Unmasking

Masking and unmasking refer to the behaviors of concealing or revealing one's true autistic traits. While not explicitly defined in the script, the video mentions a playlist on this topic, suggesting it as an important aspect of understanding how individuals with autism may present themselves to the world.

Highlights

Undiagnosed autism in adults is more common than perceived, with increasing diagnosis rates especially in children.

Autism manifests in various forms, and relying on stereotypes can hinder recognizing it in adults.

Seven key areas to look for signs of autism in adults are discussed: social interaction, need for structure, sensory sensitivities, spiky skill sets, emotional regulation, unusual associations, and being 'a bit different'.

Social interaction difficulties, such as draining experiences and avoidance, can indicate autism.

A need for structure and routine can be a sign of autism, with both inflexible and chaotic behaviors being expressions of executive function challenges.

Sensory sensitivity and insensitivity, including atypical responses to light, sound, and physical sensations, can be indicative of autism.

Unusual physical coordination and clumsiness can be linked to sensory sensitivity, a trait of autism.

A spiky skill set, where individuals excel in some areas and struggle in others, is common in autism.

Emotional regulation challenges, such as meltdowns, shutdowns, and withdrawals, are typical responses to overwhelming situations for autistic individuals.

Unusual associations and mental jumps in conversation can make communication difficult and are signs of autism.

Being 'a bit different' and consistently standing out as the odd one can be a powerful, albeit subtle, sign of autism.

The experience of being with a community of autistic individuals normalizes the feeling of being different.

Joining an autistic community, such as through Patreon, can provide support and a sense of belonging.

The video offers a playlist on masking and unmasking for further understanding of autism behaviors.

An online social group and in-person meetups in Melbourne are available for those interested in connecting with the autistic community.

The video concludes with an invitation to engage with the content and the community for a deeper understanding of autism.

Transcripts

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seven signs of undiagnosed autism in

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adults undiagnosed autism in adults is a

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lot more common than most people think

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if you look at diagnosis rates of

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children these days you'll see that

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statistically there's one or more

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autistic children in every classroom and

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no it's not an epidemic we've been here

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all along you just need to know what to

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look for so in this video we'll go

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through some of the things you can look

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out for to spot autism in adults who if

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they were children today would be

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getting picked up and diagnosed by the

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system

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hi everyone Paul mikf here from autism

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from the inside I make weekly videos

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Sharing The Human Side of autism so make

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sure you hit subscribe to get the latest

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content one of the things that often

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prevents us from noticing autism in

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adults is an overreliance on our own

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stereotypes so we know that autism comes

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in all shapes and sizes which means

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ironically if you're looking for one

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thing or even a small number of

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different stereotypes that will likely

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blind you to some other signs that might

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be obvious in hindsight so today I'll go

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through seven signs or perhaps more

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accurately seven areas of where to look

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for common signs of autism we'll go

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through social interaction a need for

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structure sensory sensitivities spiky

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skill sets meltdowns shutdowns and

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withdrawals unusual associations and

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finally in some ways the simplest yet

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most powerful one that I'll save until

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the

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end so let's jump straight into it the

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first area the first sign of undiagnosed

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autism can be found in social

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interactions now in general the

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important one thing with all of these is

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a difference from mainstream population

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but there are several differences in

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this area that tend to be expressed in a

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very similar way if I find it difficult

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to intuitively understand my peers

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difficult to conform difficult to know

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what to do socially that often ends up

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in the whole social interaction process

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being very draining I'm thinking about

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it too much I'm trying too hard I'm

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trying to manually process all of these

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thousands of tiny little social cues I'm

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often not doing a fantastic job and it's

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not always a fun process so that may

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lead me to avoid social interactions it

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may lead me to like to spend a lot of

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time by myself it may lead me to appear

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to be awkward in social situations or it

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may lead me to just ditch the whole

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trying to be like everyone else all

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together and come across as quite

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eccentric all of these are signs

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pointing to a similar thing namely that

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it's difficult to fit in and doing what

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everyone else is doing in the same way

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that everyone else is doing it is a

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challenge number two is a need for

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structure and routine and ironically

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whether you see someone who is very

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structured very routine oriented

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seemingly quite inflexible or the

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opposite coming across as chaotic and

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disorganized they are often two sides of

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the same coin one of the reasons I need

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stability and routine and security is

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because I am so flexible if I don't have

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a script prepared socially I could say

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literally anything and it turns out a

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lot of those options are suboptimal so

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to help me cut down on that executive

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function I make a decision in advance

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this is what I'm going to say this is

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how I am commonly going to answer the

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same question if I can predict it in

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advance a need for structure will often

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come across as a person who likes to do

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things their own way and who really

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resists conforming to the status quo

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especially if there doesn't seem to be a

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good reason as to why I have to do

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things the way other people are doing

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them and all of these outward signs are

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effectively pointing towards internal

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executive function challenges what

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you're seeing are my coping mechanisms

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that allow me to work and get stuff done

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and if you take them away if you

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interrupt me or disrupt my routine or

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throw in too many unknowns then I won't

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be able to concentrate I won't be able

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to prioritize I won't be able to

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organize my almost infinitely chaotic

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brain and suddenly I'll flip from being

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super organized to Super disorganized so

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that's why both those extremes are

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essentially two sides of the same

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coin the third sign of undiagnosed

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autism in adults is sensory sensitivity

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and equally importantly sensory

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insensitivity now when people say this

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most of the time people are thinking of

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light and sound and funny tastes and

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textures and smells and things like that

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but sensory is actually a lot more than

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that it includes things like pain

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tolerance temperature regulation

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coordination that one confused me for a

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while back when I was first researching

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autism how is being clumsy an autistic

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trait that a lot of children have and

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the answer is it's a sensory sensitivity

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if I can't feel where my limbs are in

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space I'm more likely to accidentally

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bump into things and knock things over

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if I really like deep pressure I'm

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likely to hug people too hard cuz I

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don't realize that they don't like it so

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the question with all of these is how

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far do you fall outside the norm some

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people are a little bit sensitive to

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smell some people have a relatively High

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pain tolerance but if you start to

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notice that actually your experience is

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significantly different to the other

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people around you then that's a pretty

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strong sign of undiagnosed autism

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actually very quick disclaimer some of

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these signs especially the last two

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around structure and sensory sensitivity

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have a high overlap with ADHD so if you

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resonate very strongly with those two

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and not so much with the others then uh

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maybe something like ADHD might be a

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better fit but that's a much more

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complicated question so I won't go into

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that too much today

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okay so number four the fourth sign of

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undiagnosed autism in adults is having a

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spiky skill set okay so what do I mean

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by that well if you think about my

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personal skill set there are some things

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that I can do some things that I can't

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do some things that I've learned some

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things that I haven't learned but in

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terms of intrinsic ability my ability to

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learn certain things and perform certain

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tasks there are going to be some things

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that I find find generally easier for me

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and some things that I find just

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particularly difficult that others

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others are fine with but that I find

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them really difficult some people are

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good with numbers for example and other

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people haven't thought about math since

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high school well an extremely common

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characteristic of autism in children and

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in adults is having a very spiky skill

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set meaning there are some things I am

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extremely good at and by extremely I

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mean compared to the rest of the

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population and some things that I really

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really struggle with again compared to

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the rest of the population now this does

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not mean Sant level skills I'll give you

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an example when I was younger I used to

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play a lot of competition tennis and it

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was pretty common for there to be a

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table tennis table inside in the

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clubhouse so that you could play while

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you were waiting to go out on the court

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I was reasonably good at tennis I could

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win things in my local area there was no

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chance I would ever play at a state

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level or a national level or an

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international level reasonably good but

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nothing spectacular and so you would

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think that skill of being able to play

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tennis would somehow translate in being

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able to learn table tennis right I mean

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roughly the same hit the ball with the

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bat kind of skills but for some reason I

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was way better than anyone else when it

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came to table tennis in those kind of

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tennis Clubhouse situations so much so

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that I ended up playing with my left

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hand instead of my right hand just to

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make it a little bit more fun and

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interesting for me now if I actually

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played against someone who knows how to

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play table tennis then they would put me

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in my place very quickly but it's an

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example of something where I am

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significantly better than average

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naturally in one area now the opposite

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is also true what about something like

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remembering dates or birthdays or

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cooking dinner or reading a map a

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typical autistic profile will likely

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have some pretty significant gaps in

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that skill set things that just about

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every other adult can do fairly easily

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that for some reason is difficult almost

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impossible for us a personal example

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came up for me recently a lot of

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restaurants don't have paper menus

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anymore they require you to scan a QR

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code and then figure out what you want

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online and then order it online through

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their app and that's a barrier for me I

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would sooner stay home and not eat than

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have to do that whereas for other people

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they're like this is fantastic I just

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get food whenever I want it I don't even

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have to talk to

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anyone okay moving on number five the

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fifth sign of undiagnosed autism in

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adults is emotional regulation things

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such as meltdowns shutdowns and

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withdrawal and the reason I'm putting

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all of them in the same category is

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because they're kind of all mechanisms

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to deal with the same thing what do I do

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when the world is too much and I just

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can't take it anymore does it hit me

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unexpectedly and I break down and have a

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meltdown does my brain switch off and I

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go into survival mode no information in

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no information out and I just shut down

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for a little while or have I learned to

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withdraw away from the world away from

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relationships and block out the world

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that way until I've got enough energy to

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come back again autistic shutdown and

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withdrawal is a huge challenge in many

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relationships and it's one of the top

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areas that my clients won't help with in

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my relationship coaching work so if you

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notice behavior that looks a little bit

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binary in terms of I'm engaging and

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everything seems fine and I'm fine and

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you're fine and we're doing really well

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and then something happens and suddenly

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I have melted down or shut down or I've

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withdrawn and you can't get through to

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me for some reason they are relatively

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extreme forms of emotional regulation

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that are quite common in the autistic

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population a slightly less extreme form

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of this is a similar Behavior but over a

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shorter time scale so it might look like

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don't talk to me at all for the next 2

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hours I need to decompress or it might

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look like a habit that I used to have as

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a teenager of having a power naap in the

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middle of parties there's music and

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dancing and people running around making

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lots of noise and I would just sit on

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the floor close my eyes block out the

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world for 20 minutes and reset my brain

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fantastic okay number six the sixth sign

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of undiagnosed autism in adults is very

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unusual associations and mental jumps so

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I say banana and you say space station

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right clearly it's obvious what went on

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in your brain just now to the outside

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Observer these seem pretty random it

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might be an esoteric quote or picking up

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on a little side meaning or taking

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something literally and then running

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with that instead of picking up on the

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main meaning of the sentence but if your

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brain makes uncommon associations and

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again uncommon is measured based on

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comparing that to other people so it's

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being measured apparently

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cross-culturally that if you ask people

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to pick a random color blue is by far

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the most common there are other examples

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like think of a vegetable most people

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might think carrot or potato I remember

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I asked this of a friend of mine in high

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school and she said rubab and I thought

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there's something special here how many

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people when asked to pick a random

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vegetable would pick rubab that is the

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definition of unusual compared to your

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peers and the result of these natural

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unusual associations well there are lots

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of positive ones in terms of creativity

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and things like that but it does make

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communication much more difficult cuz if

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a link is very clear in my mind but it

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just does not occur at all in my

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listener's mind that's a problem and

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vice versa if I'm listening to someone

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and they think an implication is obvious

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and my brain just hasn't gone there it's

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gone somewhere completely different then

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that can often make communication a bit

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more

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challenging okay finally the last one

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the seventh sign of undiagnosed autism

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this one is probably the simplest and

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the most powerful and the hardest to

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really pinpoint exactly what we mean the

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person is just a bit different what does

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that mean exactly what does that mean

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they're just a bit different you can't

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quite put your finger on it it might be

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a good different it might be a bad

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different it might just be a neutral

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kind of quirky different there is

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something that makes this person stand

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out as the odd one out for some reason

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and our brains are very very good at

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picking the odd one out I did a video a

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little while back asking the question

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can you spot autism in under a second

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you can watch the full video here if you

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want but ultimately the answer is yes

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you can spot difference our brains can

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pick out patterns and find the odd one

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out in a split second does being the odd

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one out mean you're autistic no not

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necessarily however if you find yourself

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commonly being the odd one out in a lot

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of different circumstances then that is

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a sign that you might be autistic if

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that is you and you resonate strongly

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with that it's actually an extremely

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surreal experience to hang around with

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the autistic Community especially for

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the first time and be surrounded by so

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many other people who are also a little

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bit different in lots of different ways

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that are different to the ways that

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you're different how many times can I

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differently use different in the same

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different sentence differently maybe I

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should have an eighth category amuses

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themselves El in ways that are unlikely

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to be amusing to other people so this is

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one of the reasons that I say to

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understand autism you should go out and

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meet autistic people and if you are

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questioning yourself whether you

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yourself might be an undiagnosed

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autistic person then seeing what I've

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talked about in this video in real life

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and experiencing what that actually

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looks like in other people can be a

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really powerful experience because when

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everyone is the odd one out I ionically

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no one is the odd one out I experienced

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this properly for the first time running

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a camp for autistic teenagers several

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years ago there was a lot of weird stuff

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going on and if you thought you know

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what I'm going to stand out for the

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crowd I'm going to wear like a pink

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onesie and see what people think well

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you wouldn't stand out from the crowd

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you might be the only one in a pink

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onesie but there are so many other

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people doing other weird different

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things in other directions that

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ironically your particular clothing

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choice kind of Blends into the

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background against that so anyway I

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should probably leave it there for today

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I have some other videos on this topic

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as well if you're interested I'd

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probably recommend checking out the

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playlist on masking and unmasking and if

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you're looking to join an autistic

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Community you might like to consider

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joining us on patreon you can join the

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community and support this channel

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financially as well for as little as a

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dollar a week so thanks so much for

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everyone who's already supporting

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through that we also have an online

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social group connected through the

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Facebook page and we do some in-person

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meetups here in Melbourne as well so

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thanks again for watching watching I

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hope you found the content valuable and

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I'll see you again next time

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bye

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