Wawancara Ibu dan Anak Berkebutuhan Khusus Autis PGSD UHAMKA (Kelompok 1 Autistik)

Summary

The transcript presents an interview with the mother of Amel, a special needs child, conducted by university students for their special needs child guidance course. The mother shares Amel's early diagnosis, struggles with her health, and their efforts to support her development through therapy. She also discusses the challenges of caregiving, Amel's relationship with family, and the community's response to her condition. The conversation highlights the family's resilience and hopes for Amel's future, with a focus on her health, therapy, and integration into society.

Takeaways

• 😀 The interview is conducted by students from Muhammadiyah University for a course on special needs child guidance.
• 😀 Amel is a special needs child who was diagnosed with a neurological blockage at a young age, which impacted her development.
• 😀 Amel's mother has faced various challenges in caring for her, including difficulty with walking, talking, and other motor skills.
• 😀 Amel's relationship with her family members is generally positive, though she tends to be more isolated and prefers to observe others.
• 😀 The mother recalls a difficult moment upon learning about Amel’s condition but emphasizes the importance of patience and hope for improvement.
• 😀 Amel's daily activities include minimal movement, and her mother used to take her out for errands, but now it’s more challenging as Amel is older.
• 😀 Despite her challenges, Amel has a good relationship with her father and other family members, even though interactions may seem more passive.
• 😀 Amel's mother has made efforts to ensure Amel's socialization and integration, but Amel sometimes prefers solitude over group activities.
• 😀 The mother expressed sadness and hope for Amel’s future, wishing for her to live a fulfilling life and for her to be accepted by others.
• 😀 The family faces financial difficulties in covering therapy costs, but they continue to prioritize treatments to support Amel’s development.
• 😀 Amel has shown signs of progress through therapy, such as being able to sit and stand, though she still struggles with certain physical tasks.

Q & A

Since when did you know that Amel was a special child?

Amel’s mother discovered that her child had special needs around the age of 3 months when she started noticing a lack of speech development and difficulty in normal movements. The diagnosis later revealed a nerve blockage, which was suggested to be treated through surgery.

How did Amel's daily activities change over time?

Amel's daily activities were limited, especially as she grew older. Before the age of 10, she enjoyed going to places like malls. However, by the age of 10, her mobility had decreased, and she mainly stayed at home, struggling with physical limitations.

How does Amel interact with other family members?

Amel has a close relationship with her mother, and she engages with other family members, including her father and siblings. However, her interactions are sometimes limited, as she prefers to express herself through gestures or simple requests for food. She is not overly expressive but still communicates through basic interactions.

What challenges did you face as Amel's parent after learning about her condition?

Upon discovering that Amel had special needs, Amel's mother felt sadness but also recognized the need for patience and care. Despite the challenges, she remains dedicated to supporting Amel and providing a loving environment, even though financial and emotional obstacles persist.

How is Amel’s social life and her relationship with others outside the family?

Amel prefers to be alone, rather than engage with large groups. She is generally happy when passing by others but often doesn't actively seek social interactions. Despite this, there are people who treat her kindly, and Amel is sometimes invited to play, which makes her mother happy.

How does the community treat Amel?

Amel’s mother feels that the community generally treats Amel well, with some people acknowledging her presence and inviting her to participate in activities. The mother is grateful for the acceptance Amel receives, but recognizes that there may still be misunderstandings due to Amel's special needs.

What efforts have been made to help Amel with her condition?

Amel’s mother has been working tirelessly to provide Amel with therapy, including regular medical treatments, physical therapy, and medications. The mother is committed to helping Amel reach her full potential, including efforts to help her walk, though it has been a long and difficult journey.

How has Amel's development progressed after undergoing therapies?

After a series of therapies, Amel has made progress in terms of standing and sitting. Initially, she was unable to sit or stand on her own, but after continued treatment and medication, her abilities improved slightly. However, she still struggles with weakness, likely due to side effects from the medication.

What financial and emotional challenges has Amel’s family faced in supporting her?

Amel’s family faces significant financial strain due to the cost of medical treatments, therapy, and necessary medications. They have to carefully manage their finances, as the therapies and treatments are expensive. Additionally, there are emotional challenges, as Amel’s mother often feels overwhelmed but continues to persevere in hopes of improving Amel’s condition.

What are Amel’s mother’s hopes for her child's future?

Amel’s mother hopes that her daughter will lead a happy and fulfilling life. She desires for Amel to be accepted by others, live independently, and contribute in her own way to society. The mother also wishes for more resources and support for children like Amel, as she hopes to see improvements in her daughter’s mobility and social life.