Ironmouse on her Big Progress in her Medical Condition

Summary

In this engaging conversation, the speaker shares their experience of a 'subathon' where they were live for a month straight, including sleeping on stream to meet the challenge. They discuss their struggle with a rare immune deficiency disease, CVID, which has significantly impacted their life, including their ability to sit and their need for donated plasma weekly. Despite the challenges, they express gratitude for the progress they've made in their health journey, now being more self-sufficient and living a more normal life, with hopes of one day being able to meet new people and go outside.

Takeaways

• 🎥 The speaker participated in a 'subathon', streaming live for an entire month straight.
• 😴 They managed to sleep during the stream, which was the only way they could get 8 hours of sleep.
• 🛏️ The speaker had their setup in bed, allowing them to sleep comfortably while being tracked on stream.
• 🚶 They have improved their health to the point where they can now walk and even sit in a gaming chair.
• 🤒 The speaker has an immune deficiency disease called CVID, which makes them susceptible to getting sick from other people's germs.
• 🏠 Due to their condition, they have been living with their parents and have had limited social interactions.
• 💉 They receive donated plasma weekly to compensate for their body's inability to produce antibodies.
• 📈 The frequency of plasma treatments has increased from monthly to weekly, indicating a worsening condition but also improved access to medical care.
• 💪 Despite the challenges, the speaker has become more self-sufficient and can take care of themselves better.
• 🌱 There is a sense of hope for the future, with the speaker looking forward to the day they can meet people and go outside.
• 🤗 The speaker expresses gratitude for the support and normalcy they have gained through their health journey.

Q & A

What was the nature of the 'subathon' mentioned in the script?

The 'subathon' referred to in the script was a streaming marathon where the person was live for a month straight, aiming to achieve a certain number of subscribers or donations.

How did the person manage to sleep during the subathon?

The person slept in front of their computer with their tracking on, allowing them to get 8 hours of sleep while still being visible to the audience.

What health condition does the person in the script have?

The person has an immune deficiency disease called CVID (Common Variable Immunodeficiency), which makes them susceptible to infections from other people's germs.

How has CVID affected the person's ability to interact with others?

Due to CVID, the person has to avoid being around people to prevent getting sick, which has limited their social interactions.

What was the person's initial streaming setup like?

Initially, the person had to stream while lying down because of their health condition and was unable to sit in a gaming chair.

How has the person's health journey been since they started streaming?

The person's health journey has seen significant progress since they started streaming, including being able to sit in a gaming chair and walk, which was not possible earlier.

What is the treatment the person receives for their CVID?

The person receives donated plasma every week, as their body does not produce antibodies to fight infections.

How has the frequency of the person's plasma treatments changed over time?

Initially, the person received plasma treatments every month, which increased to every two weeks, and now it's every week due to better access to medical care.

What impact has the person's health condition had on their family life?

The person had to live with their parents and avoid close contact with them, including hugging, due to the risk of infection.

What is the current living situation of the person in the script?

The person still lives with their parents but has become more self-sufficient and can take care of themselves better.

What is the person's hope for the future regarding their health condition?

The person hopes to be able to go outside and meet people one day, which has been challenging due to their CVID.