Health literacy and patient safety: Help patients understand
Summary
TLDRThe video script addresses the critical issue of health literacy, revealing that millions of Americans struggle to understand medical information due to complex healthcare communication. It illustrates the challenges faced by patients with limited literacy skills, including medication management and navigating appointments, and emphasizes the importance of creating a shame-free environment and improving physician-patient communication to ensure better health outcomes.
Takeaways
- 😷 Health literacy is crucial for understanding and acting on medical information, yet millions of adult Americans lack adequate skills.
- 🏥 Patients with low health literacy often face challenges such as hospitalization and misunderstanding medical instructions.
- 📚 The average American reads at an eighth-grade level, but healthcare information is frequently communicated at a college graduate level, leading to confusion.
- 👨⚕️ Doctors often presume patients understand complex medical terms, which can lead to patients not fully grasping their health conditions or treatment plans.
- 🤔 Patients with limited literacy may avoid asking questions or admitting their inability to understand medical instructions due to fear of embarrassment.
- 💊 Misunderstanding medication instructions can result in improper use, potentially leading to adverse health outcomes.
- 📉 Low health literacy is associated with increased healthcare costs, estimated at 50 to 73 billion dollars annually.
- 🔍 Identifying patients with inadequate health literacy can be done through simple questionnaires and observing their interaction with forms.
- 🌐 Creating a shame-free environment in healthcare settings encourages patients to be more open about their literacy levels and receive necessary support.
- 🗣️ Physicians can improve communication by using 'living room language,' focusing on the most important information, and employing visual aids.
- 🔄 The 'teach back' method, where patients explain medical instructions to providers, is an effective way to ensure understanding and retention.
Q & A
What is health literacy and why is it important?
-Health literacy is the ability to read, understand, and act on medical information. It's important because millions of adult Americans lack adequate health literacy skills, which can lead to confusion, frustration, and a feeling of helplessness when dealing with healthcare.
Why do patients sometimes avoid asking questions about their medication or medical conditions?
-Patients may avoid asking questions due to fear of appearing unintelligent, embarrassment, or not wanting others to know they have difficulty understanding medical terms or instructions.
What is the average reading level of the American population in relation to healthcare communication?
-The average American reads at an eighth-grade level, but healthcare information is often communicated at a college graduate level, leading to a disconnect and potential misunderstandings.
What are some common misunderstandings patients with low health literacy might have?
-Patients with low health literacy might misunderstand dosage instructions, fail to recognize the importance of taking medication on an empty stomach, or not comprehend the rights and responsibilities section of a Medicaid application.
How can healthcare providers identify patients with potential health literacy challenges?
-Providers can use a short questionnaire to screen for health literacy, observe how patients fill out forms, and take a detailed social history to identify potential literacy issues.
What is the 'Brown Bag test' and how does it help in ensuring patients understand their medications?
-The 'Brown Bag test' is a method where patients bring all their medications to the doctor's office in a bag. The doctor then reviews each medication with the patient, helping to ensure they understand what each medication is for and how to take it.
How can healthcare providers improve their communication skills to better cater to patients with low health literacy?
-Providers can slow down their speech, use simple and relatable language, focus on the most important information, involve family members, use visual aids, and employ the teach-back method to check understanding.
What is the potential financial impact of low health literacy on the healthcare system?
-Low health literacy can lead to increased use of healthcare services and higher healthcare costs, estimated at an additional 50 to 73 billion dollars every year.
Why is creating a shame-free environment in healthcare important for patients with low health literacy?
-A shame-free environment encourages patients to feel safe and more comfortable, making them more likely to reveal their literacy problems and receive the necessary help and understanding from healthcare providers.
What are some techniques healthcare providers can use to ensure patients understand their medical instructions?
-Techniques include using visual aids, breaking down complex information into simple terms, employing the teach-back method to verify understanding, and involving family members in discussions to provide additional support.
How can the use of visual aids and models benefit patients with low health literacy?
-Visual aids and models can help patients with low health literacy by providing a more concrete and relatable way to understand complex medical information, making it easier for them to remember and follow instructions.
Outlines
😷 Health Literacy Challenges and Their Impact
The first paragraph addresses the issue of health literacy, highlighting the struggles of individuals with limited literacy skills to understand and act on medical information. It discusses the personal experiences of a patient who missed medication dosages and faced difficulties in communicating with healthcare providers due to an inability to read properly. The paragraph emphasizes the widespread nature of health literacy challenges, affecting nearly half of Americans, and the disconnect between patient abilities and healthcare communication. It also points out the high stakes of inadequate health literacy, including increased hospitalization rates and the potential for legal issues due to misunderstanding consent forms.
📉 The Economic and Emotional Costs of Low Health Literacy
This paragraph delves into the financial and emotional consequences of low health literacy. It reveals the significant healthcare costs incurred due to increased service use by patients with inadequate literacy, amounting to an estimated 50 to 73 billion dollars annually. The narrative includes a personal account of a patient's experience, illustrating the fear and anxiety associated with illiteracy in a healthcare setting. The paragraph also discusses the legal implications of patients giving uninformed consent due to not understanding medical documents, and the emotional burden of hiding literacy issues from healthcare providers.
🤝 Creating a Shame-Free Environment for Better Health Communication
The third paragraph focuses on the importance of establishing a shame-free and supportive environment in healthcare facilities to improve communication with patients. It suggests the use of simple questionnaires to identify patients with literacy issues and emphasizes the need for healthcare providers to be attentive to signs of struggle. The paragraph provides examples of how to engage patients in a non-judgmental manner, such as through the Brown Bag test for medication understanding and taking a detailed social history to uncover potential literacy challenges.
💬 Enhancing Communication Skills for Clearer Health Instructions
This paragraph discusses strategies for healthcare providers to improve their communication with patients to ensure understanding. It advises slowing down the pace of speech, using simple and relatable language, and focusing on the most critical information. The paragraph also highlights the effectiveness of visual aids and the importance of confirming patients' understanding through the 'teach-back' method. Personal anecdotes from patients and providers illustrate the positive outcomes of these communication techniques, such as better medication management and increased patient confidence.
👨⚕️ Encouraging Patient Engagement and Understanding
The final paragraph underscores the collective responsibility of healthcare providers to create a shame-free environment and to employ effective communication techniques. It encourages the involvement of the entire staff in identifying and supporting patients with low health literacy. The paragraph outlines simple yet impactful methods such as using 'living room language,' involving family members, and utilizing visual aids to enhance understanding. It concludes with a call to action for physicians to share their successful techniques and to continue learning about health literacy to better serve their patients.
Mindmap
Keywords
💡Health Literacy
💡Misunderstanding Medication
💡Functional Illiteracy
💡Communication Disconnect
💡Shame-Free Environment
💡Brown Bag Test
💡Living Room Language
💡Medication Compliance
💡Informed Consent
💡Healthcare Costs
💡Teach Back Method
Highlights
Health literacy is crucial for understanding and acting on medical information, yet millions of adult Americans lack adequate health literacy skills.
Patients with limited health literacy often face challenges in adhering to medical instructions and may experience increased hospitalization.
Healthcare information is frequently communicated at a level higher than the average American's reading comprehension, leading to confusion and frustration.
Functionally illiterate patients may not understand basic medical instructions, such as dosage or appointment scheduling.
Health literacy challenges are not limited to the less educated; even highly educated patients can struggle with complex medical terminology.
The financial impact of low health literacy on the healthcare system is significant, with increased service use and costs estimated at 50 to 73 billion dollars annually.
Creating a shame-free environment in healthcare settings can help patients feel more comfortable discussing their health literacy challenges.
Using simple language and visual aids can significantly improve patient understanding of medical instructions and conditions.
The 'Brown Bag test' is an effective method for healthcare providers to ensure patients understand their medication regimens.
Patients may hide their health literacy issues due to fear of embarrassment, which can lead to improper treatment or misunderstanding of medical conditions.
Incomplete forms or prolonged time spent on forms can be indicators of potential health literacy issues among patients.
Engaging family members in healthcare discussions can help support patients with limited health literacy and ensure better understanding.
The 'teach back' method is a valuable tool for healthcare providers to confirm that patients have correctly understood medical instructions.
Healthcare providers can use analogies and relatable examples to explain complex medical concepts, enhancing patient comprehension.
Patients with low health literacy may not understand the purpose of their medications, leading to non-adherence or incorrect usage.
Healthcare providers should be aware of the emotional toll that health literacy challenges can take on patients and provide support accordingly.
The American Medical Association encourages healthcare providers to find and implement effective communication techniques to improve patient understanding.
Transcripts
I I was sick a lot I was sick a lot
because I probably missed dosage and
didn't realize it um I was in the
hospital a lot when they did give me
medicine I didn't take it right I admit
to it I just didn't understand them and
I didn't have the nerve to ask
them the right way of doing it I just
didn't have the nerve to ask them and I
didn't want anyone to know I couldn't
read we had a child that was physically
handicapped that I had to do physical
therapy on I would show up on Tuesdays
instead of Thursdays for the appointment
I would be exercising the wrong side of
the body I had an abscess in a ear one
time well I had to fill out forms and it
couldn't fill out so I didn't go I come
back home I ended up having to go to the
emergency room that night because it
burst
health literacy is the ability to read
understand and act on medical
information unfortunately millions of
adult Americans lack adequate health
literacy
skills the doctors researchers and
patients in this video are real Not
actors the situations frustrations and
complications are also
real nearly half of Americans have
health literacy challenges odds are some
of them are your
patients can you imagine what it's like
um you being a patient and
sick and uh you know that you have
limited skills okay and you're talking
to an intelligent doctor like yourselves
and these people are are using words
that you really don't know because
they're not speaking in layman's term
okay most doctors are just presuming
that everybody's intelligent as they are
and that is just not the case so what
you do you come out of that uh that that
room that examination room with this
intelligent woman or man
thinking God I hope I don't make a
mistake with my medicine cuz I did not
understand anything he or she say it to
me the heart of the problem is a
disconnect between patient ability and
healthc Care
communication the average American reads
at an eighth grade level but Healthcare
information is often communicated at a
college graduate level this disconnect
leads to confusion frustration and a
feeling of helplessness for patients and
Physicians while Healthcare information
can confuse even highly educated
patients those most vulnerable to
misunderstanding are the one in five
adult Americans who are functionally
illiterate take one one caps one
caps that's right one cap one
caps I don't know what this is twice
twice daily okay okay so what so how
would you take this well I see it's not
only telling you how to take it it say
take it twice daily but it don't say
what time to take it for people with
limited literacy skills the world can be
a challenging one 21% of adult Americans
can't read the front page of a newspaper
48% can't decipher a bus schedule or
make sense of a bar graph the problem is
even worse in the healthare setting
where emotions run high and vocabulary
is unfamiliar based on our decade of
research on health literacy our research
group has documented clearly that
patients who have inadequate health
literacy are more likely to be
hospitalized for their chronic illnesses
and this is regardless of their
socioeconomic status whether or not they
have a primary care provider regardless
of how ill they are and tell me which
one is which and what you take them
for that looks like my medicine that he
gave me for the in morning I take that
and the little pill well this is Matra
this is uh lipian in it yeah that's
lipian okay and what do you take that
medicine for don't ask me he puts me on
there and I put I just take it okay
anything he tells me to take I'll take
it okay so you trust him oh you better
believe it my life research has shown
that many patients have a hard time
understanding basic medical instruction
26% didn't understand when their next
appointment was scheduled 42% didn't
understand instructions to take
medication on an empty stomach 86%
couldn't understand the rights and
responsibility section of a Medicaid
application do you know what
hypertension means if I asked you what
that was because when I look at this I
think well maybe you have hypertension
and I've been taking care of that for a
long time hyper M hyper like you're
hyper what does being hyper mean to you
that's that's um where you can't be Ste
you always got to be doing something do
I do you think I think you're hyper and
have hyper
tension I I don't know I that's what I
consider it okay it being you know okay
but you know you have high blood
pressure okay but hypertension doesn't
mean the same to
you so if I ask you if you have
hypertension you're going to just think
I think you're jumping around on the
chair or something like that something
different just being hyper you know okay
all right well I haven't done a very
good job teaching you what I
hypertension is because I think you take
that medicine for your hypertension and
that's one of the things that I try to
work with you on is your blood
pressure and high blood pressure and
hypertension to us is the same thing the
same thing yeah low health literacy
impacts patients and all aspects of the
Health Care system in many ways in
financial terms patients with low health
literacy use Health Care Services more
often and increase health care costs by
an estimated 50 to 73 billion every year
the cost of patients can be equally high
at approximately 30 or 31 I went into
the gynecologist and complained about
part of this not working
correctly and he said we can repair that
great I didn't ask all the right
questions when I showed up two weeks
later at the Admissions Office at the
hospital they put enough papers in front
of me I'll bet there were five papers
that I needed to sign well I wasn't
going to say excuse me but I don't read
really well and I certainly don't read
fast and I'm concerned with some of
these words to me it was lines and
circles over sheets and sheets and
sheets and I wasn't going to reveal my
sense of stupidity so I signed
everywhere they told me to
sign never read it and then uh couple
weeks later in the follow-up office
visit the nurse said how are you feeling
since you're his Direct
me now I acted as normal as I could
inside my mouth fell open and I thought
to myself how could I be so stupid as to
allow somebody to take part of my body
and I didn't know it a patient signs a
consent form that they don't understand
they undergo a procedure and there's an
adverse outcome that might have been one
of the risks there are legal cases
clearly showing that these individuals
can sue successfully in this setting
because they did not give informed
consent the majority of patients try to
hide this the majority of patients are
not aware of it fully they believe this
is their fault that they don't
understand if you have a reading problem
you go to the doctor that can be very
scary it's like a
nightmare you walk in that office and um
most if you realize first thing you
going to have to do if that's your first
visit is fill out of
form your heart beats real fast you're
scared you don't know what to do you
want to turn around and walk out I have
you have panic attacks did I do it right
is this done right am I imagining things
do I go back over and check it again um
I've caught mistakes that I made simple
mistakes it it paralyzes your ever your
thoughts completely to think that you
may say something or or or something is
put before you to read and you can't
read it I mean you live with that on a
daily basis people sooner or later will
discover and that is your most greatest
fear what day is it going to be when
somebody discovers you can't read and
write I would get mad about something
and blame them that this is not the
right place for me you're not respecting
me and walk out
and it had nothing to do with that it
was just I need to cover that I couldn't
read this I didn't need them I didn't
want them to know that I'm walking out
because I can't read so you found
solutions that sort of make it work it
and hide the real problem yes so that
others won't notice it right doesn't
that take a lot of your time yes doesn't
it take a lot of effort for you a lot
very
emotionally yeah it drains you
yep okay it almost doesn't matter why
they're having problems understanding
it's my job to overcome that barrier so
that I can get them the information they
need to let me help them while we're
waiting for research to be done on this
topic so that we understand the best way
to educate patients we can still use the
advice of the true experts both patients
and Physicians who've cared for these
patients there are some things that we
can do to help this one we need to make
sure that the environment in which we
deliver the care is an open environment
and shame free
creating a shame-free environment in a
doctor's office or a hospital means that
there's an attitude of helpfulness by
every person there when I walk into a
doctor's office or a reception room I
would like to be treated as even though
I'm a stranger that they know me good
morning sir because you're walking into
an what you might consider a hostile
environment it drops the defense all the
guards are down the walls are down the
line lines of communications are up
patients want to be able to feel safe
that they can tell the physician about
their literacy skills about their
inability to understand their medical
condition and receive help creating a
shame free environment can start with
the forms that patients fill out as a
screen for health literacy first to
identify them short and quick a
questionnaire seven or eight questions
and these are straightforward questions
I mean we've really geared it at fifth
grade level and some of them can't
answer the questions but since the form
is present on my desk then I can
immediately notice if they haven't
answer the questions so during the
interview I can bring that
up you know my medical assistant I I
noticed earlier was um helping you out
with the uh with our questionnaire yes I
I'm dyslexic so I have a difficulty in
Reading
yes and also with auditory memory so
things that I forget so I'll ask you to
you know write them down or I'll have my
husband come in and whatever you we
discuss so that I have a a memory when
we had a patient a form we don't just
hand them the form and then they sit
down and we kind of forget about them so
if they're having a difficult time you
can pretty much tell from how long
they've actually had the form if I see
somebody sitting with that clipboard in
their hand for 5 minutes then I know
that something is wrong I take a
detailed social history which gives me
information about a lot of things other
than just their literacy their cultural
background and approach to Health Care
um how much education they've had is a
big question and I always ask people who
have had limited education or say that
they have had difficulty in school I
always ask them how happy they are with
how they read or how well they read and
often it's as if people have been
waiting for somebody to ask them that
and I've gotten a lot of mileage out of
that particular question what kind of
work do you do I'm a pharmacist tech and
a Pharm or a DME technician DME durable
medical equipment oh okay and how far
did you go in school 12th
grade how happy are you with how you
read I'm not very good I'm i' there's
always room for improvement I'm better
than I used to be um it's not my reading
that really troubles me is my writing
one of the important interaction
that can contribute to a shame-free
environment is how you review a
patient's medications with them a very
effective way to ensure that the
patients understand how to take those
medications is to have them bring those
medications into the office it's
commonly called the Brown Bag test and
then I sit down with the patient and say
show me how you're supposed to take
these
medications how did you get from the
doctor writing you a prescription for
you to getting to where you knew what
pill came out of what pill bottle um by
just by I guess I think what I
did is the recognition of letters but
not being able to read the
word I I could recognize the letter and
I knew that would be my Acolyte and if
they're different colors and different
things that helps but sometimes because
two of my pills
accolate and
um my
tranquilizer are the same almost the
same they're the same color but because
of the size I have to put them together
to make sure I'm not taking two of the
same thing so I try to be very careful
there are times if I don't feel well if
I'm not thinking right I'm in a hurry I
have taken the two tranquilizers instead
of one Accolade and one
tranquilizer if someone can read They're
going to pick up the pill bottle and
read the label and tell you how to take
it whereas a patient who has inadequate
health literacy is going to pick up that
pill bottle take off the top and they're
going to look and say ah this is my oval
little blue pill this must be my pill
for my
diabetes I think my biggest asset is my
front desk and my staff they're very
good at making sure that things happen
in a timely fashion and they can then
give me a heads up about someone who
they don't think can read the second
thing Physicians need to do is improve
their communication skills
when you're trying to ensure patients
understand you can slow down don't speak
so quickly so that the patients can
understand what you're
saying well you're right about the
arthritis okay it does affect the joints
yes patients or anyone can only remember
one two or three things from a
conversation identify what's most
important to teach that patient and
ensure they understand that before they
walk out of the door and go home in the
form of arthritis that you have which is
the most common okay usually what
happens is that inside the joint there
are two bones at least two bones okay
and the bones are just rubbing walk use
living room language use language that
anybody walking on the street would
understand not just the nurse and
another
doctor you mentioned earlier that you
were working on your home yes 100 years
old you notice my door it
creaks it wears down that door has a
little oil so it doesn't Creak when that
oil wears off starts creaking what was
interesting is that he used visual aids
in the sense of he made a visual picture
of what was going on um describing
arthritis as being a joint in a door
frame and not having oil so this really
helps out in the fact that you have a
visual picture of what might be going on
in your body it doesn't matter whether
people are Highly Educated because this
stuff is difficult to understand they're
not doctors and since they're not
doctors they shouldn't understand
doctor's terms I am married to an
engineer now and this man has some
health issues so we are in the doctor's
office from time to
time we will walk out of the doctor's
office and my husband with all of that
left-brained intellect will say to
me what did the doctor say what what am
I supposed to do I don't understand Mary
U brought in her husband and it was it
was very clear from the uh from the
beginning once they were together how
they have a dynamic that works and the
majority of things that she does in
healthcare she may not be able to go
100% with it but he's there to fill in
the Gap I use a lot of posters I have
lots of posters and models and I think
people remember it better if they can
see it or if it's Associated to
something that they understand already
so I think the models and the visuals
all make a big difference if the patient
comes in with medication a lot of times
they're on so many medications they're
confused on when to take it what it's
for so we do have a medication
compliance sheet and we do actually tape
a pill that they bring in in out of
their medicine bottle we tape it to the
sheet we write down when they take it
and what the medication's for it's
really important that you don't say do
you understand because they're going to
say yeah and that'll be the end of it
and you won't know what they understand
they may understand but it may not be
what you
said um I think I use a teach the
teacher mechanism it's like now that you
know this I know you've got friends when
they ask about this issue
how are you going to tell them what are
you going to say well one of the things
that you can do if you have a really bad
pain I mean where you can't stand on it
and it's it's really getting in your way
is to use what I call this is my little
pain protocol
here it has ibuprofen which decreases
those little cells I was talking to you
about the inflame part and your Tylenol
that just works on the pain yeah and the
I is for ibuprofen and T is for Tylenol
and this just shows you how to do it
over the course of the day for breakfast
lunch and dinner there's an I so you use
ibuprofen right cuz you have to have
something on your stomach that's right
with that one cuz this one will irritate
your stomach so in between meals and at
bedtime you use the Tylenol right this
way you get something every 3 hours you
don't overdose on either one so it's it
it it and if you do that for a couple of
days when it's really bad then you can
just go back to to your regular regimen
but this usually breaks the pain pretty
nicely so I know you have a lot of
friends with arthritis how would you
explain it to them well for bre I take I
10:00 a.m. I take
T lunch I take
I 300 p.m. I take
t i at dinner and T at bedtime is that
correct that's going to work just fine
thank you very much I think there are a
lot lot of simple things that Physicians
can do to improve their office and make
it a shame-free environment there's a
lot of simple things doctors can do to
ensure their patients understand them
and ensure these patients have better
health as we've seen a shame free
environment is one that conveys an
attitude of helpfulness it's a safe
place where patients feel more
comfortable and are more likely to
reveal literacy problems engage the
entire staff and remember there are
clues that indicate the possibility of
low health Literacy for example
incomplete forms Clues can also come
from the information derived from the
social history and insights gleaned from
the medication review as far as
improving communication keep in mind
these simple techniques slow down use
living room language convey only the
most important Concepts involve family
members use visual aids and employ the
teach back
method the Physicians you have just seen
are using a variety of communication
techniques to better inform their
patients as research continues to une
Earth best practices we ask you to join
them and all of us at the AMA in finding
and implementing simple ways to
communicate with all your
patients please let us know what
techniques you have tried and what has
worked in your
practice there's no question when a
patient understands how to take their
medication when a patient recognizes
that the physician really cares about
them their face lights
up and that is so gratifying to see that
in a patient
that they know their doctor cares about
them and that they now know how to best
take care of themselves see the manual
that accompanies this video and visit
www.am foundation.org to learn more
about health literacy and techniques you
can use in your practice
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