CONTANDO A HISTÓRIA DO VOZ DAS MÃES NO PROGRAMA ''VEM COM A GENTE''

Summary

The video showcases Natália Lopes' powerful journey of resilience and hope through her creation of the 'Voz das Mães' project. After learning that her son Vinícius was diagnosed with a fatal genetic condition, she faced overwhelming challenges. Despite medical predictions, Natália refused to give up and continued her pregnancy, with Vinícius now thriving. The project she founded supports mothers in similar situations, providing a community and essential information during times of uncertainty. Natália's story highlights the importance of empathy in medical care and the power of shared experiences for those facing adversity.

Takeaways

• 😀 Natália Lopes created the 'Mothers' Voice Project' to support mothers dealing with difficult pregnancies and diagnoses, based on her own experience with her son Vinícius.
• 😀 The project provides a network for mothers, fathers, and atypical family members to access medical, legal, and emotional support.
• 😀 Natália's son, Vinícius, was diagnosed with skeletal dysplasia, a condition that was initially expected to result in his death, but he survived and is now thriving.
• 😀 The project began after Natália felt isolated during her pregnancy and shared her journey through social media, connecting with other mothers in similar situations.
• 😀 Many mothers who reach out to the 'Mothers' Voice Project' feel abandoned by their partners, with a high rate of separation due to the child’s disability.
• 😀 Skeletal dysplasia, which affects bone growth and development, was a central part of Vinícius' diagnosis, with doctors giving a grim prognosis that he wouldn't survive birth.
• 😀 Natália emphasizes the lack of empathy in the medical field, highlighting the importance of doctors delivering diagnoses with sensitivity and compassion.
• 😀 Despite the initial negative prognosis, Natália and her family decided to fight for Vinícius' life, seeking second opinions and medical support to continue his development.
• 😀 The 'Mothers' Voice Project' also provides a platform for mothers to share their stories and offer emotional support to others going through similar struggles.
• 😀 Vinícius' condition is still being studied, with ongoing tests to confirm his diagnosis and monitor his progress. His survival and development represent a miracle and a symbol of resilience.

Q & A

What is the story behind Natália Lopes' creation of the 'Voz das Mães' project?

Natália Lopes created the 'Voz das Mães' (Voice of Mothers) project after experiencing a difficult pregnancy where her son, Vinícius, was diagnosed with a skeletal dysplasia, a condition that doctors said would result in his death at birth. She felt a lack of support and information during her pregnancy, prompting her to create a network for mothers facing similar challenges.

What is the 'Voz das Mães' project about?

The 'Voz das Mães' project is a support network designed to educate, inform, and help mothers, fathers, and families dealing with atypical children, whether due to disabilities or genetic conditions. It provides emotional support, medical information, and legal advice, helping families feel less isolated.

What was the initial diagnosis given to Vinícius, and how did Natália react to it?

Vinícius was diagnosed with skeletal dysplasia, a genetic condition that could cause him to be born with dwarfism and potentially die at birth. Natália and her husband were devastated by the diagnosis, especially after losing two previous pregnancies. However, they sought second opinions and chose to pursue the pregnancy, hoping for a miracle.

How did the lack of empathy from doctors affect Natália's experience?

The lack of empathy from the doctor who first delivered the diagnosis was deeply upsetting for Natália and her husband. The doctor’s blunt delivery, stating that their son would die at birth, lacked sensitivity. This experience highlighted the importance of empathy and compassion in medical care, which Natália continues to advocate for through her project.

How did Natália find support from others during her difficult pregnancy?

Natália initially felt isolated but found support through sharing her story. After posting a video about her experience on social media, she connected with other mothers who were going through similar struggles. These connections helped her feel less alone and more supported, which ultimately inspired the creation of the 'Voz das Mães' project.

What role did Doctor Maíra play in Natália’s journey?

Doctor Maíra played a crucial role in supporting Natália through her difficult pregnancy. Unlike other doctors who had given up, Maíra remained hopeful and supported Natália's decision to continue the pregnancy. She provided essential care and advocated for Natália's wishes despite the medical challenges.

What are the key goals of the 'Voz das Mães' project?

The main goals of the 'Voz das Mães' project are to provide emotional support, share life stories, and offer medical and legal information to families with atypical children. It aims to create a community where parents can share their experiences and find hope and solidarity, especially during difficult times.

What did Natália learn about resilience from her own experience?

Natália’s journey taught her the power of resilience, as she refused to give up on her son despite the grim diagnosis. She learned that resilience isn't just about surviving adversity but about using that experience to help others and create meaningful change, which led to the formation of the 'Voz das Mães' project.

How did the 'Voz das Mães' project impact other families?

The 'Voz das Mães' project has provided a sense of community and support to many families who are facing similar challenges. It helps them feel less isolated, empowers them with knowledge, and connects them with others who understand their struggles, thus fostering solidarity and hope.

What message did Natália share with other mothers who are struggling?

Natália emphasized the importance of seeking support and not going through difficult experiences alone. She urged mothers to connect with others, share their stories, and never give up, regardless of how challenging their journey may seem. She believes that through collective strength and resilience, they can make a positive impact.