RADIOTHERAPY FIRST SESSION: DIDN'T GO AS PLANNED

Summary

Edie shares her experience with the start of her radiation therapy for cancer, detailing the initial frustration with scheduling and technical issues that delayed her first session. Despite the setbacks, she successfully completes her first of 30 radiotherapy treatments, finding it painless and without immediate side effects. She expresses relief and a positive outlook, committing to keep her audience updated on her treatment journey over the next six weeks.

Takeaways

• 📅 Edie is undergoing a series of 30 radiation therapy sessions, starting from the 28th of August.
• 🤔 Edie experienced frustration due to a lack of communication and a mix-up with her appointment scheduling.
• 📞 She had to make several calls to confirm her appointment and understand the treatment process.
• 😷 For the radiation therapy, Edie had a mask fitted, which was compared to a Halloween mask, indicating its unusual appearance.
• 🛏️ The first treatment session had technical issues, causing a delay and requiring Edie to wait.
• 🔧 A software issue with the machine led to the initial treatment being aborted.
• 🏠 Edie was almost sent home without receiving her treatment but eventually, it was successfully administered.
• 🕰️ The actual radiation treatment is short, lasting only about five to ten minutes.
• 👨‍⚕️ Despite the initial hiccup, the staff managed to resolve the issue and completed the treatment.
• 🍽️ After the treatment, Edie reported no loss of appetite and had a normal meal, indicating no immediate side effects.
• 📝 Edie plans to share her ongoing experiences with radiation therapy to provide insight to others considering the same treatment.

Q & A

What is the main topic of the video transcript?

The main topic of the video transcript is the individual's experience with the beginning of their radiation therapy treatment for cancer.

What was the issue with the first radiation therapy session?

The first radiation therapy session did not go as planned due to technical issues with the software, which prevented the treatment from starting as expected.

How many radiation therapy sessions does the individual have planned?

The individual has planned for a total of 30 radiation therapy sessions.

What was the individual's reaction to the delay in the first session?

The individual was initially frustrated and disappointed by the delay but was relieved when the issue was resolved and they were able to complete the session.

What was the individual's experience with the mask used during the radiation therapy?

The individual described the mask as tricky to fit and very tight, but it allowed them to breathe and was part of the preparation for the treatment.

How did the individual feel after the first radiation therapy session?

After the first session, the individual felt relieved and reported no immediate side effects such as headaches or loss of appetite.

What was the individual's strategy for dealing with the uncertainty and frustration regarding their treatment schedule?

The individual vented their frustration in a video, investigated their supposed appointment, and made several phone calls to ensure their treatment was not forgotten.

How did the individual communicate their experience with others?

The individual communicated their experience through live streams and videos, sharing information and updates with their viewers.

What was the individual's advice for those planning on undergoing radiation therapy?

The individual plans to keep their audience updated on their personal experience with radiation therapy to provide a perspective from someone actually going through the treatment.

What was the individual's overall sentiment towards the hospital staff and the treatment process?

The individual expressed gratitude for the hospital staff's efforts in resolving the technical issues and was determined to continue with the treatment despite the initial setback.

How did the individual describe the actual radiation therapy treatment?

The individual described the radiation therapy treatment as painless, quick (lasting about five to ten minutes), and accompanied by mechanical sounds that added a science fiction-like atmosphere.

Outlines

00:00

🏥 Starting Radiotherapy Treatment

Edie shares her experience on the 29th of August, as she begins her radiotherapy treatment. Despite initial frustration over a miscommunication regarding her appointment, she manages to get it sorted and starts her first session. She describes the process of getting fitted with a mask for treatment positioning, which is uncomfortable but necessary. Unfortunately, her first session is delayed due to technical issues with the hospital's software, leading to a wait in a cold waiting room. However, she is eventually called back for her successful first radiotherapy session, which is painless and quick. Edie expresses relief and satisfaction at having finally started her treatment, despite the initial hiccups.

05:01

🔄 Returning for Second Radiotherapy Session

In her follow-up video, Edie talks about her second radiotherapy session on the 30th of August. She reflects on her first session, which was successful after overcoming initial technical difficulties. She mentions the mask fitting process, which was tight but tolerable, and the painless nature of the treatment. Edie also discusses the support she received from viewers on her live stream, who provided valuable information and encouragement. She acknowledges the potential for side effects to appear later in the treatment but is currently experiencing none. Edie is grateful for the treatment being underway and plans to keep her audience updated on her progress through the remaining 29 sessions over the next six weeks.

Keywords

💡Radiotherapy

Radiotherapy, also known as radiation therapy, is a medical treatment that uses radiation to kill cancer cells. In the script, the individual is undergoing radiotherapy as part of their cancer treatment. The person mentions 'round one' and 'round two,' indicating multiple sessions of this treatment, which is a common approach to ensure the targeted delivery of radiation over a period.

💡Cancer

Cancer is a group of diseases characterized by the uncontrolled growth and spread of abnormal cells. The video script revolves around the individual's experience with cancer treatment, specifically radiotherapy. The mention of 'cancer treatment' and the individual's first radiotherapy session highlights the central theme of battling cancer.

💡Frustration

Frustration is a feeling of dissatisfaction or annoyance, often caused by unfulfilled needs or unresolved problems. In the script, the person vents their frustration about waiting for their radiotherapy appointment, which was delayed due to administrative issues. This keyword is crucial as it sets the emotional tone of the video and reflects the challenges faced by patients.

💡Appointment

An appointment is a scheduled meeting or a prearranged time to receive a service. The script discusses the individual's efforts to confirm and attend their radiotherapy appointment, which is a critical part of their cancer treatment journey. The term is used to emphasize the bureaucratic hurdles the person faced in securing their treatment.

💡Mask

In the context of radiotherapy, a mask is a device used to immobilize the patient's head and ensure accurate targeting of the radiation. The script describes the fitting of a 'mask' during the radiotherapy session, which is essential for the precision of the treatment. The mask is likened to a Halloween mask, indicating its unusual and somewhat frightening appearance.

💡Technical issues

Technical issues refer to problems with machinery or software that prevent normal operation. In the script, the individual encounters technical issues during their first radiotherapy session, which leads to a delay. This keyword is significant as it adds an element of suspense and uncertainty to the narrative of the treatment process.

💡Painless

Painless means not causing pain or discomfort. The individual describes their radiotherapy session as 'painless,' which is a relief to them and also provides reassurance to viewers who might be curious about the experience. This term is important as it counters common fears about the pain associated with cancer treatments.

💡Side effects

Side effects are secondary, typically unplanned, effects of a medical treatment in addition to the intended therapeutic effect. The script mentions the individual's concern about potential side effects from radiotherapy, which is a common concern among patients. The person reports having no side effects post-treatment, which is a positive sign in their treatment journey.

💡Communication

Communication refers to the imparting or exchanging of information. The script highlights the lack of communication from the hospital staff regarding the individual's appointment, which led to confusion and frustration. Effective communication is crucial in healthcare to ensure patients understand their treatment schedules and what to expect.

💡Live stream

A live stream is a real-time video or audio broadcast over the internet. The individual mentions doing a live stream to gather information and support from viewers, which is a modern way of connecting with an audience. This keyword is significant as it shows how technology can be used to share personal experiences and gather community support.

💡Transport

Transport in this context refers to the means of conveyance provided by the hospital to take the patient to and from their treatment. The script describes the individual waiting for hospital transport, emphasizing the logistical aspects of receiving medical care and the dependency on hospital services for accessibility.

Highlights

Edie is waiting for hospital transport for round two of her radiation therapy.

Round one of radiation therapy did not go as planned.

Edie vented her frustration in a video about waiting for her treatment.

She investigated a supposed appointment that had been made.

Edie had to make several phone calls to get through to the right people.

The first radiation therapy session was delayed due to technical issues.

Edie had a mask fitted for the treatment, which was uncomfortable but necessary.

The treatment was supposed to be painless, which was confirmed during the session.

A software issue caused a delay in the treatment process.

Edie was moved to a waiting room due to the machine malfunction.

The hospital considered sending her home due to the ongoing issues.

Edie expressed her desire to not go home without receiving her treatment.

The treatment was eventually successful after the issues were resolved.

Edie described the treatment as painless and quick, lasting only five to ten minutes.

She did not experience any side effects after the first session.

Edie plans to share her experiences with others who are considering radiotherapy.

She emphasizes the importance of communication in the treatment process.

Edie is scheduled for 30 sessions of radiotherapy over six weeks.

She is thankful that her treatment is finally underway.

Transcripts

hello steady Edie here uh Thursday

morning at the 29th of August and I'm

waiting for my Hospital

transport to take me uh to to round

two of my radiation therapy round one

was yesterday and it didn't get quite go

to plan but I'm glad that it's it's it's

finally begun a couple of days ago I put

out a video uh venting my frustration

about why I'm

waiting and later on that that afternoon

I I I I investigated a supposed

appointment that had being made which

which few people knew about and you know

I I I got through various calls and and

eventually got there and and um and

found out that that appointment on on

Wednesday afternoon or Wednesday late

morning it was actually standing I mean

you know I had to make various phone

calls to get through to the right people

so yesterday I I had my first

radiotherapy uh treatment and you know

so I I'll first of

30 so 30 30 radiother therapy

treatments wow that that's that seems

Seems a lot of but he I mean if like

last last you know yesterday and you

know that's five to 10 minutes of act

old treatment but it it had its

hicups I went there and to to the

hospital and you know not knowing what

to expect I done a live stream yesterday

morning and got some great

information you know on the other

channel steady Eddie live and got some

great information because there's a

there a lot of good people who who who

who watch my videos and um you know live

streams and and you know radiotherapy

you know cancer treatment all of that

it's a big issue there's lots of people

want to know know about it so I'll I'll

keep you updated how how it

goes yesterday we you know was um not

without the

teup I I've Had The Mask fitted which

looked like a Halloween mask and I you

know you know laid down on the the uh

the hospital you know bed I think you'll

call it bed's probably not the right

word but um you know the you know you

know prepared them for the

radiotherapy uh Tre

treatment and you know finally they

fitted the mask and you know to you know

that was a tricky bit they've got to get

it

right and um

you know and and then they said they'd

let leave the room you know they'd be

observing me so I got in the right

position on on the on on the bed and

waited for the for for the big event my

first ever radio therapy

session

and you know I could hear machines

moving because I couldn't see through

that mask I could breathe through it I

could hear machines moving

in in place not knowing what to

expect and after after a few minutes I

thought well this is this is painless

this is I can't feel a thing so that's

that can only be a good thing and then

after a few minutes I had a voice over

the loud loud speaker saying we're sorry

about the the delay we're having a few

technical

issues no wonder I couldn't feel the

thing it hadn't actually started yeah

so they came in and they they removed me

from the table and put me in a waiting

room they said sorry about this but

we're having problems with the soft

software it's it's you know it's it's

not playing its part

it's you know it's not taking you know

the right photographs you know it's so I

sat in the waiting

room you know alone this cold

room you know and and and then the the

um assistants there or or whatever you

call it came in about you know 10

minutes later or 15 minutes

later and said to me look whatever what

Happ to call out an engineer the machine

isn't working it's it's a software Ed

issue so rather than having you wait

here all all

day um we may phone a Hospital transport

to take you home

again and I thought oh no I I haven't

gone through all the all of

this you know to to go home empty-handed

I I want this to be my

first you know at my first radio therapy

session he telling me that it's it's

it's a

failure so I sat there and oh my God

Almighty I mean you know we why does not

never go

right so both you know sometime later

the same nurse came in and said

we've got it working we've got it and

that was that was a relief to me because

like I just I just said I don't I don't

want to go all empty-handed I I I want

to be able to say that this was my first

ever radiotherapy

session so you know round round two I I

I went back in there and and they lay me

on the bed and they you know they

struggle once again to to fit the mask

and the mask was very very tight but I

could breathe through it I couldn't see

through it and I actually had the the

first ever radio therapy session the

first of

30 and it was painless it was

painless now I could see I have my eyes

closed um I could see the few flashing

light it only lasted like five to 10

minutes something like that you know

probably closer to five minutes than

than 10 minutes but it was painless and

I I could hear this Miss I was told you

know by someone in the live stream that

you know the these mechanical alarms

that come out and all sounds very very

science

fiction but I was relieved when when um

you know they came back in and said

that's it you know it's over because I

didn't feel the

thing and

um and okay and that was it my I spent

an eternity waiting for the hospital

transport I mean it was door to door it

was it was ours for what for the natural

treatment that that was that was no

longer than you know five to 10 minutes

but I'm able to say now that I've had my

first radio therapy I have the the

timetable over the next six weeks I

think I mean it's about a week into

October you know six weeks of six weeks

of going there Mondays and

Friday and having this this radio I I I

I don't know what to make of it up to

now I can't can't claim it I haven't had

one session one down 29 too I can't

claim to be an expert but that's it I've

tested the water I've I've um I've had

my first radio therapy session and today

I'm on me way way for you know the

second ra radio therapy session so I I I

can't comment on it up to now all is I

know is that I I don't have any

headaches and as for appetite oh I came

home and my my it appears the guy's

looking after me here a lovely big

chicken dinner so I haven't lost my

appetize I haven't lost my appetize i i

i i i defiled a big meal last

night yesterday afternoon when I when I

came back um you know

so I haven't lost my appeti and I slept

well and and I'm functioning as normal I

no side effects now now I know there's

the demom and Gloom merchants in the

chat who who say ah but you you won't

feel any pain now at the beginning it's

towards the end of the treatment that's

when that's when you'll be screaming

with pain oh you're always going to get

a few I I'll I'll I'll keep you updated

if anyone's planning on radio

therapy then I'll tell you you know how

it goes from from my perspective and I'm

just glad that it's under under way I

know I I ranted and RAV you the way

because I felt that day you know

conspiracy theories they were put me to

the back of the queue but it's it's

there's a lack of communication with the

you know with these people um because

like people I was phoning up didn't know

anything about that appointment and I I

kind of you know after after after a

week or so I was kind of thinking they'd

forgotten about

me but but yeah you know I'll I'll keep

you posted six weeks

30 30 of those I've had one another 29

visits to the hospital to have a radio

session um well I can't comment anymore

I'll I'll tell you how it goes on not

every day not every day you don't need

to know that but if anyone you know

wants a perspective and someone's

actually having radio therapy then I'll

I'll I'll tell you you know what it's

like from my experiences so anyway

thanks for watching my Hospital

transport hopefully will be here soon

it's uh it's it's number two of of 30 to

today

and I'll keep you posted okay thank you

have a have a good day everyone