Kim Cherry ALS Reversal
Summary
TLDRThe speaker recounts their journey with ALS, beginning with initial symptoms in 2010 and the official diagnosis in 2011. They discuss the challenges of adapting to life with the disease, including sleep issues and dietary changes, such as eliminating gluten and reducing inflammatory foods. As an engineer and inventor, the speaker views ALS as another problem to solve, emphasizing the importance of a positive attitude and alternative therapies. They express hope for the future, aiming to improve not just their golf game but also their relationships, and look forward to a day when ALS is no longer a death sentence.
Takeaways
- π The speaker's first significant issue with ALS was noticed during winter 2010 when they struggled to swim, which was their regular exercise.
- π₯ They consulted a neurologist after their 42nd wedding anniversary and received an ALS diagnosis on November 22nd, 2011.
- π€ Following the diagnosis, they underwent a sleep study and were prescribed a BiPAP machine to assist with sleep and supplemental oxygen.
- π€ The speaker, an engineer and inventor by profession, approached ALS as another problem to solve, drawing on their history of overcoming challenges.
- π« They decided not to accept ALS passively and sought alternative treatments and lifestyle changes to combat the disease.
- πΎ Dr. Nelson advised them to eliminate gluten and certain grains from their diet, which they began to do, although not immediately.
- π The speaker's spouse was accustomed to bread, so they found gluten-free alternatives to maintain a semblance of normalcy in their diet.
- π¬ The speaker believes that dietary changes, particularly reducing grains and managing fungus, played a significant role in their lung health.
- πͺ They emphasize the importance of attitude, support from loved ones, and continuous effort in improving their quality of life despite ALS.
- π The speaker is hopeful about the future, looking forward to advancements in natural treatments and alternative therapies for ALS.
- π They encourage learning and studying alternative approaches to ALS, viewing these as blessings and potential paths to overcoming the disease.
Q & A
When did the individual first notice issues with swimming?
-The individual first noticed issues with swimming in the winter of 2010, when they started to lose their capacity to sustain a long swim.
What was the diagnosis given by the neurologist after the sleep study test?
-The diagnosis given by the neurologist after the sleep study test was ALS (Amyotrophic Lateral Sclerosis).
What was the prescribed treatment to help with sleep after the diagnosis?
-A BiPAP machine and supplemental oxygen were prescribed to help with sleep.
How does the individual's background as an engineer and inventor influence their approach to dealing with ALS?
-The individual's background in engineering and inventing has led them to view ALS as another challenge to solve, focusing on finding ways to handle the condition and make things work.
What dietary changes were suggested by Dr. Nelson to help combat ALS?
-Dr. Nelson suggested getting off gluten and avoiding certain grains, specifically mentioning that corn is highly inflammatory and often genetically modified.
What role does the individual believe fungus may have played in their lung issues?
-The individual believes that the consumption of breads containing yeast and sugar, which promote fungal growth, may have significantly contributed to their lung issues.
What resources did the individual find helpful in understanding the impact of grains on health?
-The individual found Dr. Perlmutter's book 'Grain Brain' to be a significant resource in understanding the impact of grains on health.
How does the individual describe the emotional journey of dealing with ALS?
-The individual describes the emotional journey as fluctuating between commitment to fight the disease and periods of doubt, frustration, and anger, emphasizing the need to find ways to control these emotions.
What is the individual's outlook on the future of ALS treatment?
-The individual is hopeful about the future of ALS treatment, believing in the potential for natural treatments and alternative therapies to improve the condition.
What does the individual see as a 'blessing' in their experience with ALS?
-The individual sees the 'blessing' in their ALS experience as the opportunity to learn about and study natural treatments and alternative therapies, which they believe can be part of the healing process.
What is the individual's ultimate hope regarding ALS?
-The individual's ultimate hope is to see a day when ALS is not a death sentence and that neurologists will have the foresight to understand and treat it beyond traditional methods.
Outlines
πββοΈ Struggling with ALS and the Journey to Healing
The speaker recounts their initial struggles with ALS, which began unknowingly before a formal diagnosis. In 2010, they noticed difficulty swimming, which was their regular exercise. After consulting with a neurologist following their 42nd wedding anniversary, they received an ALS diagnosis. They were prescribed a BiPAP machine for sleep apnea and supplemental oxygen. The speaker, an engineer and inventor by profession, approached ALS as another problem to solve. They began researching and changing their lifestyle, including dietary modifications like going gluten-free and avoiding grains. They also mention the importance of mindset and support from friends, family, and caregivers in their journey. The speaker expresses hope for the future, suggesting that natural treatments and alternative therapies could offer new solutions for ALS patients.
π The Blessing of ALS in Life
This paragraph is a brief reflection on how ALS, despite its challenges, has become a blessing in the speaker's life. It suggests that the experience of living with ALS has led to personal growth and a deeper appreciation for life, relationships, and the support of loved ones.
Mindmap
Keywords
π‘ALS
π‘Neurologist
π‘BiPAP machine
π‘Gluten-free diet
π‘Genetically modified
π‘Fungus
π‘Grain Brain
π‘Inflammation
π‘Mindset
π‘Alternative therapies
π‘Support system
Highlights
The individual's first problem was noticed during the winter of 2010 while swimming.
A neurologist was consulted after the 42nd wedding anniversary on November 22nd, 2011.
The diagnosis of ALS was given after a sleep study test in late January to February.
BiPAP machine and supplemental oxygen were prescribed to assist with sleep and breathing.
The individual experienced the longest nights of their life struggling with sleep.
The decision was made to actively fight against ALS rather than accepting it.
The individual's background as an engineer and inventor influenced their approach to ALS.
The importance of a positive attitude and the support of friends, family, and caregivers was emphasized.
Dr. Nelson suggested a gluten-free diet as part of the treatment.
The individual started with Pamela's gluten-free mix to make bread and biscuits.
Fungus issues were linked to dietary habits, particularly the consumption of bread and sugar.
The individual's lung issues were exacerbated by fluid buildup and fungal infections.
The journey to reduce grain consumption and adopt a healthier diet took about a year.
Dr. Perlmutter's book 'Grain Brain' was influential in changing dietary habits.
The transcript highlights the progress made by those who keep fighting and working on their health.
The individual expresses hope for the future, aiming to improve relationships and golf game.
There is optimism about the possibility of natural treatments and alternative therapies for ALS.
The transcript concludes with a call to learn and study alternative approaches to ALS treatment.
Transcripts
my first insistence probably started
long before I had any idea I had ALS my
first real problem for I was concerned
probably happened in the winter of 2010
when I found myself struggling to swim I
swam quite a bit as my form of exercise
and we had a lap pool that in a home
that I use a current pool and I realized
in probably mid winter of 2010 I was
starting to lose my chap acity to stay
to sustain a long swim we had our little
conference with a neurologist the day
after our 42nd wedding anniversary on
November 22nd 2011 at that time we were
given the diagnosis of ALS we actually
went in and had a sleep study test done
at the end of January into February and
were prescribed a BiPAP machine to help
us sleep we got that we got the
supplemental oxygen started using that
about the middle of January but just
before that I had a couple of longest
nights of my life where I just spent all
night sitting up in the chair just
guessing and fighting 3 all night long
probably one of the first things that
happened that really got us on the right
track at the restart discussions more
openly we decided that this was just not
something we wanted to accept we thought
that just got to be a way to handle
these kind of things and my experience
I'm an engineer I have started several
companies I'm also an inventor I've got
several patents and my whole life
history has been solving problems way
figuring out ways to make things work
and we decided this is just another
challenge between the people that we've
come in contact with and the route that
we took maybe isn't exactly the same
route that others should or could take
but it was it was an answer to prayer to
be able to find what he needed to start
the healing process and get that mind
going in the right direction you change
back and forth
you know you you make this commit and
say I'm gonna fight this thing I'm gonna
beat it and then all of a sudden you get
these weak points they kind of slip in
and I'm gonna strip into your life and
uh it's easy for somebody else to say
hey you can beat this but for some where
the ALS to continually believe that the
doubts came in and the frustrations come
in and the anger comes in and these
citizens should fight them but you have
to find a way to control them I talked
to dr. Nelson even before we went down
to meet him and he suggested that we
needed to get him off of gluten and he
suggested five grains he said corn corn
doesn't have gluten in it but corn is
highly inflammatory and 80 percent of
the corn grown in this country is
genetically modified so there you have
roundup in your corn that's really
delicious
you know taste it but it's certainly not
good for you so we you know we started
and it didn't come all at once
Kim was used to his breads I found a a
mix called Pamela's gluten-free so I
could make him biscuits and different
stuff and and it was clean enough
never never often enough but still as as
he had this fungus issue fungus is made
by yeast and you put yeast in breads and
when you make bread you add sugar to
make the yeast grow so every time we eat
breads and add all our jams or honey's
or whatever to it you're creating more
fungus and I think that was a big part
of his lung issue besides the fact that
it was filling with fluid
he had this lung issue so it's taken us
you know on a year to to really learn to
get off most of the grains getting dr.
promotors grain brain book was big those
that keep coming back those that keep
fighting those that keep working they're
making progress not all are necessarily
winning but all are improving their
lives they're improving the lies just
through the attitude through the concept
through the appreciation of friends
family and loved ones and caregivers and
we would have had these experiences I'm
not sure what lies ahead of us down this
road but it's exciting that's a sign to
look forward not just to improve
golf game but improve relationships and
I hope to see the day when ALS is not a
death sentence for anyone let alone just
those whose neurologists don't have the
foresight to understand beyond the end
of the nose now I think that they will
come and I think the possibility of it
coming through natural means through
natural treatments and alternative
therapies I think a lot of those things
are here and it's for us to learn them
for us to study them and that's part of
the blessing for ALS in our lives
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