Tourette Syndrome is...
Summary
TLDRThe video script discusses Tourette syndrome, a neurological disorder characterized by involuntary tics and vocalizations. The speaker shares personal experiences, from childhood struggles with bullying and misunderstanding to the realization of the condition's impact on daily life. They emphasize the importance of acceptance and understanding, highlighting the resilience and community support provided by the Tourette Association of America. The message encourages viewers to spread awareness and challenge misconceptions about disabilities.
Takeaways
- 🤔 Tourette syndrome is a medical condition characterized by involuntary sounds and movements known as tics.
- 🗣️ People with Tourette's may exhibit vocal tics such as clicking the tongue or barking, and motor tics like eye twitching or head shaking.
- 🙌 The individual with Tourette's describes the challenge of suppressing tics, which can lead to increased intensity when they do occur.
- 👦 The speaker was diagnosed at a young age and faced social isolation and misunderstanding, feeling like an 'alien'.
- 🏫 The condition can be particularly challenging in school environments where the individual may be singled out or bullied.
- 👨👦 The speaker's father had to explain the syndrome to others, emphasizing that it causes involuntary actions.
- 😅 Suppressing tics can be compared to holding in a sneeze, and it can be embarrassing when it fails in public.
- 🚇 The speaker recounts experiences of attracting unwanted attention and judgment from strangers on public transport.
- 🌟 Attending a conference for Tourette's was inspiring, as it provided a supportive community where tics were normalized.
- 💪 The importance of not judging people with disabilities is emphasized, and the speaker encourages understanding and acceptance.
- 📢 The Tourette Association of America offers support and community, and the speaker hopes to raise awareness about the syndrome.
Q & A
What is Tourette syndrome?
-Tourette syndrome is a medical condition characterized by involuntary sounds and movements known as tics, which individuals with the condition cannot control.
Can individuals with Tourette syndrome control their tics?
-People with Tourette syndrome often struggle to control their tics, and even when they try to suppress them, the tics may only come out more intensely later.
What kind of tics are described in the script?
-The script describes both vocal tics, such as making sounds or saying words, and motor tics, including physical movements like tongue clicking, knuckle cracking, head shaking, and even walking backward.
How did the speaker's tics affect their school life?
-The speaker was singled out and treated differently due to their tics, which led to feelings of being an alien and being bullied by peers.
What was the speaker's experience like when they were first diagnosed with Tourette syndrome?
-The speaker was out of school for weeks due to the severity of their tics, which caused both physical pain and emotional distress.
How did the speaker's father explain Tourette syndrome to them?
-The speaker's father explained that Tourette syndrome is a condition that causes them to do things they don't want to do, using the example of banging their teeth against the wall in an elevator.
What misconception did the speaker's son have about Tourette syndrome?
-The speaker's son mistakenly thought that Tourette syndrome was the reason for his father's action of pressing the elevator button, which was not related to the condition.
How did the speaker describe the experience of attending a conference for individuals with Tourette syndrome?
-The conference was described as inspiring, where kids with tics were not judged and could have fun with others like them, treating their tics as a normal part of who they are.
What is the speaker's message regarding people with disabilities?
-The speaker encourages people not to be afraid of or avoid those with disabilities, emphasizing that everyone has differences that make them unique.
What does the Tourette Association of America represent to the speaker?
-The Tourette Association of America represents support and community for individuals with Tourette syndrome, providing a sense of belonging and understanding.
What is the speaker's hope for those who watch the video?
-The speaker hopes that viewers will learn about Tourette's syndrome and share the information with three other people to raise awareness and understanding.
Outlines
🤔 Understanding Tourette Syndrome
This paragraph introduces Tourette syndrome as a medical condition characterized by involuntary sounds and movements known as tics. The speaker shares personal experiences of living with the condition, including instances of tongue clicking, knuckle cracking, and other tics that have sometimes been misunderstood or stigmatized. The speaker also recounts the emotional impact of being singled out and feeling alienated due to the condition, especially during childhood. The paragraph emphasizes the difficulty of suppressing tics and the frustration of being judged or bullied because of them.
Mindmap
Keywords
💡Tourette Syndrome
💡Involuntary
💡Tics
💡Diagnosis
💡Suppression
💡Bullying
💡Different
💡Support
💡Community
💡Awareness
💡Disability
Highlights
Tourette syndrome is characterized by involuntary sounds and movements known as tics.
Individuals with Tourette's may experience tics such as tongue clicking or knuckle cracking.
Tics can also manifest as eye twitching, head shaking, or even walking backward.
Suppressing tics can be difficult and may lead to more intense tics when released.
Tourette's can be a challenging condition, especially for a child, leading to feelings of alienation.
The speaker was diagnosed with Tourette's at a young age and faced significant challenges.
Tourette's can lead to social isolation and misunderstanding due to the involuntary behaviors.
The speaker's son initially misunderstood the concept of Tourette's, highlighting the need for education.
Tourette's can affect speech, causing word morphing or vocal tics.
Suppressing tics is compared to holding in a sneeze, emphasizing the involuntary nature.
The speaker experienced bullying and judgment due to their tics.
Attending a conference for Tourette's was inspiring and showed acceptance among peers.
The importance of not judging or avoiding people with disabilities is emphasized.
The Tourette Association of America provides support and community for those affected by Tourette's.
The speaker hopes to raise awareness about Tourette's syndrome through sharing personal experiences.
Tourette's is a condition that should not be a source of fear or avoidance.
Transcripts
Tourette syndrome is a medical condition
that
people live within their daily lives
they make involuntary sounds known as
tics it could be a sound or a movement
that the body cannot control I have this
one sometimes I click my tongue in the
back of my throat like this but not very
awesome and I constantly crack my
knuckles even if I did so they mostly
mostly would ask me like like why like
like why I'm lying my eyes keep
twitching or like we're asking or asking
me if like my let if I can stop like
moving might like the tics the ticks
were more that were more like the head
shaking as well barking I started taking
went for a while where I just stepped
backwards and walked backwards for a
couple of steps and then walk back I had
to take once when I was when I'd be
standing and I'd lift up my leg when I
was first diagnosed I was out of school
for weeks my tics were very high there
my vocal tics were elevated my motor
tics would really hurt me it was tough
you know
seven or so years old I was responding
well is this just gonna keep on no
hunger they like singled me out and and
tree didn't me more as you know it
basically almost as I was like an alien
in a sense and in it because at that
point in time I didn't really understand
much about what was happening you have a
seven year old when I take him to school
and I go down the elevator right before
we got on the elevator I'll take my
teeth and I'll bang my teeth against the
wall and he asked me what are you doing
dad so I said oh I have Suresh syndrome
is a condition that causes me to do
things I don't want to do and so it's
the funny thing is the other day he
comes up to me and we're standing there
and I don't
the elevator and he said it's a t8 into
your Tourette's and I'm like no it's not
it's not like that it didn't work that
way it's hard to suppress a dick and
even if you do suppress a tick when
you're done suppressing the tick they
only come out more I have some morph my
words instead of saying Bom Bom Bom I go
pop pop if I try to suppress them they
it doesn't work that's like trying to
hold in a sneeze young girls would laugh
kind of embarrassing for an adult to be
bullied by a young teenagers as a young
kid I would I you know take whatever it
was and immediately look around to see
who who noticed you know like as if it
really mattered and then so then you
really start to believe that you are
different I would be out on the subway
and attracting attention from other
people adults and like learning about
how cruel people can be seeing those
kids in DC at the conference treating
their tics as as something that was just
you know part of who they are was so
inspiring it's really cool kids don't
get judged there and they have fun with
other kids like them other than our tics
were normal or normal people because
everyone has their own things that may
then make them different from one
another and threats interests happens to
be one of those things for some people
don't be afraid of people with
disabilities just because someone has a
disability doesn't mean that you have to
avoid them I think the Tourette
Association of America means support and
community my hope is that everyone who
sees this video goes home and tells
three people about Tourette's syndrome
you
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