Mental Health by Dr Linda Kwakkenbos

Sjögren Europe
16 Apr 202423:53

Summary

TLDRThe speaker, a psychologist and behavioral researcher, discusses mental health in the context of chronic rare diseases, focusing on Scleroderma and similar conditions. She highlights the importance of holistic healthcare, explaining the biopsychosocial model and how mental health impacts patients' quality of life. The presentation emphasizes positive mental health, resilience, and the concept of positive psychology. Through interactive exercises, she encourages participants to reflect on their mental health and explore ways to improve it, offering practical tools like mindfulness and peer support. The session concludes with advice on how to enhance well-being through small, actionable steps.

Takeaways

  • 😀 The speaker is an assistant professor focusing on Scleroderma, a rare autoimmune disease, and highlights that principles in psychology for chronic rare diseases can be applied to other diseases.
  • 💡 Mental health is discussed in a positive way, not just focusing on challenges but also on psychological resilience and the capacity to adapt to life's difficulties.
  • 🧠 Health is redefined from the medical model (absence of disease) to 'positive health,' which emphasizes the ability to adapt and self-manage despite challenges.
  • 📊 Resilience is key in managing chronic diseases and mental health, defined as the ability to adapt successfully to difficult life experiences, and it can be cultivated and practiced.
  • 🌱 Mental health is more than the absence of illness; it's about enhancing life enjoyment and dealing with challenges. It involves thinking, feeling, and acting in ways that promote well-being.
  • ⚖️ The traffic light analogy is used to explain mental health, with green for well-being, orange for mental health issues, and red for mental illness.
  • 🔄 Positive psychology focuses on building well-being and resilience, while traditional psychology focuses on reducing symptoms. Both are important and often use similar techniques.
  • 🧩 People with rare diseases like Sjögren's often experience a significantly decreased quality of life, with depression and anxiety being more prevalent compared to the general population.
  • 👥 Peer support and communication with healthcare providers are important components of managing both physical and mental health, especially for people with chronic diseases.
  • 📝 The speaker introduces a reflective exercise where participants rate their control over their condition, encouraging small, actionable steps to improve mental health and resilience over time.

Q & A

  • What is the primary focus of Linda's research?

    -Linda's research primarily focuses on Scleroderma, a rare autoimmune disease. However, she mentions that some principles in psychology related to chronic diseases can be applied to other conditions, like Sjögren's syndrome.

  • What is the biopsychosocial model of health that Linda discusses?

    -The biopsychosocial model of health considers a person as more than just their biological condition. It includes their psychological health, social challenges, and the broader context in which they live, promoting holistic healthcare.

  • How does Linda define resilience in the context of chronic illness?

    -Resilience is defined as the process and outcome of successfully adapting to difficult life experiences, such as being diagnosed with a chronic illness. It involves mental, emotional, and behavioral flexibility and adjusting to both external and internal demands.

  • What is Linda's view on health in relation to people with chronic diseases?

    -Linda challenges the traditional view that health is merely the absence of disease. She supports the concept of 'positive health,' which is the ability to adapt and manage physical, social, and emotional challenges, even in the presence of chronic conditions.

  • What is positive psychology, and how does it differ from traditional psychology?

    -Positive psychology focuses on enhancing well-being and helping individuals flourish, even if they are not facing significant mental health challenges. Traditional psychology often addresses what is wrong and aims to reduce symptoms. Positive psychology aims to improve an individual's overall quality of life.

  • Why does Linda emphasize building resilience?

    -Linda emphasizes building resilience because it helps individuals with chronic conditions adapt and improve their mental health. Resilience can be cultivated through various strategies, leading to better coping mechanisms and a higher quality of life.

  • What exercise does Linda propose during her presentation to help participants reflect on their mental health?

    -Linda proposes an exercise where participants rate their current life situation on a scale from 0 to 10, where 0 means their condition completely controls their life, and 10 means they can live their life without being affected by their condition. Participants are then asked to reflect on why they chose that number.

  • What challenges do people with chronic conditions like Sjögren's face in terms of mental health?

    -People with chronic conditions like Sjögren's often face mental health challenges such as depression and anxiety. These issues are more prevalent among those with chronic diseases compared to the general population, and they can significantly affect quality of life.

  • What does Linda say about the relationship between physical activity and mental health?

    -Linda highlights that adopting a healthy lifestyle, including exercising and moving more, is beneficial not just for physical health but also for mental health. Even small activities like a brisk walk can positively impact mental well-being.

  • What strategies does Linda suggest for improving mental health in people with chronic diseases?

    -Linda suggests a variety of strategies, including mindfulness-based stress reduction, peer support, adopting a healthy lifestyle, and engaging with healthcare providers about mental health. She also recommends focusing on positive psychology practices to enhance resilience and well-being.

Outlines

00:00

🧠 Introduction to Mental Health and Scleroderma

The speaker, Linda, introduces herself as an assistant professor from the Netherlands, specializing in psychology with a focus on rare autoimmune diseases, particularly Scleroderma. She discusses the importance of understanding mental health in the context of chronic diseases and highlights the biopsychosocial model of care, which takes into account not just physical health but also psychological and social factors. The goal is to share insights on how mental health is vital for managing diseases like Sjögren's and how resilience and adaptability play key roles in the well-being of patients.

05:00

🌿 Resilience and Cultivating Mental Health

Linda defines resilience as the process of adapting successfully to life's challenges, including chronic illness. She explains that resilience can be both an innate trait and something that can be developed through practice. The speaker emphasizes the broader concept of mental health, not just focusing on mental health issues like depression and anxiety, but also on how individuals can enhance their well-being through emotional, mental, and behavioral flexibility. This positive approach to mental health highlights the importance of building resilience and improving quality of life.

10:02

🔍 Tools for Mental Health Improvement in Chronic Diseases

Linda shares strategies for addressing mental health challenges, especially in the context of chronic and rare diseases like Sjögren's. She advocates for using existing mental health tools available to the general public, such as mindfulness-based stress reduction, as a starting point. This can be supplemented by disease-specific strategies to manage the unique challenges faced by people with rare conditions. Linda stresses the importance of taking immediate action with accessible tools rather than waiting for specific interventions to be developed over many years.

15:13

💡 An Exercise in Mental Health Reflection

Linda introduces an interactive exercise designed to help participants reflect on how their condition affects their daily lives. She asks the audience to rate how much their condition controls their life on a scale from 0 to 10, where 0 means complete control and 10 means no control. This exercise encourages individuals to assess their own experiences and discuss with others why their chosen number isn’t a 0 or a 10. Through this reflection, participants gain insights into their own coping mechanisms and areas where they may need to improve their mental health.

20:15

🚶‍♀️ Taking Small Steps to Improve Mental Health

In the final part of her talk, Linda encourages participants to think about small, concrete steps they can take to improve their mental health. She introduces the 'miracle question,' which prompts people to imagine what their life would look like if their problem no longer existed, and to identify steps to move toward that ideal. The focus is on incremental progress, such as moving from a score of 4 to 4.5, by changing behaviors, thoughts, or feelings. Linda emphasizes the importance of both individual effort and support from loved ones in this journey.

Mindmap

Keywords

💡Mental Health

Mental health refers to the capacity of individuals to feel, think, and act in ways that enhance their ability to enjoy life and deal with challenges. In the script, the speaker emphasizes a positive approach to mental health, focusing not only on mental health issues like depression but also on cultivating resilience and emotional well-being.

💡Resilience

Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, such as being diagnosed with a chronic illness. In the script, resilience is described as mental, emotional, and behavioral flexibility in response to external and internal demands. The speaker explains that resilience can be built and practiced over time.

💡Biopsychosocial Model

The biopsychosocial model is an approach to healthcare that considers not just biological factors but also psychological and social influences on health. The speaker advocates for this holistic model, emphasizing how psychological and social challenges, in addition to biological issues, contribute to a person's overall well-being, particularly in the context of chronic diseases.

💡Positive Health

Positive health is defined as the ability to adapt and self-manage in the face of social, physical, and emotional challenges. The speaker highlights this concept as a shift away from the traditional medical model, which views health solely as the absence of disease. Positive health is about thriving despite a chronic illness, and it is linked to resilience and self-management.

💡Sjögren’s Syndrome

Sjögren’s syndrome is a chronic autoimmune disease that affects moisture-producing glands, often leading to dry eyes and mouth. The speaker discusses the mental health challenges faced by people with Sjögren’s, noting that depression and anxiety are more prevalent in this group than in the general population. Improving the quality of life for these patients is a key focus.

💡Chronic Disease

A chronic disease is a long-lasting condition that requires ongoing management. The speaker addresses how chronic diseases like Sjögren’s or scleroderma impact not only physical health but also mental and emotional well-being. The speaker encourages a holistic view, integrating psychological care into the treatment of chronic conditions.

💡Positive Psychology

Positive psychology focuses on improving well-being and helping individuals flourish, rather than merely addressing problems. In the script, the speaker discusses how techniques from positive psychology can be applied to help people with chronic illnesses improve their quality of life by enhancing their emotional and mental resilience.

💡Quality of Life

Quality of life refers to an individual's overall well-being, including physical health, psychological state, level of independence, social relationships, and relationship to their environment. The speaker notes that people with chronic illnesses like Sjögren’s experience a significantly reduced quality of life, which necessitates targeted interventions to improve their daily functioning.

💡Mindfulness-Based Stress Reduction (MBSR)

MBSR is a therapeutic program that uses mindfulness to help people cope with stress, pain, and illness. The speaker recommends MBSR as a tool that can help people with chronic diseases, including rare conditions like Sjögren’s, to manage their mental health and emotional well-being.

💡Self-Management

Self-management refers to an individual's ability to manage the symptoms, treatment, physical and psychosocial consequences, and lifestyle changes inherent in living with a chronic illness. The speaker emphasizes the importance of self-management in the concept of positive health, where individuals are encouraged to adapt and manage their condition actively.

Highlights

Introduction of Linda Quos, an assistant professor from the Netherlands, focusing on Scleroderma, a rare autoimmune disease.

Emphasis on applying psychological principles from chronic rare diseases like Scleroderma to other diseases such as Sjogren's syndrome.

Mental health is discussed from a positive perspective, highlighting the importance of addressing both mental health issues and building resilience.

Introduction of the biopsychosocial model of health, which considers the psychological and social aspects, not just the biological challenges.

Discussion of the shift from the traditional medical model of health, which defines health as the absence of disease, to a more positive health definition focused on adaptability and self-management.

Introduction of the concept of resilience as the ability to adapt successfully to challenges like chronic diseases, emphasizing that resilience can be built and cultivated.

Mental health is framed as a capacity to enjoy life and manage challenges, not just the absence of mental illness.

Introduction of a traffic light model of mental health, with green representing flourishing, orange for mental health issues, and red for mental illness.

Positive psychology is discussed as a movement to not only reduce symptoms but to enhance well-being and resilience, even when individuals are doing relatively well.

Key finding: People with primary Sjogren's syndrome have significantly decreased health-related quality of life, similar to other chronic inflammatory diseases like rheumatoid arthritis and lupus.

The prevalence of depression and anxiety is approximately three times higher in people with Sjogren's syndrome compared to the general population.

Challenge: Conducting well-designed, large-sample studies for rare diseases like Sjogren's is difficult, but there is a need for targeted interventions to improve quality of life.

Linda proposes a framework for mental healthcare tools, starting with general mental health strategies like mindfulness-based stress reduction and progressively addressing challenges related to chronic and rare diseases.

Interactive exercise: Attendees are asked to rate how much their condition controls their life on a scale from 0 to 10, leading to discussions on how different perspectives impact mental well-being.

Recommendation: Attendees are encouraged to take small, concrete steps to improve mental health, aiming for gradual progress rather than drastic changes.

Final takeaway: Tools such as mindfulness, peer support, and guided relaxation techniques can help improve mental health and resilience in those living with chronic diseases like Sjogren's.

Transcripts

play00:00

I'm very grateful that we can have uh

play00:03

now uh Linda

play00:06

quos also from the Netherlands and she

play00:09

is a uh professor of the assistant

play00:13

professor of the University of n the

play00:16

rbout and she was to told something

play00:19

about mental health yes thank you thank

play00:21

you very for the very nice introduction

play00:23

and also for having me and for all the

play00:25

insights that I have gathered already on

play00:27

showrun because as you can see uh here

play00:30

on the bottom line under my name my work

play00:33

mainly focused around Scleroderma which

play00:35

is another rare autoimmune disease which

play00:37

some of you may know um but I think that

play00:41

like saurin said some of the general

play00:42

principles that we use in Psychology um

play00:46

in um in chronic diseases especially

play00:48

chronic rare diseases can be transferred

play00:50

to other diseases such as sug so uh I'm

play00:54

learning a lot but I hope that I can

play00:55

also give you some insight in mental

play00:57

health and psychology

play01:00

I am a psychologist by training and a

play01:01

behavioral researcher and I was very

play01:03

happy to find saurin because he is in

play01:05

the same boat with me um in uh in that

play01:08

respect and I'm going to speak about

play01:10

mental health about mental health in a

play01:13

positive way and about a little bit

play01:15

about mental health

play01:18

issues um and just a disclaimer in

play01:20

addition to telling you about mental

play01:22

health I also have a small exercise

play01:24

because I know that about 5% of what I

play01:27

will tell you you will remember after

play01:28

this presentation but but about 75 to

play01:31

90% of what you experience you will be

play01:33

remembering after this presentation so

play01:35

uh be aware uh there's no test but it's

play01:38

a small exercise that I will walk you

play01:39

through I do not have any

play01:42

disclosures um when you walk into the

play01:45

doctor's office or as a doctor clinician

play01:48

when the patient Works walks into your

play01:50

uh office what do you see do you see a

play01:53

patient a sugr patient or do you see a

play01:56

person who has sugrin but also has a lot

play01:59

of other things in addition to this bi

play02:01

biological challenge it's also a person

play02:04

with um uh psychological challenges uh

play02:07

but also psychological Health Social

play02:09

Challenges and health uh who lives in a

play02:11

certain context I see that the um uh the

play02:14

corners of the and the colors is not

play02:16

really visible uh um but these are like

play02:18

little circles that all constitute the

play02:21

person with a certain

play02:25

disease the bioc psychosocial model of

play02:28

health and holistic Healthcare and I

play02:30

think they go hand handin hand and if

play02:32

you look at EUR this um they also made

play02:35

priority of holistic care and holistic

play02:38

Healthcare and you may be surprised that

play02:40

when I'm at UL or at ACR or another

play02:43

rheumatology conference that I'm one of

play02:44

the few psychologists actually who is

play02:47

present there whereas for you as

play02:49

organizations this is such an important

play02:51

topic um not to say that all of the

play02:54

medical research and uh advances are not

play02:57

important but this is another important

play02:59

part of healthare for people with

play03:06

children so when thinking about health

play03:09

and mental health how would you actually

play03:11

Define health and I'm giving you a

play03:12

moment to think about it yourself if you

play03:15

think about health what is health to

play03:20

you anyone who would like to

play03:25

share what does Health mean that I that

play03:28

I can do what I want yeah that you can

play03:30

do what you want yeah yeah thank you

play03:33

same for you yeah good quality of life a

play03:36

good quality of life yeah yeah

play03:39

nice from morning till night wow yeah

play03:42

thank you thanks for sharing that yeah

play03:44

and actually for the longest period of

play03:46

time the healthc care system has been

play03:47

focusing on the medical model of Health

play03:49

until approximately 1977 the medical

play03:52

model of Health where Health was the

play03:54

absence of disease so that means that

play03:57

when you have a disease or when you have

play03:58

sug for instance you will not never be

play04:01

healthy again I tend to disagree and

play04:04

luckily many with us because there's

play04:05

also something called positive health

play04:07

and maral Huber also from the

play04:08

Netherlands by the way she came up with

play04:10

an other definition of health and she

play04:12

said health is the ability to adapt and

play04:15

to self-manage in the face of social

play04:18

physical and emotional challenges and

play04:20

I'm teaching my third-year psychology

play04:22

students this because they still while

play04:24

we all talk about like the

play04:25

biopsychosocial model they still have

play04:27

this like internal idea like if someone

play04:29

is ill you cannot be healthy right but

play04:32

there's many things of positive Health

play04:34

uh Health adaptation and self-management

play04:37

that you could still build and some of

play04:39

this is related to the concept of

play04:42

resilience and resilience basically is

play04:44

defined as the process and outcome of

play04:47

successfully adapting to difficult or

play04:49

challenging life experienes such as

play04:51

getting a diagnosis with sugar

play04:54

especially through mental emotional and

play04:56

behavioral flexibility and adjustment to

play04:57

external and internal demands wow that's

play05:00

quite a mouthful but what basically the

play05:02

idea is is that you can build resilience

play05:06

like we all have a certain level of

play05:08

resilience already based on our uh life

play05:12

challenges that we've already had our uh

play05:15

youth um our um personality traits Etc

play05:18

but you can also cultivate and practice

play05:21

resilience improving your mental health

play05:23

or cultivating your mental health and I

play05:26

think this is a really important

play05:28

component of what I would like to

play05:30

discuss today in uh in this

play05:34

presentation so I've given you a

play05:36

definition of resilience I've given you

play05:38

a definition of Health but what actually

play05:41

is mental health and often if we talk

play05:43

about mental health we think about

play05:45

challenges mental health challenges

play05:47

mental health issues depression anxiety

play05:50

Etc but it's much broader it's a much

play05:52

broader concept looking again not at the

play05:54

disease side of it but at the health

play05:57

side of it so Mental Health is the

play06:00

capacity of every individual to feel

play06:02

think and act in ways that enhance their

play06:05

ability to enjoy life and deal with

play06:06

challenges so again very positively

play06:09

connotated um uh positive sense of

play06:11

emotional and spiritual well-being uh in

play06:14

someone's

play06:16

context so thinking about this a little

play06:19

bit more you could come up with this

play06:21

kind of like I it's like traffic light

play06:23

colors I don't know if you can see it

play06:25

but like the green on top mental health

play06:27

you have the capacity to think feel and

play06:30

act in ways that uh enhance your ability

play06:32

to enjoy life deal with your challenges

play06:35

and it doesn't mean that there are no

play06:36

challenges it basically means that you

play06:39

suffer your losses and you pull yourself

play06:40

back up again so that is mental health

play06:44

on the complete below spectrum is mental

play06:47

illness depression anxiety uh conditions

play06:50

that really affect your thinking feeling

play06:53

uh your mood and behavior and then

play06:56

somewhere in between is where I would

play06:59

think um many people with a chronic

play07:01

disorder sometimes um uh are situated

play07:04

the mental health issues it's not what

play07:06

we call in Psychology Psychopathology

play07:08

it's not mental health uh Mental Illness

play07:11

but you have diminished capacities that

play07:13

interfere with your enjoyment of life um

play07:16

and that interfere with your ability to

play07:18

rebound or recover from losses or

play07:20

challenges so that's the orange part of

play07:22

this uh uh traffic

play07:26

light still with me yep

play07:30

good just a check and then if you think

play07:33

about psychology there's also this

play07:35

movement from the traditional

play07:37

psychological approaches that basically

play07:40

speak about something is not going well

play07:42

something is wrong and you're trying to

play07:44

reduce the symptoms and prevent it from

play07:46

getting worse so basically something is

play07:48

going wrong and you're making it normal

play07:51

again very important I'm not saying that

play07:53

one is more important than the other but

play07:55

there's also a newer tradition on

play07:57

positive psychology and that means

play08:00

you're already doing quite well but you

play08:02

can still improve you can improve your

play08:04

well-being you can flourish you can uh

play08:07

um uh um strengthen your character and

play08:11

build even more resilience and um uh

play08:15

they kind of like go hand inand and the

play08:17

techniques that we're using in

play08:18

Psychology may be quite similar actually

play08:21

um in both Traditions but it's really a

play08:24

bit of a mindset and a change in

play08:25

thinking about health and also our

play08:27

Mental Health

play08:30

I did put one slide with some Su uh uh

play08:33

information um and uh only one slide

play08:36

because I think that um uh this uh um

play08:39

these two points are important or

play08:41

actually the three points that are

play08:42

listed here are important first of all

play08:45

we're not talking about quality of life

play08:47

here because it's not important in

play08:48

people's uh life and people with primary

play08:51

Sugar's life we actually see that people

play08:53

with primary sugar have significantly

play08:56

decreased health related quality of life

play08:58

and it's actually simp similar if you

play09:00

compare on the different aspects of

play09:01

quality of life to other chronic

play09:03

inflammatory diseases such as rheumatoid

play09:05

arthritis or

play09:07

lupus the prevalence if we talk about

play09:10

mental illness the prevalence of

play09:11

depression and anxiety are approximately

play09:13

three times higher in people with Su

play09:16

than in the general population so this

play09:18

is a really important topic to keep in

play09:20

mind in our research programs but also

play09:22

in our care for people with uh with

play09:26

Su actually I found this nice quote and

play09:29

I put it here is that um because this

play09:31

quality of life is diminished it

play09:33

suggests that targeted intervention

play09:35

should be carried out to improve health

play09:36

related quality of life I agree but it's

play09:39

very hard to do that in a rare disease

play09:42

um and future well-designed and well-

play09:43

conducted studies with larger sample

play09:45

sizes may be required I also agree but

play09:47

again it's really hard to do that in a

play09:49

rare disease so I also start thinking

play09:51

about like what can we learn from what

play09:53

is already available in terms of

play09:54

interventions rather than wait for 10 20

play09:57

years to things to be developed because

play09:59

in my opinion if you think about Mental

play10:02

Health Care tools you can start with

play10:04

tools that basically are available to

play10:06

anyone in the general public mindfulness

play10:08

Bas stress reduction for instance then

play10:11

on top of that there are challenges that

play10:13

you have to deal with if you are F

play10:16

coping with a chronic disease any

play10:17

chronic disease can be diabetes can be

play10:19

sugar can be Scleroderma rheumatoid

play10:21

arthritis then on top of that there's

play10:24

the challenges of living with a rare

play10:25

disease like Su or Scleroderma and and

play10:29

then on top of that are disease specific

play10:32

uh uh issues that may be targeted if you

play10:34

start with the top and I'm not saying

play10:36

that that isn't a good approach you're

play10:38

actually a long way out of making tools

play10:41

available for people with

play10:43

shrs um I'm am very dedicated to to

play10:46

building that and to building that

play10:47

framework and to see where there's

play10:48

adaptations necessary but also think

play10:51

that we shouldn't wait for so many years

play10:52

to give you some tools and some examples

play10:54

of what you can do to improve mental

play10:57

health so that is the next part of my

play10:59

presentation and the exercise is coming

play11:01

up so just a

play11:04

reminder so tips and resources lifestyle

play11:08

I actually put quite some uh slides on

play11:10

lifestyle and then I saw that tomorrow

play11:12

there's a colleague of mine who's going

play11:14

to speak a lot about lifestyle lifestyle

play11:15

medicine adopt a healthy lifestyle may

play11:18

sound like an Open Door um but actually

play11:21

exercising moving more sitting less uh

play11:24

is very good for not only our physical

play11:26

health but also for all our Mental

play11:28

Health

play11:30

even a small like brisk walk like every

play11:32

movement counts peer support um and I

play11:36

think just by being here together and

play11:38

like all of your organizations you're

play11:39

taking very good care of uh that part

play11:43

already um it's helping for emotional

play11:46

support inform informational support

play11:48

like letting people know and navigating

play11:50

the health system as well as tangible

play11:52

support just um practically you can help

play11:55

each each other

play11:57

out talk with your healthcare provider

play11:59

about mental uh uh Health uh there are

play12:01

some tips in this link that I put here

play12:04

um but also the Dutch have a very nice

play12:06

uh um conversation card that you could

play12:09

actually download and bring uh to your

play12:10

Healthcare appointment uh and uh find

play12:13

information and support from trustworthy

play12:15

sources so these are very generic tips

play12:18

that uh uh that you could

play12:20

use okay so now for this small exercise

play12:25

and um I already said that uh this is um

play12:28

um an exercise from the positive

play12:31

psychology to make you like kind of like

play12:33

feel how a different outlook on your

play12:36

condition may affect your mental health

play12:39

and uh your view on uh uh on daily life

play12:43

so I would like to ask you if whether

play12:45

you have sugar another condition or if

play12:48

you don't have any uh um condition think

play12:50

about any problem that may interfere

play12:51

with your life so rate yourself on a

play12:54

zero to 10 skill you have a very nice

play12:55

notepad you can write it down or you can

play12:57

just remember it where zero is is my

play12:59

condition totally controls my life and

play13:01

makes it impossible for me to live my

play13:04

life all at at all in the way that I

play13:06

want to and 10 is very positive I can

play13:09

live my life the way I want to and my

play13:11

condition does not affect that so take a

play13:13

moment to think about it where on this

play13:15

skill would you

play13:21

be good got it yeah

play13:26

okay so now the next step is to think

play13:28

about about why is it the grade that you

play13:30

chose and why is it not a 10 unless

play13:33

someone had a 10

play13:36

but so why is it a grade that you chose

play13:39

and why is it not a

play13:49

10

play13:51

ready

play13:53

yeah why is the grade that you chose and

play13:56

not a zero

play14:10

got

play14:10

it okay so here is actually a bit of

play14:14

time for uh discussion I'm I'm doing

play14:16

well for time right so um let's take two

play14:19

minutes to discuss the difference in

play14:22

experience with your neighbor so the

play14:23

difference between comparing the number

play14:25

with a zero and comparing the number

play14:27

with a 10 so two minutes to discuss and

play14:30

then I would like to hear back what you

play14:33

found out

play15:12

borrow this one

play15:58

my

play16:00

all

play16:02

right all

play16:04

right let's um let's move

play16:12

on there are a lot of

play16:18

um there are a lot of nice

play16:24

discussions I'm are you done yeah yeah

play16:29

so thanks um thanks for all the nice uh

play16:32

discussions also in the back can we

play16:36

um yes

play16:39

yeah okay so I um I'm actually I'm

play16:43

actually interested to hear some of your

play16:46

experiences is there anyone who would

play16:48

like to tell me like how does it make

play16:50

you feel how was it to do this exercise

play16:54

yes thank you

play16:57

uh with it's difficult yes it's

play17:01

difficult first of all to understand the

play17:04

meaning and you need to be honest with

play17:08

yourself to understand how the others

play17:11

react and how the others uh um affect

play17:17

your

play17:18

feelings um we were discussing with the

play17:21

girls here and we say that it's hard for

play17:24

the others to understand how the

play17:27

patients with SH disease

play17:30

feel H because we have to put some

play17:35

limits on our daily lives and the others

play17:39

cannot understand even

play17:41

though as much as they want to

play17:44

understand you they can't even our

play17:46

partners who live with us in a daily

play17:49

basis and at night and they feel and

play17:52

they understand how we feel and how hard

play17:55

we try sometimes to go through the day

play17:59

um even though our partners there are

play18:02

times that they can't um a lot of people

play18:07

think or feel that we exaggerate on our

play18:12

feelings or maybe we are Bor to do

play18:16

something or we are not interested and

play18:20

they don't understand that it's our

play18:22

limits for the day we can't go

play18:25

through um more than we do because if we

play18:32

do um we will have

play18:36

consequences thank you yeah yeah thank

play18:39

you thank you for sharing that so it's

play18:40

also very important and I think uh you

play18:42

you pointed it out to communicate with

play18:44

the people around us and to help them

play18:46

understand what you're going through

play18:47

yeah thank you were there any insights

play18:49

from this exercise that someone would

play18:51

like to share how is it to compare it

play18:54

with a Zero versus a 10 where you are

play18:56

right now yeah

play19:01

um I felt like when I compared myself to

play19:04

a zero I was thinking of all the things

play19:06

that are positive and that I am capable

play19:08

of doing um that get me to the number I

play19:12

felt I was at um versus When comparing

play19:14

myself to ATT 10 I'm thinking about what

play19:16

are all the things I can't do so

play19:18

thinking more negatively about you know

play19:21

how it how it impacts me in a negative

play19:23

way so one was more positive I felt than

play19:26

the other

play19:30

thank you thanks three minutes okay I

play19:33

have uh I'm I'm doing well for time were

play19:35

there any other experiences or is it

play19:37

like General agreement I just leave this

play19:41

here because otherwise I look like I'm

play19:42

singing a song which I am not I will not

play19:45

bother you with that yeah so on the one

play19:47

side if you look at the uh zero it makes

play19:49

you feel quite positive but all the

play19:51

things that you can do and the 10 about

play19:53

the things that you find struggle with

play19:55

of doing or what we say in like more

play19:56

positive psychology focus on the flowers

play19:58

not on the weeds that are in your garden

play20:02

but then like it's easier said than done

play20:04

right so how do you actually do that

play20:06

first by hopefully remembering this this

play20:08

exercise and sometimes looking at what

play20:10

the zero would be but also how do you

play20:12

take steps what if

play20:14

your initial number was for instance a

play20:17

four or the number of your um Pier was a

play20:21

four and you would actually like to

play20:23

improve and move towards that then how

play20:26

would you do that um it's actually a

play20:29

first step to think about like if I

play20:31

would move from a four to a four and a

play20:33

half and imagine think about like that's

play20:35

a really small step which also makes it

play20:38

more

play20:39

attainable what would I need to change

play20:41

in my behavior what would I need to

play20:43

change in my feelings and what would I

play20:45

need to change in my thoughts so how can

play20:47

I go from a four to a four and a half

play20:51

and it's a very difficult question and I

play20:52

know that I'm challenging you with these

play20:54

with these questions but it also helps

play20:56

you make the step from a four to a four

play20:58

and a half and the changes that you

play20:59

would like to make in your life towards

play21:01

a more positive mental health very

play21:03

concrete and actionable so things that

play21:06

you can actually do small things that

play21:07

you can do in the next week or the weeks

play21:10

after to improve your mental uh Health

play21:13

going from four to a four and a half

play21:16

maybe to a five to a five and a half

play21:19

Etc also think about like what it means

play21:21

for yourself but also what it means for

play21:22

your surroundings so um it's not just uh

play21:26

uh you but also your family Partners

play21:30

Etc another thing that you could do to

play21:33

think about like how can I move up on

play21:35

that scale um if you would want to is

play21:38

like the miracle question and a miracle

play21:40

question basically is if your problem

play21:42

would not exist anymore what would your

play21:44

life look like so what would you do how

play21:47

would you feel what would you think so

play21:50

that is your 10 maybe and what actions

play21:53

can you take yourself or with support of

play21:56

others to help go up high that point or

play21:59

one point so small steps moving from

play22:01

where you were towards the 10 uh looking

play22:04

at what you can still do so why it's not

play22:06

a zero but also what you would like to

play22:08

attain and this is actually um very

play22:11

classical exercise that is helpful for

play22:14

those who are in like the orange Zone

play22:16

with like me some mental health issues

play22:17

but also in the green zone because in

play22:19

the green zone doesn't mean that you're

play22:21

necessarily at a 10 there may be room to

play22:22

grow and to flourish and to improve your

play22:26

well-being then there's some tips and

play22:28

resources for mental health issues um uh

play22:31

for if you're in the red and I think

play22:32

it's really important to mention that uh

play22:34

there's disease specific but also many

play22:36

generic programs and interventions that

play22:38

could be available in your local setting

play22:41

uh such as mindful mindfulness based

play22:43

stress reduction that you could follow

play22:45

they may not be specific to sugr but in

play22:48

my um experience people like who give

play22:51

trainings are very open to adapting if

play22:54

needed to your personal needs um that's

play22:57

not only for people with SU but there's

play22:59

many other people who have like back

play23:01

problems or other reasons they cannot

play23:03

follow the the classic traditional

play23:05

program so be open to speak about that

play23:08

there's things you could do in terms of

play23:09

relaxation guided breathing guided

play23:11

imagery and I've put two links up here

play23:13

and this the slides will be uh shared I

play23:15

I know that you can uh look at and get a

play23:18

refer to to a mental health professional

play23:20

if needed don't um uh walk around with

play23:23

your problems for too long ask for help

play23:26

try to uh accept that sometimes you're

play23:29

in the red you want to go back to the

play23:31

orange or the green and you may need a

play23:33

bit of help to get

play23:35

there so thank you very much for

play23:38

participating and I hope that this gave

play23:40

you some insight in what psychology

play23:42

could uh could mean and contributes to

play23:44

improving quality of life and thank you

play23:46

again for the organization for having me

play23:49

thank you

Rate This

5.0 / 5 (0 votes)

Etiquetas Relacionadas
mental healthpsychologychronic illnessresiliencepositive healthpsychosocial modelwell-beingrare diseasesself-managementquality of life
¿Necesitas un resumen en inglés?