Perawatan Paliatif Rachel House

Summary

This transcript highlights the importance of palliative care in enhancing the quality of life for patients with terminal conditions. It showcases the emotional and psychological support offered to both patients and their families, as well as the dedication of healthcare workers. The story emphasizes how palliative care goes beyond just medical treatments by providing comfort, easing pain, and addressing the emotional needs of patients. The narrative also explores the challenges faced by families during the pandemic and the role of palliative care in offering support during difficult times, ultimately improving the lives of patients and their loved ones.

Takeaways

• 😀 Palliative care is focused on improving the quality of life for patients by relieving symptoms and managing pain, especially in the final stages of illness.
• 😀 The role of healthcare professionals in palliative care extends beyond medical treatment, addressing psychosocial and emotional needs of both patients and families.
• 😀 There is a common misconception about palliative care, with many associating it solely with end-of-life care, leading to resistance in accepting it.
• 😀 Palliative care does not mean giving up on the patient; it can be provided alongside curative treatments to improve comfort and manage symptoms.
• 😀 The healthcare system in Indonesia still prioritizes curative care, but palliative care is becoming more recognized, with a focus on providing better support for patients with chronic and terminal conditions.
• 😀 During the pandemic, many patients faced challenges due to the fear of hospital environments, leading to an increased need for home-based palliative care.
• 😀 Family involvement is crucial in palliative care, with a strong emphasis on empathy and support as families cope with the reality of losing a loved one.
• 😀 Nutrition plays a vital role in the health of palliative care patients, with teams providing essentials like milk and pampers to maintain hygiene and minimize the risk of infections.
• 😀 The healthcare team at Rumah Rachel collaborates closely with families, guiding them in caring for children with chronic or terminal illnesses at home, often reducing the need for hospital visits.
• 😀 Despite the emotional challenges, healthcare providers in palliative care find pride in improving patients' quality of life, ensuring they are surrounded by family and comfort in their final days.

Q & A

What is the primary focus of palliative care for children?

Palliative care for children focuses on relieving pain and symptoms to improve the quality of life for patients, while also addressing psychosocial and emotional needs, ensuring comfort for both the patient and their family.

How does palliative care differ from curative treatment?

Palliative care is not about curing the disease but about improving the quality of life by managing symptoms and providing emotional and psychosocial support. Curative treatment, on the other hand, focuses on attempting to cure the illness.

What challenges are faced by families when it comes to palliative care?

Families often face challenges related to the misconception that palliative care is only for end-of-life stages. There is a fear of accepting it because they may perceive it as giving up hope for recovery, and they may still wish for curative treatment.

Why is there a lack of palliative care services in Indonesia?

Palliative care in Indonesia is still relatively new, having only been recognized since 2007. The healthcare system is more focused on curative treatments, and the number of healthcare workers is limited, leading to insufficient availability of palliative care services.

What role does empathy play in palliative care?

Empathy plays a crucial role in palliative care as it allows healthcare providers to understand the emotional and psychological struggles of patients and their families. It helps in providing compassionate care that not only addresses physical symptoms but also emotional pain.

How do healthcare providers cope with the emotional challenges of palliative care?

Healthcare providers cope by focusing on the quality of life for their patients, creating a supportive and empathetic environment, and finding fulfillment in helping patients experience comfort and happiness during their final days.

What practical steps are taken to ensure patients' comfort during palliative care?

Practical steps include providing proper nutrition, such as milk and supplements, maintaining hygiene, using diapers to prevent infections, and ensuring a clean environment, especially for patients with compromised immune systems.

How has the COVID-19 pandemic affected the delivery of palliative care?

The pandemic has complicated the delivery of palliative care, as families are hesitant to visit hospitals due to the risk of infection. It has also led to financial difficulties for families, as many have lost their jobs, making it harder to manage the costs of care.

What is the emotional impact on children receiving palliative care?

Children receiving palliative care often fear the prospect of death, not for themselves, but for the impact it will have on their families. They worry about leaving their parents and loved ones behind, which can cause emotional distress even when they are not afraid of dying.

How do healthcare providers address the trauma of medical procedures for children in palliative care?

Healthcare providers use strategies such as involving children in the process, explaining procedures in a way that they can understand, and using comforting techniques to reduce fear and anxiety. This helps to minimize the trauma of medical procedures and allows children to feel more in control.