Another Honest Update

Living Well with Schizophrenia
28 Feb 202423:50

Summary

TLDRHannah provides a two-month update on her experience using the ketogenic diet and metabolic therapy to treat her schizoaffective disorder. She reports feeling incredibly stable with a huge improvement in her mental illness symptoms and capacity to handle stress. Her husband Rob, who is doing the same intervention but doesn't have a diagnosed mental illness, mainly notices physiological changes like faster recovery from workouts. They clarify that this is Hannah's personal medical decision that she is choosing to share publicly, not a recommendation for viewers. Next they plan to explore other metabolic therapies like exercise, sleep, and social engagement.

Takeaways

  • 😊 Hannah and Rob provide an update on their experience with the keto diet after 2 months
  • 😣 Taking exogenous ketones knocked them out of ketosis temporarily
  • 🤔 Hannah believes negative responses to the project may come from people happy with their meds
  • 😊 The keto diet is Hannah's personal treatment choice that she's sharing publicly
  • 👍 Rob notices faster body recovery times and less inflammation on keto
  • 👍 Hannah and Rob haven't gotten sick despite kids getting ill
  • 😊 Hannah has greatly increased capacity to handle stress on keto
  • 🤔 Rob focuses more on physiological changes from keto
  • 😊 People notice Hannah's excessive blinking is diminished on keto
  • 😀 Hannah and Rob will explore other metabolic therapies like exercise and sleep

Q & A

  • What happened when Hannah and Rob took exogenous ketones?

    -When they took exogenous ketones, their blood sugar spiked and they were knocked out of ketosis. Hannah started experiencing symptoms of psychosis very rapidly afterwards.

  • Why was Hannah surprised by some of the negative responses to her keto project?

    -Hannah was surprised because she is simply sharing her personal experience trying keto as a treatment option for her mental illness. She is not expecting or telling anyone else to follow the same path.

  • What are some of the positive effects Rob has noticed from the keto diet?

    -Rob has noticed reduced inflammation, faster recovery after workouts, not getting as sick when kids have illnesses, and increased energy levels.

  • How has the keto diet impacted Hannah's capacity to deal with stress?

    -Hannah feels she has much more capacity to deal with intense psychological stress without triggering increased symptoms of her mental illness.

  • What percentage has Hannah reduced her antipsychotic medication dose?

    -Hannah has reduced her antipsychotic dose by 40%. She is now at the lowest dose she has ever been on.

  • What kinds of metabolic therapies will they focus on next?

    -Next they will focus on exercise, sleep, social engagement, and other metabolic therapies for improving metabolic health.

  • What is Hannah's excessive blinking caused by?

    -Hannah's excessive blinking is a form of tardive dyskinesia caused by long-term use of antipsychotic medication.

  • Has Hannah's excessive blinking changed on the keto diet?

    -Yes, people have noticed Hannah's excessive blinking seems to be diminished overall on the keto diet.

  • How does Rob deal with stress compared to Hannah?

    -Whereas stress triggers increased symptoms for Hannah, Rob mainly deals with stress through feeling tired/fatigued and needing to sleep more.

  • How long have Hannah and Rob been on the keto diet so far?

    -At the time of this video, Hannah and Rob were about 2 months into following the keto diet.

Outlines

00:00

😊 Introducing the keto project for treating mental illness and initial experiences

This first paragraph introduces the keto and metabolic therapy project that Kristi and Rob have started about 2 months prior. The goal is to see if the keto diet and other metabolic therapies can be an effective treatment for Kristi's schizoaffective disorder. They provide some initial experiences, including tracking ketone levels, accidentally getting knocked out of ketosis, and some initial mental health improvements Kristi has seen.

05:01

😊 Clarifying that the keto project is a personal medical choice

Kristi clarifies that trying the keto diet as a treatment for her mental illness is a personal medical choice, and she is not saying viewers need to do the same. She explains it's like a case study she is sharing in case it helps others. Rob also notes this was never suggested by doctors as a treatment option.

10:03

😀 Feeling good mentally and physically so far into the project

This paragraph focuses on the positive improvements both Kristi and Rob have seen so far two months into the keto project. This includes mental health and capacity improvements for Kristi, and physical benefits like recovery, inflammation reduction, and lack of sickness for Rob.

15:04

😊 Clarifying some areas of improvement and future plans

Here Kristi and Rob cover some final topics like Kristi's reduced medication dosage, speculation on why she hasn't gotten sick, updates on Rob's digestion, the stress capacity improvements Kristi has seen, and what content is coming up next on the keto therapy journey.

Mindmap

Keywords

💡ketogenic diet

The ketogenic diet is a high-fat, low-carbohydrate diet that forces the body to burn fats rather than carbohydrates for energy. Hannah is using the ketogenic diet to try to treat her mental illness by improving metabolic health and providing ketones as an alternative brain fuel.

💡ketones

Ketones are molecules produced by the liver from fat when glucose levels are low, such as during fasting or a very low-carb ketogenic diet. Ketones can cross the blood-brain barrier and be used by the brain for energy, which is why the ketogenic diet is being studied as a metabolic therapy.

💡metabolic therapy

Metabolic therapy refers to treatments that aim to improve overall cellular metabolism and mitochondrial health. In addition to ketogenic dieting, metabolic therapies include exercise, good sleep habits, stress reduction and nutritional supplements.

💡mental illness

Hannah has been diagnosed with schizoaffective disorder, a serious mental illness involving psychosis, abnormal thoughts/beliefs and mood disturbances. She hopes metabolic therapies like the ketogenic diet can help treat her illness.

💡symptoms

Hannah uses 'symptoms' to refer to the troubling psychiatric symptoms she experiences due to schizoaffective disorder, such as hallucinations, delusions, disorganized thinking, etc. Her goal is to alleviate these symptoms.

💡medication

Along with the ketogenic diet intervention, Hannah takes antipsychotic medication to help manage her illness. She has been able to reduce her medication dose since starting the diet.

💡mitochondria

Mitochondria are small organelles inside cells that produce energy. Some theories link psychiatric disorders to impaired mitochondrial function. Metabolic therapies aim to improve mitochondrial health.

💡inflammation

Chronic inflammation may exacerbate psychiatric illness for some people. Hannah noticed the ketogenic diet has reduced inflammation in her body, which could contribute to symptom improvement.

💡stress

Stress often triggers or worsens psychiatric symptoms. Hannah explains that despite significant stressors, the ketogenic diet seems to have increased her resilience and ability to cope without an increase in symptoms.

💡discinesia

Discinesia refers to involuntary muscle movements that can arise from medication side effects. Hannah suffers from excessive eye blinking due to medication-induced discinesia, which seems to have lessened on the ketogenic diet.

Highlights

We are 2 months into trying the keto diet to treat my schizoaffective disorder

I've had drastic improvements in mental health, capacity and wellbeing on keto

I'm on the lowest dose of antipsychotic medication I've ever been on

I was never prescribed a metabolic therapy for mental illness before

The medical system is doing a disservice by not informing patients of metabolic treatment options

I have the right to try emerging treatments like keto rather than just medication

If keto works, it could show new treatment options for mental illness

Keto has reduced inflammation and I recover faster from workouts

We haven't gotten sick since starting keto

My capacity to handle stress has increased dramatically on keto

I'm still stable despite significant life stressors recently

My tic-like blinking seems reduced on keto

We feel solid on maintaining keto, ready to explore other metabolic therapies

We'll look at exercise, sleep, social engagement next

Thank you for following our journey with keto

Transcripts

play00:04

you know why do you sit so close to me

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you know what when when we're sitting on

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the couch you need to be like

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this this is what you need to be like

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yeah and then it's work babe stay

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professional hi everyone so we are about

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2 months in or maybe a little bit over

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two months in now to our keto project or

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keto and metabolic therapy project and

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you know trying it out as a means of

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seen if it's a potential treatment for

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my schizo affector disorder and so we

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just wanted to take some time to have a

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bit of a conversation with you guys and

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with each other about how it's been

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going up to this point you know what our

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experiences looked like um things we may

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have struggled with things that are

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going well and what we're hoping the

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next several months look like as well so

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I think that we're through kind of the

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beginning phase of this project in terms

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of getting started you know figuring out

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what it is that we can eat making some

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mistakes um and tracking ketones we now

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have kind of a good idea of basically

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where we're at on average I think for

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like ketones you're usually pretty high

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like in the fours and even fives and I'm

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still like kind of in the high ones we

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don't really know why that

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is your liver works better than mine at

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converting that into a superior specim

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yeah you love it my in competitiveness

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really comes out when it comes to

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measuring ketones and perhaps that's

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actually something that is not healthy

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is not healthy where I am like I need to

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get the highest Ketone levels and my

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focus should be more on okay well am I

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feeling good how am I feeling which it

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is Shifting more into but there was

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definitely that little bit of an

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endorphin rush of getting high it's not

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a competition I'm satisfied with my

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Ketone Nels okay well we'll get into how

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you're feeling oh later that sounded

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like a well you're not feeling as good

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as me no no it wasn't like that I mean I

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think people you know have been asking

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how is Rob doing through all this as

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well because he's doing the same medical

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intervention that I am as well and so

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yeah I want to know more about your

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mental health and whatnot as well but we

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should probably give a quick update

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because we haven't been doing as much of

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the vloggy updates as of late and we

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kind of just left behind handing after

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we were like I made a big mistake with

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the exogenous ketones so what happened

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with that was got knocked out of ketosis

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had well we had the exogenous keton we

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had the exogenous keton as sweet as like

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a slushie or whatever there was no sugar

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in them but they tasted so sweet through

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artificial sweeteners that I think our

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bodies assumed we had just consumed

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glucose and our blood sugar skyrocketed

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and our Ketone levels dropped

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drastically and so we both got knocked

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out of ketosis essentially and

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immediately I we took it before soccer

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which was in the evening that night and

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on the way home from soccer I was

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experiencing symptoms and I was feeling

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scared that I was in psychosis it was

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fast it was extremely fast like kind of

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mind-blowing actually how quickly that

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happened getting bumped out of ketosis

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and

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so and it lasted uh I mean you we

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recorded the video and I think you

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recorded a separate update video the

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next day but it lasted a couple of days

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a few days you're not feeling great even

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though your ketone come back up yeah I

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was off and not feeling good for

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probably a week following that and

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throughout that week my ketones were

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kind of all over the place it seemed

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like they were kind of trying to

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regulate themselves again sometimes they

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were almost where I was at normally

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sometimes they were really low and they

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were just kind of fluctuating quite a

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bit so it had a big impact on my body um

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but after that week or so it kind of

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stabilized again back to where I was

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before taking the exogenous ketones and

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I have my regular Ketone levels which

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are you know threes to fives and I'm

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feeling good again I'm feeling stable

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again and back to where I was before

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taking the exogenous ketones but good

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lesson so that's an update on that kurur

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fuffle that we shared with you but then

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I think it's also worth chatting a

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little bit more about the last video we

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put out where it was titled are you mad

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at me and I talked about people's kind

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of difficult feelings with this project

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add me I think it's something that we've

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been kind of surprised about in general

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and I've been struggling with it I've

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been struggling with some of the

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response to this project now don't get

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me wrong I know that there are a lot of

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you who are supportive of it and giving

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encouragement and maybe even being

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encouraged to try some of the things

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we're talking about yourselves which is

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great but I've been really surprised and

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taken aback by the negative

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um response to this project as well and

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I talked about in the last video how I

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can empathize and understand with that

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to a degree but I think something that I

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really want to clarify here for everyone

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is that I am making this decision to

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attempt to use the ketogenic diet and

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other metabolic therapies as a means of

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treating my schizo effective disorder my

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mental illness I've done research I've

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looked into it I've talked to experts

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and I think that it's something that I

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think is worth

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trying I mean I think it goes even

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further than that in that you have

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already seen

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results yeah but what I'm trying to say

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is that this is a personal decision that

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I made and I'm choosing to share it on

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the internet on the off chance that it

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could help other people I'm not at all

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saying that if you're watching this you

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have to do what I'm doing that is not at

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all my Approach here this is essentially

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a case study a like singular case study

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about trying out the keto diet and

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metabolic therapies to treat my skizo

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affected disorder and I'm sharing my

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experience and what I'm learning with

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you all if you want to take that

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information and apply it to your own

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life great if you don't that's okay I'm

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not asking you to do that I'm simply

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putting the information out there in the

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hopes that it could maybe help other

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people as well or even in the hopes that

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it could show researchers or people

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funding interventions for mental illness

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other options than just the typical

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medication route and

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exploring if there are ways to treat or

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manage mental illness that may feel

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better to some people you know we've

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gotten people saying I'm more than happy

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to just take my meds and they working

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fine for me and if that's working for

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you that's great but I and I know some

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other people still experience a degree

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of suffering even on these medications

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and so to

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me I feel it's worth trying something

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that may work and it may not work in an

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effort to alleviate some of that

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suffering Within Myself and perhaps

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other people will feel the same about

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trying something like this something

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that we haven't talked a lot really at

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all on this channel is

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how you were never ever prescribed to

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treatment like this as an intervention

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from any of your medical team in the

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past and I think that's doing a great

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disservice to

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um well to you in terms of even just

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allowing you to know what all of your

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options are like if if this was a

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treatment option that was on the table

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for you you and you made the decision

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like that's not for me I can't do that

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because of accessibility or cost or

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discipline or whatever there's a there's

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there's a lot of reasons why it's more

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difficult that would be something but it

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was it was a treatment intervention that

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was just never even brought to your

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attention but I get that a degree of

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that is that this is all new and

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emerging the gold standard

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for you know

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trusting uh method of treatment is you

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know the randomized control trials and

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those don't exist yet they're in the

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process of being done currently so I get

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to an extent why it's not offered from

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the medical system currently but you

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know doing my own research and digging

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into it it just seems like why wouldn't

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I give it a try and you know that was

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kind of what I came to this project

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thinking you know why not give it a try

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if it works amazing my life will be

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improved and I will feel better if it

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doesn't work is it really really that

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big of a deal that I ate differently and

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took care of my body in other ways for 6

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months no probably not and so it was one

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of those things that seemed really low

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risk to try yeah yeah and but now you

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know two months into

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it I'm a little blown away at the

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differences that I am experiencing in

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terms of my mental health my capacity my

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well-being I you know I I feel like I

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keep just saying how good I'm feeling

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and how much my capacity and wellness

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has improved and mental Clarity and

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experience of symptoms I don't really

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experience symptoms of schizo effective

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disorder hardly at all right now and I'm

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also on the lowest dose I've ever been

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on of my antis psychotic and so it's

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kind of wild to me how obvious it is

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that this change in my lifestyle through

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diet diet and exercise and focusing on

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sleep and all these metabolic therapies

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is having such a profound impact already

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two months in and I feel like it's not

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very good storytelling what we're doing

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because it's just kind of all like yeah

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things are going great this is awesome

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like there's nothing wrong I I get that

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there's a desire for you know a where's

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the drama a conflict uh you know a

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struggle or whatever but I think it's a

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good thing that that's not existing

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and I think that it's really encouraging

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for me and hopefully for some of you

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watching that uh intervention like this

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could be so effective so that's my

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experience of my mental health at this

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two-month Mark you know I've gone down

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on meds 40% I was on 100 milligrams of

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my Antico and I'm now on 60 which is the

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lowest I've been on and the last time I

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was on that low of the dose I ended up

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in the hospital and I just feel

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incredibly stable and clear of symptoms

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like I feel really hesitant to say that

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because you know it's been two months

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and but it's a it's definitely a

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different experience of my symptoms and

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my illness than I was having two months

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ago so yeah I was going to say what is

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your mental health like you're doing the

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same medical intervention as I am but

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you don't have a diagnosed mental

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illness so what is that experience like

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for you do you notice any differences

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from a mental health

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perspective difficult to say maybe a

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little bit more like like Clarity if you

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could call it that I I think that it's

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probably I and maybe it's just cuz

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that's where my focus has been but more

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like on like how my body has been

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feeling like a lot of reduced

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inflammation in my body like I don't

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like I had talked about knee pain in the

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last video and um yeah no knee pain at

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all and one thing that I was noticing is

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how

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quickly um it feels like my body

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recovers after a workout so you know we

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we'll be in the gym or we'll be doing

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like a strength training exercise and it

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will be

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intense and usually the day after or the

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day after the day after there's pretty

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intense muscle soreness and I feel like

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I think specifically because of Keto but

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I'm not sure like that is way less like

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our bodies are able to recover a lot

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faster I hadn't actually taken account

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of that but yeah I haven't experienced

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much soreness even though we have upped

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drastically how much we're going to the

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gym and doing strength training and

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doing workouts and yeah that's

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interesting and how are your

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poops they're okay I think that I had

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figured out that the problem was too

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much cheese and that like the calcium

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does something if calcium and the cheese

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has some does some kind of binding thing

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I'm not totally sure I kind of

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researched Google and then just kind of

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threw everything at the wall in terms of

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like trying to like fix the problem but

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I think what really helped was like

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digestive enzymes and this like fiber

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four supplement that I like started

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taking on a kind of regular basis there

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was something going on in your gut

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microbiome wasn't happy and I keep

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thinking oh yeah now I can eat all the

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cheese that I want and no it's like no

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there's nothing to do with cheese and so

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when I dial it back it's like okay but

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I'm a happier person now so he is much

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here now that he's got things flowing

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again

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moving so I guess on the topic of kind

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of like like physical recovery another

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thing that um I've noticed is and and

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part of this could be chance but I don't

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think it's totally chance it's that we

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haven't gotten sick

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like really at all since we started keto

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and it could be because at the end of

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last year like our house got hit by

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covid and the flu and it was kind of

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terrible but um over the past 2 months

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like I I would say typically we get some

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kind of like respiratory infection per

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month like a cold or something that the

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kids bring home from school or daycare

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and and our kids have the kids have

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gotten sick um and we didn't which is

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pretty weird like usually they get sick

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and then it's like oh no you know that

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it's coming um and you can't really do

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anything about it cuz you're in constant

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proximity to them but this time it was

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like we saw them getting sick and then

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we didn't get sick I I got actually a

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little bit of like runny nose and that

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was it and that was a pretty weird

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response like I think our body did a

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much better job of fending that off I

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didn't get that but I did feel like kind

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of weirdly tired for 2 or 3 days but

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that was the extent of it and I think

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that was our body being sick on

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keto so that's that's cool I mean I like

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to think that there's that kind of

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immuno response

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benefits yeah probably worth looking

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into the science behind that but that's

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our anecdotal experience of Keto and

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being sick I mean I think this might not

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have to do specifically with keto but it

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might have more to do with um drastic

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reduction in Sugar because I think I

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think sugar

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um was a problem with that in terms of

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autoimmune response and so that was kind

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of our body handling stress in form of

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sickness in a different way or maybe a

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better way but also you know we

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mentioned it in one of the Vlogs that

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we've been

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experiencing I was going to call it an

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acute but it's turning into a chronic

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stressor in our life that has been

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really difficult to deal with and that

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we've been going to therapy

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over agonizing over a little bit and

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it's been stressful and hard to get

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through and usually a stress of that

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magnitude would kind of just derail me

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in terms of increased symptoms because

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of stress stress is a big trigger for

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symptoms for me and so you would be ined

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a lot I would I would be ined like

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before this all if we were experiencing

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the same stressor I have no doubt that I

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would be spending hours a day in bed

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resting trying to avoid experience of

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symptoms I would probably be needing to

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speak with my psychiatrist about upping

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my dose of meds because I know that my

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symptoms would be exacerbated by this

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degree of stress but it's been kind of

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amazing to me how my capacity to handle

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and manage stress like this has

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increased I am still able like I'm still

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not experiencing symptoms even though

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I'm

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under stress psychological stress and I

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still feel stable through it all I feel

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like I have the capacity to notbe not

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always sometimes I don't feel like I

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have the capacity to deal with it but

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that's just because it's stressful I

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feel like

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ultimately from a dealing with my inless

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point of

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view it's just not a factor in terms of

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managing the stress which

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is hard for me to wrap my head around

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what do you like you're going through

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this stressor too feel

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and so I was thinking about how like

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when you're like what's the mental

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health benefits for you I think about

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how that like the stressor is in our

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life right now and it's kind of

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difficult to deal with um there's always

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like stressful things that kind of pop

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up in your life and you're trying to

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deal with it and um I'm just trying to

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imagine like what would our life be like

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if we had no stressors to deal with um

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and would my mental health feel a lot

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better and um maybe it's hard to say but

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do you feel that you have had increased

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capacity to deal with kind of intense

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stress over the last several weeks or

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how Rel it's been you know I I think the

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one of the ways that I deal with stress

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is like like my uh physiological

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response is my body feels really tired

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and I nap like I I will sleep in the

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middle of the day kind of thing and I

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haven't I I felt like I have more energy

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so perhaps less of like psychological

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and more of just like a physical res

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yeah Rob doesn't explore his feelings

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it's just all

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physical I go to therapy you work stuff

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out you know I think that you are

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looking for some kind of response that's

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just like taking keto for when you don't

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have a mental illness is like that

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Limitless movie where you're like you

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take a pill and you're just like you

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start to see formulas and stuff it's not

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like that it's not it's not like me

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being on keto without a mental illness

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is like all of a sudden my world is like

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changed I feel good I feel like this is

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the healthiest that I've been in a long

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time and there is a there's a level of

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like confidence that comes with that and

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there's a level of like um like like

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Clarity and and wanting to figure out

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how how can I do more how can I like

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you know go farther I think what you're

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describing is really just the benefits

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you get from taking care of

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yourself and you can do that a multitude

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of different ways and I think I think

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maybe what I'm trying to

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like see if there's any difference here

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is like I have a mental illness and so

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according to this you know brain energy

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Theory and the metabolic Health theories

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is that I had increased metabolic

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dysfunction over you

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and so it makes sense that an

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intervention that is addressing

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metabolic dysfunction or repairing

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mitochondrial health and whatnot is

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going to be is going to make drastic

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changes to my experience of my metabolic

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dysfunction my mental illness that makes

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sense you don't have that mental illness

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and metabolic dysfunction so I was just

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wondering you know like what is that

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experience them for you what yeah yeah

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and I think that's why where I'm coming

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from is maybe more noticing the like

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physiological changes the like faster

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recovery more energy not needing to

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sleep as much less uh less colds and

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respiratory infections um that kind of

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thing less less bodily inflammation and

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no like it being at a level where you

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notice it it's not like uh I think this

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might be happening it's like all of

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those things are very like wow I see how

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this is having an effect on my body and

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my life and I'm experiencing all of

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those things too

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but just the magnitude of how my

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experience of my mental illness has

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changed kind of eclipses all of that

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even though it is still a very big and

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noticeable change the magnitude of the

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improvements I'm seeing in my mental

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illness is

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just huge and is what I obviously am

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noticing the most so something that a

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lot of you have actually been pointing

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out in the comments is that you are

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noticing or feeling like my excessive

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blinking has diminished and just to kind

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of explain I've explained it in other

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videos but my excessive blinking that is

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often comes about in videos is a form of

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of discinesia that has resulted as

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that has come as a result of prolonged

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use of my antic psychotic medication so

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that sucks maybe we'll put a clip in of

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like some of the videos no don't we're

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not going to do that no I hate it but I

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don't know I'm doing doing it but um we

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noticed that it and like it did seem

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like it was greatly reduced and I don't

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know you look at me every day do I blink

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a lot still or I'm starting to be more

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aware of it now because people are

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commenting and it's like sometimes it's

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lower and sometimes it's regular and I

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think that um we just posted an

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interview with Dr breter check that out

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if you haven't yet I was really tired

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and a little bit off that day and so my

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blinking in that video is kind of back

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to being excessive at times and so I

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think that it is a degree of you know

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when I'm more tired the of

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discinesia comes out a little bit more

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pronounced but generally I do think it

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actually has been improving so I've

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never heard of that before the keto diet

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or metabolic therapies improving

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something like of discinesia but

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perhaps yeah just by having reduced

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anticho medication well I don't know if

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it works that way if you know let us

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know so that's kind of a general update

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of how things have been going over the

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last two months things we've been

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struggling a little bit with or things

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we wanted to clarify for you um where

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we're going to be going next in this

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series of videos is getting more into

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the other types of metabolic therapies

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so like Rob was saying we're feeling

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pretty solid now in terms of knowing

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what we need to do to follow the

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ketogenic diet and to stay in ketosis

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and so now we're going to be doing kind

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of a deeper dive and more of a

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concentrated focus on things like

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exercise on things like sleep on things

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like social engagement and Diving deeper

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into the different kinds of other

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metabolic therapies that go into

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improving metabolic Health as well so

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thank you for watching and as always

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wishing you and your loved ones good

play23:46

health we'll see you in the next video

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bye bye

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