PREPGO 1

Hogeschool Utrecht
21 Jan 201607:10

Summary

TLDRThe speaker shares a personal journey of overcoming chronic pain and illness, detailing their early work life from the age of 15 in various industries. They recount the gradual onset of symptoms leading to a fibromyalgia diagnosis, the emotional toll, and the struggle with chronic fatigue. The narrative then shifts to their recovery process, emphasizing the importance of self-care, setting boundaries, and the transformative impact of therapy and exercise. The speaker concludes with a message of hope and encouragement for others facing similar challenges, highlighting the power of a supportive team and the significance of taking time for oneself.

Takeaways

  • 😔 The individual has been experiencing chronic pain and health issues since their early 20s.
  • 🏭 They have worked in various industries, including factories, bakeries, shoe stores, butcher shops, and supermarkets, starting from the age of 15.
  • 🤒 Health problems began with vague pains and escalated to a diagnosis of fibromyalgia, arthritis, and chronic fatigue.
  • 💊 Initially, pain was managed with over-the-counter medication like paracetamol, but the condition worsened over time.
  • 🔍 The person sought medical help and eventually received a diagnosis of fibromyalgia and other related conditions.
  • 💪 Despite the challenges, there was a strong desire to regain strength and normalcy in their life.
  • 🏋️‍♀️ The individual underwent a rehabilitation process that included exercises and psychological support.
  • 📈 The recovery process was not easy and involved a significant amount of hard work and commitment.
  • 🤗 They received positive reinforcement and support from a team of professionals, which played a crucial role in their recovery.
  • 🚫 The person learned the importance of setting boundaries and taking time for self-care to avoid burnout.
  • 🧘‍♂️ Stress management and self-awareness were identified as key components in managing their chronic pain.
  • 📝 The individual filled out a questionnaire about their feelings and experiences, which was part of the therapeutic process.
  • 🌟 They express gratitude for the care and support received, stating that they feel like a new person after the treatment.

Q & A

  • What was the speaker's initial experience with their health condition?

    -The speaker initially experienced vague pains and discomfort, which they would treat with paracetamol, and these symptoms persisted for years without a clear diagnosis.

  • What was the speaker's first job and how old were they when they started working?

    -The speaker's first job was at the age of 15, working in a factory packing cookies, and later in shoe stores, butcher shops, and supermarkets.

  • What health condition was the speaker eventually diagnosed with?

    -The speaker was diagnosed with fibromyalgia, which was accompanied by rheumatism and chronic fatigue.

  • How did the speaker's health condition affect their daily life?

    -The condition led to widespread body pain, making it difficult for the speaker to perform daily tasks, and eventually causing them to feel like they were falling behind and not making progress.

  • What was the speaker's realization about their health and seeking help?

    -The speaker realized that they needed to take action and follow advice to improve their condition, which they had not been doing for a long time.

  • What changes did the speaker make to improve their health?

    -The speaker started to focus on regaining strength and mobility, particularly in their left side, and sought help from Ronald, presumably a healthcare professional.

  • How did the speaker's attitude towards their health condition change over time?

    -The speaker went from being passive and not seeking help to actively engaging in exercises and therapy, which led to significant improvements in their health.

  • What role did the speaker's support system play in their recovery process?

    -The support system, including healthcare professionals and possibly a psychologist, played a crucial role in the speaker's recovery by providing exercises, therapy, and emotional support.

  • What advice does the speaker have for others experiencing chronic pain?

    -The speaker advises others to seize the opportunity for help when it is offered, emphasizing the importance of being treated with love and care by the support team.

  • How did the speaker's perspective on their health condition evolve?

    -The speaker's perspective evolved from feeling overwhelmed and helpless to being in control and optimistic about their health, thanks to the support and treatment they received.

  • What was the speaker's final message to those struggling with similar health issues?

    -The speaker's final message is one of hope and encouragement, urging others to take advantage of the support and treatment available to them, as it can lead to significant improvements in their quality of life.

Outlines

00:00

😔 Struggling with Chronic Pain and Illness

The speaker reflects on their journey with chronic pain, beginning with vague aches and pains that escalated to a diagnosis of fibromyalgia and arthritis. They describe the emotional toll of dealing with these conditions, feeling misunderstood and alone in their struggle. The speaker emphasizes the importance of seeking help and following medical advice, sharing their experience of regaining strength and mobility through determination and exercise. They also touch on the psychological impact, discussing the role of stress and the need for self-care in managing chronic conditions.

05:02

😌 Overcoming Chronic Pain with Support and Self-Belief

In this paragraph, the speaker shares their experience of seeking psychological help, which they found to be invaluable in their healing process. They describe a self-assessment tool that helped them understand their feelings and emotions over the past week. The speaker expresses gratitude for the support and care they received from the team, which made them feel valued and loved. They encourage others suffering from chronic pain to take the opportunity for help when it is offered, emphasizing that the journey, though challenging, is worth the transformation it can bring.

Mindmap

Keywords

💡Fibromyalgia

Fibromyalgia is a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas. In the video, the speaker describes their struggle with this condition, which began with vague pains and progressed to a diagnosis of fibromyalgia, affecting their entire body and leading to chronic fatigue.

💡Arthritis

Arthritis refers to inflammation in the joints, which can cause pain, swelling, and stiffness. The speaker mentions 'kleinere lichtelijke reuma' (small, light arthritis), indicating an additional health challenge they faced alongside fibromyalgia, contributing to their overall physical discomfort.

💡Chronic Fatigue

Chronic fatigue is a state of persistent, abnormal, and overwhelming tiredness that is not relieved by rest. The term is used in the script to describe the ongoing exhaustion the speaker experiences as part of their fibromyalgia symptoms.

💡Paracetamol

Paracetamol is a common over-the-counter medication used to relieve pain and reduce fever. The speaker mentions taking paracetamol as an initial response to their vague pains, indicating a common practice in managing mild discomfort before seeking further medical help.

💡Work Ethic

Work ethic refers to a set of values or beliefs that emphasize the importance of hard work and dedication. The speaker talks about their early work experience, starting at the age of 15 in various jobs, which demonstrates a strong work ethic and may have contributed to their physical exhaustion over time.

💡Self-Care

Self-care involves taking actions to preserve or improve one's own health and well-being. The video's narrative suggests the importance of self-care, as the speaker realizes they were not taking care of themselves and needed to make changes for their health.

💡Stress

Stress is a state of mental or emotional strain or tension resulting from adverse or demanding circumstances. The speaker identifies stress as a contributing factor to their health issues and discusses the need to manage stress levels to improve their condition.

💡Exercise

Exercise is physical activity that helps improve overall health and fitness. The speaker mentions exercises they were given as part of their treatment plan, which helped them regain strength and improve their condition.

💡Psychologist

A psychologist is a professional who studies mental processes and behavior and applies this knowledge in various settings. The speaker expected to see a psychologist as part of their treatment, indicating the multidisciplinary approach to managing their health issues.

💡Support Team

A support team refers to a group of professionals who provide assistance and care to individuals facing health challenges. The speaker expresses gratitude for the support team that helped them, emphasizing the importance of a caring and professional environment in their recovery.

💡Self-Reflection

Self-reflection is the process of thinking deeply about one's experiences, feelings, and beliefs. The speaker talks about filling out a form about their feelings and experiences, which is an example of self-reflection that helps in understanding and managing their condition.

Highlights

The individual started working at the age of 15 in various retail jobs, including bakeries and shoe stores.

They experienced vague pains and discomfort that persisted for years, leading to a diagnosis of fibromyalgia and rheumatism.

The person struggled with chronic fatigue and the feeling of falling behind in life due to their health issues.

Despite the challenges, they sought help and began a journey of recovery, which included various exercises and psychological support.

The individual found the process of recovery to be easier than expected, with significant improvements in their condition.

They emphasize the importance of following advice and making lifestyle changes to improve their health.

The person regained strength and mobility, which they had lost, particularly on the left side of their body.

They learned the importance of self-care and setting boundaries to prevent energy depletion from helping others.

The individual discovered that stress and lack of self-care were contributing factors to their pain.

They underwent psychological therapy, which was instrumental in their recovery process.

The person filled out a questionnaire about their feelings and experiences over the past week, which helped in their treatment.

They were reassured that they were not 'crazy' and that their condition was under control.

The individual expresses gratitude for the loving care and support they received from the treatment team.

They share a message of hope for others suffering from chronic pain, encouraging them to seek help.

The person describes their transformation, feeling like a new person after their recovery journey.

They acknowledge the difficulty of the process but emphasize that the effort was worth it.

The individual reflects on their journey with a sense of wonder and disbelief at their progress.

Transcripts

play00:02

van zijn in de 20 en toen

play00:04

toen gaf mijn lichaam wat op

play00:09

allereerst misschien blijf een beetje

play00:10

enthousiast stellen en jij bent ook

play00:12

werkzaam geweest

play00:14

ja ik was 15 jaar dat ik al werkte in de

play00:18

fabriek bij bakken winkel koekjes

play00:20

inpakken en daarna schoenen winkels

play00:23

slagerij

play00:24

supermarkten tot mijn trouwe

play00:28

hebben nog een jaar gewerkt en toen ben

play00:30

ik eigenlijk van ziek geworden

play00:32

dat begon met vage pijntjes niet kunnen

play00:35

thuisbrengen weet je af en neem een

play00:36

paracetemol gaat dan over

play00:39

ja zo waar ze jaren door sudderen totdat

play00:42

je te geven met meer dingen gaat merken

play00:44

naar de komt er naar voren dat je

play00:46

fybromyalgie je dat zitten je hele

play00:48

lichaam na en dan kleinere lichtelijke

play00:51

reuma bij en dan begint het met je

play00:53

handen je loopt weer brace en

play00:56

ja dan ga je het roosteren wij krijgen

play00:59

chronische vermoeidheid erbij

play01:01

ik had echt het gevoel van van ik ga

play01:03

alleen maar meer achterhalen en de zit

play01:06

geen voortgang mening dat dat bestaat

play01:07

nemen nooit niet

play01:09

en hoelang is het lang geleden dat die

play01:10

klachten zijn begonnen

play01:12

nou hebben wat tussen de 10 en 15 jaar

play01:14

meegelopen met iedereen altijd oké hoe

play01:18

gaat het lekker mooi zo voor jullie te

play01:20

zien

play01:21

ja die ik jouw boodschap die straalt

play01:25

ik heb je ja ja echt wel weet je alles

play01:28

nog wat we geleerd hebben

play01:29

ja het meisje hoewel ja ja even kijken

play01:32

hoe het nu met je helpt of je dat noch

play01:34

inderdaad allemaal komt

play01:39

kijk je moet zelf vijand dingen doen wil

play01:42

je bereiken

play01:43

je moet het advies opvolgen

play01:50

volg jij het niet op al loop je over

play01:51

tien jaar nog waren en dat wil je voor

play01:54

jezelf niet

play01:59

dus we geen samengaan van ja wat wil je

play02:04

met je lichaam

play02:05

nou ik was bijvoorbeeld de kracht van in

play02:07

de allemaal linkerkant van zijn kwijt

play02:09

dus ik heb tegen ronald kan gezegd ik

play02:11

wil die kracht wil ik weer terug

play02:14

ik wil normaal kunnen lopen ik wil

play02:16

normaal van me stoel af kunnen komen wat

play02:18

ik niet kon

play02:20

ja wat erbij hoort het ook de eerste

play02:34

paar weken dan lig je ook gerust was dan

play02:36

zwakker en

play02:37

van jurkje wat gebeurt er allemaal

play02:41

nou ja ga ik ben de blindelings ingegaan

play02:44

ik denk ik beloof mij even niks ik werk

play02:46

mee en ik zien het wel

play02:48

juist zo ja het ging eigenlijk

play02:51

makkelijker als dat ik gedacht had

play02:53

en dat zeg ik niet omdat ik toevallig nu

play02:56

meter band tussen haakjes het is gewoon

play02:59

zo ja jullie te zien

play03:06

ja hallo mensen ja hartstikke goed nou

play03:09

je bent een ander mens onder wind

play03:12

ja met de oefeningen die je krijgt en de

play03:14

praten met jou natuurlijk wat grandioos

play03:16

is geweest wat maar ook goed heb gedaan

play03:19

ja dat had gewoon helpt je boek erg veel

play03:22

hard gewerkt eh ja als je uitleg krijgen

play03:25

en

play03:26

je weet dus van oké dat is de oorzaak

play03:28

van al je jaren van problemen en pijn

play03:31

hebben en dat gaat niet weg en je weet

play03:34

dan hoe de zit een kleine oplossingen en

play03:38

van plan maak het nou opvolgen

play03:40

dat moest ik ook wel flink traject wat

play03:41

je kijken het begin is altijd moeilijk

play03:47

een

play03:47

maar als je dan het traject gaat

play03:48

beginnen ja hij koffers

play03:51

je viert feest achter van fictie hebt je

play03:53

als heb een oorzaak

play03:56

ik was iemand die gauw zij van york

play03:59

onderaan

play04:00

nee lieverd niks aan de hand we gaan

play04:01

samen boodschappen doen nee ik stond

play04:03

niet meer nummer 1 je steekt de energie

play04:05

in mensen waarvan je in feite niets van

play04:07

terug krijgen

play04:09

nu heb ik dat ook nooit gewild maar als

play04:12

je dan te horen krijgt dat dat toch wel

play04:14

een oorzaak heb dat je pijn erger worden

play04:17

wat je wel voor een ander klaar staat en

play04:19

niet voor jezelf

play04:21

ja dan had ik ook zoiets van nou ga ik

play04:24

veranderen meer maar nee zeggen

play04:27

ja en ging erom dat als je al zoveel

play04:29

belangrijk is dus een man en dat hersen

play04:32

jij ook een heel klein beetje werk te

play04:33

komen voor jezelf

play04:35

klopt dat alle belangrijke wel blij van

play04:38

de zei oké

play04:39

ja tijd voor jezelf maakt en waar nodig

play04:42

grenzen uit kunt geven als het teveel

play04:44

boven

play04:45

wat mij het meeste bij is gebleven dat

play04:47

stress en je hebt hier allemaal sensoren

play04:50

en die gedeeltes dat voorkomt vol vol

play04:53

vol en dan krijg je die alarmknop

play04:56

want er zit altijd iets in je hoofd wat

play04:59

dan oorzaken hebben wat je pijn verzorgd

play05:01

en stress verzorgd

play05:03

dus ja ik had wel verwacht dat de wij de

play05:05

psycholoog terecht zou komen

play05:06

ja dan kom je bij de een china ja dan

play05:08

zeg ik dat is een schat die van zo goed

play05:11

geholpen

play05:11

ik wil graag lees ik het begin van het

play05:14

project die ook ingevuld ja dat

play05:16

eigenlijk over hoe je je de afgelopen

play05:18

week gevoeld het

play05:20

en ik wil vragen over die voor me in wil

play05:22

vullen en dan mag je zo min mogelijk

play05:23

over nadenken gewoon invullen wat door

play05:25

jouw gevoel het juiste antwoord is

play05:28

en ik heb ook een patch

play05:42

naar waarheid ingevuld

play05:48

er is wel verschil mijn huis ook voor

play05:50

heb gezegd van ja maar ook en die het

play05:52

want je hebt fybromyalgie

play05:54

je heb artrose je hebt ruime ik ben tony

play05:57

gek zeg nee wie je bent niet gek ik heb

play05:59

het ik heb het onder controle

play06:02

ja voor mij is alles nog ongelovige ja

play06:05

dat ik hem wil voor zijn de zoveel jaar

play06:07

rond je moet ik onze hoeveel jaren los

play06:09

ja ja ja is het nu nog veel meer hoe het

play06:12

toch om

play06:13

ja ja zeker weten ik staar er zelfs nog

play06:17

vol verwondering van pikken kerkelijke

play06:19

dag maria het is echt zo het is geen

play06:23

droom het is te ver volheid

play06:25

ja ik heb wat op geschreven en dat wil

play06:27

ik eigenlijk voor de mensen zeggen die

play06:29

chronische pijn hebben en dat is lieve

play06:33

mensen

play06:34

grijp die kans als je geholpen van

play06:36

worden

play06:37

je wordt met zoveel liefde behandeld

play06:39

door het team dat is iets wat ik nooit

play06:42

zal vergeten

play06:44

ik ben een nieuw mens het was zwaar

play06:48

dan zou de moeite waard

play07:00

nee

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