Marta and Shelby share their migraine stories
Summary
TLDRThis video script shares the personal experiences of individuals like Marta and Shelby, who live with migraine disease, a condition affecting over a billion people worldwide. It highlights the invisible and disabling nature of migraines, which are often misunderstood as 'just headaches.' The script discusses the emotional impact, including fear and frustration, and the challenges of finding effective treatments. It introduces CGRP treatments as a promising new approach and emphasizes the importance of raising awareness to combat the stigma and support those suffering from migraines.
Takeaways
- 🤔 Migraines are more than just headaches; they are a brain disorder that can cause various symptoms including neck and shoulder pain, nausea, and sensitivity to touch.
- 😣 The pain of a migraine can be debilitating, often described as a vice squeezing the head, and it affects every aspect of a person's life.
- 🏥 Migraines are common, affecting one in seven people worldwide, which equates to over a billion individuals.
- 🌐 People with migraines often face misunderstanding and stigma, as the disorder is invisible and not well-understood by the general public.
- 🧬 Historically, migraine treatments were not specifically designed for the condition, leading to a reliance on borrowed treatments from other medical fields.
- 💊 The overuse of acute migraine medications can result in medication overuse headaches or rebound headaches, exacerbating the problem.
- 🆕 CGRP treatments represent a new and exciting class of migraine treatments that are specifically targeted towards migraines.
- 🔍 It's important for migraine patients to try different treatments because there's no surefire way to predict which treatment will work for a given individual.
- 💭 The fear of treatments becoming ineffective and the impact of migraines on future life events, such as having a family, are significant concerns for those living with migraines.
- 🌟 Despite the challenges, there is hope for a better understanding and management of migraines, allowing those affected to live more authentically.
Q & A
What are the initial symptoms Marta experiences when a migraine attack begins?
-Marta starts feeling more neck pain and shoulder pain, experiences really bad pain behind one of her eyes, and becomes nauseous. Her head feels sensitive to touch as if a vice was squeezing it, and she starts having issues speaking due to the unimaginable pain.
How does migraine affect Marta's daily life and hobbies?
-Migraine affects every aspect of Marta's life, including her passion for traveling, reading, walking with her dog, spending time with friends and family, enjoying sports, especially baseball, and attending concerts.
What was Shelby's first experience with migraines and when was she diagnosed?
-Shelby first started experiencing migraines around grade two or three and thought it was just part of her. She was officially diagnosed with migraine when her family immigrated to Canada at the age of 15.
What is the prevalence of migraine disease worldwide?
-One in seven people in the world, which is more than a billion, have migraine disease.
How does migraine present differently in different people, and what are the common features?
-Migraine is a brain disorder that presents differently in different people. The most common feature associated with migraines is the headache, but other things like sensitivities to light, sound, and smell can also come with migraines.
What is the historical stigma associated with migraines?
-Historically, there has been stigma around people who have headaches, often seen as just complaining. Headache hasn't been as studied or recognized, and it's an invisible disorder, making it hard for others to understand its impact.
What is the duration of a migraine attack for Shelby, and how does it vary?
-Shelby's migraine attacks can last from three to six hours, but there have been times, like last month, where she had a migraine for 10 days straight.
How did Shelby react when she first found out she had migraines?
-Shelby's first reaction was anger, as she felt she had a disease and a weakness that she had to live with. She also had a fear about another migraine attack coming up and was frustrated about how it affected her social life.
What complications can arise from using acute treatments for migraines?
-Using many short-acting medications to treat headache attacks can lead to medication overuse or rebound headaches, which can make the headache problem worse.
What are CGRP treatments and why are they significant in migraine management?
-CGRP treatments are the newest family of migraine treatments and are exciting because they are the first treatment that is actually migraine-targeted, meaning they are specifically designed to address migraines.
How has treatment with CGRP medications affected Marta's experience with migraines?
-After trying CGRP medications, Marta is no longer afraid of her migraine attacks and is not angry anymore. The treatment has helped her manage her episodic migraine attacks.
What are the concerns and hopes Shelby has for her future with migraine disease?
-Shelby is concerned about the future and how migraine will affect her life, especially when considering having a family. She hopes more people learn about the debilitating nature of migraines and that she can enjoy life without hiding behind a mask.
Outlines
🤕 Living with Migraines: Personal Experiences and Challenges
The paragraph introduces individuals named Marta and Shelby who both live with migraine disease. They describe the onset of a migraine attack, which includes severe neck and shoulder pain, extreme sensitivity behind one eye, nausea, and an overall sensitivity to touch. They liken the pain to a vice squeezing the head and mention that migraines affect every aspect of their lives, from traveling and reading to spending time with loved ones and attending sports events. The script highlights that migraines are an under-studied and often stigmatized brain disorder that can be extremely disabling despite being invisible. It also discusses the frustration of having migraines and the difficulty in finding effective treatments, as well as the fear and anger associated with living with a condition that is not well understood and can be unpredictable in its severity and duration.
🌟 Hope for the Future: Raising Awareness and Seeking Relief
This paragraph emphasizes the desire for increased awareness about the debilitating nature of migraines and the hope for a better understanding and treatment of the condition. The speaker expresses a longing to live life without hiding behind a facade and to be true to themselves despite living with migraine disease. The paragraph concludes with a hopeful outlook towards enjoying life without the constraints imposed by migraines.
Mindmap
Keywords
💡Migraine
💡Nauseous
💡Sensitivity to touch
💡Stigma
💡Invisible disorder
💡Acute treatments
💡Preventive treatments
💡CGRP treatments
💡Rebound headaches
💡Debilitating
💡Pop culture fanatic
Highlights
Migraine attack symptoms include neck and shoulder pain, severe pain behind one eye, nausea, and head sensitivity.
Migraine is more than a headache; it affects every aspect of life, including hobbies and social activities.
Marta and Shelby share their personal experiences of living with migraine disease.
Marta was diagnosed with migraines at the age of 15 when her family immigrated to Canada.
Shelby experienced migraines since grade two or three, initially thinking it was just a part of her.
One in seven people worldwide, over a billion, have migraine disease.
Migraine is a brain disorder with common features like headache and sensitivities to light, sound, and smell.
Historically, migraine has been stigmatized as just a headache complaint.
Migraine is an invisible disorder that can be extremely disabling.
Marta and Shelby discuss the frustration of others not understanding the severity of migraines.
Migraine attacks can last from a few hours to several days.
Shelby's initial reaction to her migraine diagnosis was anger and fear of being different.
Marta had to stop working due to non-stop pain and went on sick leave.
Traditional migraine treatments were borrowed from other conditions, often ineffective or causing rebound headaches.
CGRP treatments are a new, migraine-targeted treatment option.
It's important for migraine patients to try multiple treatments to find what works for them.
Marta's fear of treatment becoming ineffective and the impact on her future migraines.
Shelby is learning to live with migraines without fear or anger, embracing her identity.
Marta is reevaluating her life at 47, considering how migraine will affect her future, including family planning.
Both Marta and Shelby hope for increased awareness and understanding of migraines.
The documentary ends with a message of hope for living a fulfilling life despite migraine disease.
Transcripts
when my migraine attack begins i start
feeling
more neck pain and shoulder pain there
will be really bad pain behind one of my
eyes and i'm nauseous
my head would be more sensitive to touch
feeling like a vice was squeezing your
head i would start having issues
speaking just in in imaginable pain
migraine
is more than just a headache it affects
every aspect of my life
i like to travel i'm passionate about
reading
i
love going for walks with my dog
and i love spending time with my friends
and family i really like sports and
baseball is my favorite sport i really
love going to concerts definitely kind
of a pop culture fanatic too
my name is marta
i live with migraine disease
my name is shelby and i live with
migraine disease
the first time i got diagnosed
officially with migraine was when my
family immigrated to canada at the age
of 15. i first started experiencing
migraine tax when i was about in grade
two or three i just thought it was part
of me and just something that i would
have to kind of keep living with
[Music]
one in seven people in the world which
is more than a billion have migraine
disease
migraine is a brain disorder that
presents differently in different people
but the most common feature that we
think of with migraine is the headache
but a number of other things also come
with migraines so sensitivities to the
environment like to light sound smell
historically headache hasn't been
something that's necessarily as studied
or is recognized there's been stigma
around people who have headache just
complaining about having headache
because it's not something you can see
it's an invisible disorder but it can be
extremely disabling
it's still very hard to understand what
a migraine feels like unless you
experience it
most people are like oh you just have a
headache
take something or just drink more water
and you'll be fine
there can be times where i'll have a
migraine and maybe it'll last
three to six hours
and there have been other times probably
last month where i had a migraine for 10
days straight
my first initial reaction when i heard
that i
have migraine was anger
that i have
this disease that i suffered from
headaches that i have this weakness i
always had this fear about another
migraine attack coming up i wanted to be
normal and i wanted to be with my
friends
do i need to prepare myself to not have
a migraine attack because i have
something coming up or am i allowed to
have a migraine attack by participating
in a certain social event that may
actually cause it that could be very
frustrating for me when i turned 30 i
started to have a lot of rebound
headaches so i was in non-stop pain
stopping
work was the hardest decision that i had
to make
and when i went on sick leave
i was counting days i was waiting for a
cure i was waiting for a miracle i felt
very very lost
historically migraine treatments were
borrowed from other areas because we
didn't understand why people had
migraine
and so the two kinds of treatments the
acute treatments what do you take when
you have an attack and the prevention
ones how do you keep them from being so
bad in the first place were mostly
things that were for other conditions
but taking many of the medications that
are short acting to treat those headache
attacks can lead to medication overviews
or rebound headache and it can make the
headache problem get worse
so cgrp treatments are the newest family
of migraine treatments they're really
exciting because they're the first
treatment that's actually migraine
targeted it's really important for
patients with migraine to be able to try
multiple kinds of treatments because we
don't have a way of predicting what type
of treatment a given person will respond
to
my fears about treatment moving forward
is
it just starting to become ineffective
how's it going to affect my migraines
even in 10 years from now
when my neurologist suggested the cgrp
medications i was all for it and in my
case it did work my migraine attacks
right now are
episodic but what changed for me is that
i am not afraid of them and i'm not
angry anymore
right now at the age of 47 i'm trying to
relearn
who i am
and what do i like now being 30
definitely see a change in just life
with everyone kind of getting engaged
married or starting to have kids how is
migraine going to affect my future when
i decide to have
kids and a family
so the future is very unknown which
definitely scares me
i hope more people learn about how
debilitating
migraines truly can be because it is
definitely not something that people
should have to hide or push through in
life
i'm looking forward to enjoy life and
not to hide behind this mask of someone
who's pretending to be
someone else anymore just to be me
person living with migraine disease
[Music]
you
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