حالة باقر الصحية أثقلت كاهل عائلته ومناشدات لوزارة العمل بصرف راتب يسد تكاليف علاجه

اي نيوز i news
21 Sept 202406:04

Summary

TLDRThe video discusses the case of an 11-year-old boy named Baqir Abbas, who suffers from Prader-Willi Syndrome, a genetic disorder causing severe obesity, poor eyesight, and developmental delays. His family struggles with the financial and emotional burden of his condition, appealing for support from the Ministry of Social Affairs. The program highlights the challenges faced by such families and encourages viewers to report similar cases for media exposure. Baqir, despite his health issues, is portrayed as a kind and welcoming child. The video concludes with a call to action to assist his family.

Takeaways

  • 🙏 The program expresses gratitude to those who inform them about cases that need assistance in the community.
  • 👦 A boy named Baqir Abbas, aged 11, is suffering from a genetic disorder called Prader-Willi syndrome.
  • 📉 The condition causes physical changes such as obesity and weak vision, greatly affecting Baqir's quality of life.
  • 💊 Baqir's family is struggling financially due to the high cost of medical treatments.
  • 🧬 Prader-Willi syndrome is a genetic condition caused by a chromosomal error during fetal development.
  • 🧠 Medical reports show Baqir has a 75% intellectual disability, although he appears cheerful and friendly.
  • 💼 The family has reached out to the Ministry of Labor and Social Affairs to request financial assistance.
  • 📢 The program calls on the Ministry to provide support for Baqir's ongoing medical expenses, which are overwhelming for the family.
  • 🎥 The program visits Baqir's family to document their daily challenges and share their story with a broader audience.
  • 🤝 The program encourages viewers to report similar cases to help raise awareness and provide support for those in need.

Q & A

  • Who is the main subject of the script?

    -The main subject of the script is a boy named Baqir Abbas, an 11-year-old child suffering from Prader-Willi Syndrome.

  • What is Prader-Willi Syndrome?

    -Prader-Willi Syndrome is a genetic disorder caused by the deletion of seven genes on chromosome 15. It leads to symptoms such as excessive hunger, obesity, poor muscle tone, weak eyesight, and cognitive impairments.

  • What are the physical and mental challenges Baqir faces due to his condition?

    -Baqir struggles with severe obesity, poor eyesight, intellectual disability, and requires constant assistance. His condition also causes developmental delays and behavioral issues.

  • What do Baqir's parents hope for from the Ministry of Labor and Social Affairs?

    -Baqir’s parents are seeking financial assistance from the Ministry of Labor and Social Affairs to help cover the high costs of his medical treatments and daily care.

  • How is Baqir's cognitive development affected by his syndrome?

    -Baqir has a reported intellectual disability with 75% cognitive impairment. This affects his learning and ability to perform tasks independently.

  • What kind of support has Baqir's family received so far?

    -Baqir’s family has raised awareness about his condition, and a teacher has been granted leave to assist him at home. However, the family is still overwhelmed by the medical expenses and caregiving demands.

  • How does Baqir’s condition affect his daily life?

    -Baqir faces difficulty with mobility due to his obesity, has trouble seeing, and needs constant supervision. He sometimes even falls asleep while sitting due to his condition.

  • What message does the program host convey to the audience?

    -The host encourages viewers to report similar cases they may know of, so the program can provide support and raise awareness about such situations.

  • What is the host's overall goal in sharing Baqir’s story?

    -The host aims to raise awareness about Baqir's condition, highlight the family’s financial struggles, and advocate for governmental support to help with his care.

  • How does Baqir’s personality come across in the video?

    -Despite his challenges, Baqir is described as a kind, welcoming, and positive child who enjoys interacting with visitors, reflecting his strong spirit.

Outlines

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Transcripts

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الوسوم ذات الصلة
Prader-WilliRare diseaseFamily strugglesChild healthMedical supportCommunity aidGenetic disorderHuman interestSocial welfareEmotional appeal
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