حالة باقر الصحية أثقلت كاهل عائلته ومناشدات لوزارة العمل بصرف راتب يسد تكاليف علاجه

اي نيوز i news

21 Sept 202406:04

Summary

TLDRThe video discusses the case of an 11-year-old boy named Baqir Abbas, who suffers from Prader-Willi Syndrome, a genetic disorder causing severe obesity, poor eyesight, and developmental delays. His family struggles with the financial and emotional burden of his condition, appealing for support from the Ministry of Social Affairs. The program highlights the challenges faced by such families and encourages viewers to report similar cases for media exposure. Baqir, despite his health issues, is portrayed as a kind and welcoming child. The video concludes with a call to action to assist his family.

Takeaways

🙏 The program expresses gratitude to those who inform them about cases that need assistance in the community.
👦 A boy named Baqir Abbas, aged 11, is suffering from a genetic disorder called Prader-Willi syndrome.
📉 The condition causes physical changes such as obesity and weak vision, greatly affecting Baqir's quality of life.
💊 Baqir's family is struggling financially due to the high cost of medical treatments.
🧬 Prader-Willi syndrome is a genetic condition caused by a chromosomal error during fetal development.
🧠 Medical reports show Baqir has a 75% intellectual disability, although he appears cheerful and friendly.
💼 The family has reached out to the Ministry of Labor and Social Affairs to request financial assistance.
📢 The program calls on the Ministry to provide support for Baqir's ongoing medical expenses, which are overwhelming for the family.
🎥 The program visits Baqir's family to document their daily challenges and share their story with a broader audience.
🤝 The program encourages viewers to report similar cases to help raise awareness and provide support for those in need.

Q & A

Who is the main subject of the script?
-The main subject of the script is a boy named Baqir Abbas, an 11-year-old child suffering from Prader-Willi Syndrome.
What is Prader-Willi Syndrome?
-Prader-Willi Syndrome is a genetic disorder caused by the deletion of seven genes on chromosome 15. It leads to symptoms such as excessive hunger, obesity, poor muscle tone, weak eyesight, and cognitive impairments.
What are the physical and mental challenges Baqir faces due to his condition?
-Baqir struggles with severe obesity, poor eyesight, intellectual disability, and requires constant assistance. His condition also causes developmental delays and behavioral issues.
What do Baqir's parents hope for from the Ministry of Labor and Social Affairs?
-Baqir’s parents are seeking financial assistance from the Ministry of Labor and Social Affairs to help cover the high costs of his medical treatments and daily care.
How is Baqir's cognitive development affected by his syndrome?
-Baqir has a reported intellectual disability with 75% cognitive impairment. This affects his learning and ability to perform tasks independently.
What kind of support has Baqir's family received so far?
-Baqir’s family has raised awareness about his condition, and a teacher has been granted leave to assist him at home. However, the family is still overwhelmed by the medical expenses and caregiving demands.
How does Baqir’s condition affect his daily life?
-Baqir faces difficulty with mobility due to his obesity, has trouble seeing, and needs constant supervision. He sometimes even falls asleep while sitting due to his condition.
What message does the program host convey to the audience?
-The host encourages viewers to report similar cases they may know of, so the program can provide support and raise awareness about such situations.
What is the host's overall goal in sharing Baqir’s story?
-The host aims to raise awareness about Baqir's condition, highlight the family’s financial struggles, and advocate for governmental support to help with his care.
How does Baqir’s personality come across in the video?
-Despite his challenges, Baqir is described as a kind, welcoming, and positive child who enjoys interacting with visitors, reflecting his strong spirit.

Outlines

00:00

🙏 The Struggles of Baqir's Family

The speaker expresses gratitude towards those who contact the program and highlight difficult cases in the community. The focus is on Baqir, an 11-year-old boy with Prader-Willi Syndrome, a genetic disorder causing severe obesity and poor eyesight. His family is struggling with his medical care and expenses. Despite the challenges, Baqir is described as a cheerful and welcoming boy. His family is seeking financial help, particularly from the Ministry of Labor and Social Affairs, to cover his high medical costs.

05:00

💪 Baqir’s Resilience Despite Health Challenges

Baqir, although suffering from Prader-Willi Syndrome, is a positive and energetic child. He warmly welcomed the visitors, despite the hardships he faces, including obesity, delayed puberty, and behavioral issues. His medical reports are detailed, diagnosing his condition clearly. The segment ends with the reporter, Firas Ghudhanfar, expressing his admiration for Baqir’s spirit and reiterating the program’s commitment to following up on his case.

Mindmap

Keywords

💡Prader-Willi Syndrome

Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by a defect in chromosome 15. It is characterized by excessive hunger, obesity, and developmental delays. In the video, it is discussed as the central condition affecting Baqir, the child being featured. His family is struggling to manage his symptoms, especially his insatiable appetite and related health issues.

💡Obesity

Obesity is a medical condition in which excess body fat accumulates to the extent that it may have a negative effect on health. In the context of the video, Baqir suffers from severe obesity as a result of Prader-Willi Syndrome, which causes uncontrollable hunger and leads to dangerous levels of weight gain.

💡Chromosome 15

Chromosome 15 is the specific chromosome where a genetic abnormality occurs in individuals with Prader-Willi Syndrome. The video mentions a deletion of seven genes on chromosome 15 as the underlying cause of Baqir's condition, which explains the genetic nature of his health problems.

💡Mental disability

Mental disability, or intellectual disability, refers to a reduced ability to understand new or complex information and to learn and apply new skills. The video mentions that Baqir has a 75% mental disability, which affects his cognitive functions, making daily life more challenging for him and his family.

💡Family hardship

Family hardship refers to the significant struggles Baqir's family faces in caring for him due to his complex medical needs. The video highlights how they are 'burdened' by his treatments and the cost of managing his condition, calling for public and governmental support to help alleviate their difficulties.

💡Government assistance

Government assistance is the financial or social support provided by the government to families or individuals in need. The video emphasizes that Baqir's family is appealing to the Ministry of Labor and Social Affairs for financial help, as the cost of managing his illness is overwhelming for them.

💡Medical expenses

Medical expenses refer to the costs incurred in the treatment and management of health conditions. Baqir's condition requires expensive medical treatments and care, which puts a significant financial strain on his family. The video highlights these expenses as a major challenge they face.

💡Developmental delays

Developmental delays refer to a slower progression in reaching developmental milestones, such as walking, talking, or cognitive skills. The video mentions that Baqir suffers from developmental delays, a common symptom of Prader-Willi Syndrome, which further complicates his life and adds to his family's struggles.

💡Vision impairment

Vision impairment refers to any decrease in the ability to see that affects an individual's daily activities. Baqir's condition has led to weakened eyesight, making it difficult for him to navigate or see objects clearly, as mentioned when the video describes him stumbling over small objects.

💡Community support

Community support refers to the help and solidarity provided by others, including friends, neighbors, or organizations, to those in need. The video encourages viewers to reach out and support individuals like Baqir and his family by sharing their cases with the program so they can receive more aid and exposure.

Highlights

The program thanks those who reach out to share cases from the community, as they help highlight the situations of individuals who can't voice their struggles.

The case discussed is of an 11-year-old boy named Baqir Abbas, who suffers from a rare genetic disorder called Prader-Willi Syndrome.

Prader-Willi Syndrome causes various health issues such as severe obesity, weak vision, and developmental delays.

Baqir’s family is heavily burdened by the costs of his medical care, as the syndrome has no cure and requires lifelong management.

The syndrome is caused by a genetic error in chromosome 15, leading to health problems from birth.

Images and a video of Baqir are shown, highlighting his kind personality and friendly nature despite his challenging condition.

Baqir suffers from a 75% intellectual disability, although this is not immediately evident in his behavior.

His family has been granted assistance, with a caregiver provided by his school, but the medical and financial burden remains significant.

The family is appealing to the Ministry of Labor and Social Affairs for financial support to manage Baqir’s ongoing medical expenses.

The program calls on the Ministry of Labor and Social Affairs to address Baqir's financial needs, particularly given the high costs of managing such complex health conditions.

Baqir’s condition has also caused him developmental delays, requiring his family to be vigilant, especially when he faces basic health issues like the flu.

A field report is shown, where the program visited Baqir’s home to document his condition and the struggles of his family.

Baqir has additional physical issues, including six toes on each foot, but maintains a positive outlook.

Despite his health challenges, Baqir is described as full of energy and positivity, welcoming visitors warmly and enjoying their company.

The segment ends with a heartfelt call to action, asking the audience to report similar cases in their communities to help raise awareness and support.